Mum and MS

[mummynumnum]

My mum has been diagnosed with Ms, particularly bad in right lower side. Mum lives far away and she has not told me much. I know she is due to see a specialist nurse. Can anyone tell me more about MS and what to expect.

Hi there Mummynumnum - so sorry to hear about your Mum. My Mum was diagnosed with MS around 15 years ago. I am more than happy to tell you how it affects her but it might be really different for your Mum so maybe the MS Society website as well might be worth a look?

Mum has good days and bad days. When she is not feeling so well, we tend to find her eye sight and balance go. Mum also doesn't do to well in really hot weather or when she is overtired. We try to make sure she gets as much rest as she wants/needs. Mum gets really tired very easily and she used to be the most energetic person I knew!

Mum has a monthly infusion in the local hospital that takes about 6 hours to adminster. When she is having a big flare up as well, she goes on a high dose of steroids.

Anyway, I feel I am rambling a bit and probably not giving you much constructive information. It's a horrible, nasty disease but Mum stays positive and strong, as do so many other amazing men and women I know who have MS.

Very best wishes to your family.

Thanks for getting back to me. I live so far away so it is hard. I know she is having q a bit of pain in her legs and she is on her own (divorced) so I do worry about her mental health as well. She has sisters nearby and my sister lives close so that is a good thing.

My Mum is in Australia and I am here in the UK so I know what you mean about feeling far away and helpless. It's good she has other family close by and it might be helpful for her to talk to someone else with MS? Someone positive that is. My Mum's GP gets her to chat to lots of people diagnosed with it. I am sure the MS Society here could help with something like that?