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Intrusive skin crawling thoughts, (WARNING, MAY BE TRIGGERING FOR SOME PEOPLE)

28 replies

JustAstateOfmind · 08/10/2024 13:45

Why?? I have a physical response to overlapping, clustered lumps and bumps, but only if they're where they shouldn't be any. If i see clusters of seeds in a packet, or flat layer of holes like a beehive, I am fine, and this will not affect me.
I had a nightmare there was hair that looked like hay growing out of my son's tongue all over, with sunflower seeds laying against some of it inbetween. This made me wake up with my skin crawling, and feeling repulsed all day. Even now writing this is triggering my skin crawling and mental distress. It is very difficult to talk about.

I had a vision of seeds scabbed and layered all over my child's skin when I was changing his nappy, this was a random thought, which again I found very distressing and impossible to forget. I know all of this is fake, but it is like my mind fixates on it, and it is very difficult to replace these thoughts with nice things.

At the moment our kitchen floor tiles have worn so that there are holes in some of them. When you look in you see lumps layered in those porcelain holes, which shouldn't be there. I still look sometimes, even though it distresses me; I think this is because I am trying to desensitise myself to them, to try and cure myself. It got so bad the other day that I stuck labels over the holes, until Dh fixes it. Somebody was coming over, so I have had to remove them, and the labels were reminding me of what is underneath, so counter productive.
The thoughts make me feel disgusted, and my skin crawls and I feel nauseous. I have told dh to get the electric sander out the garage, as I keep looking at them, and trying to sand them with sand paper, and scrub them with a toothbrush because when I clean the floors, water is getting in, and I want it clean. If I saw this on pavement outside I wouldn't notice, or be bothered. It is when it is on places it isn't meant to be.

What the hell is wrong with me? Is this something sort of mental break?

I am epileptic, and on medication. I have no idea if this has any bearing at all on this thing. I am really disturbed by it.

i haven't always suffered from this. Please help!!

Just wanted to add, I don't have any other intrusive thoughts about anything else for instance I am not checking locks, and have no repetition rituals, it is just this!

OP posts:
JustAstateOfmind · 08/10/2024 18:06

Ilovedogs1 · 08/10/2024 15:55

@JustAstateOfmind I also think it sounds like OCD. I have diagnosed OCD and I don't check locks/windows etc or have it in the stereotypical cleanliness way (although I'm sure any presentation of OCD is distressing in its own way).
I'm more the 'pure OCD', intrusive thoughts/images/doubt etc.
All the OCD experts recommend exposure response prevention for any type of OCD.
OCD Action and intrusivethoughts.org may be worth a look. X

I wonder if the meds are intensifying a condition I already have, I don't know, or causing it. Something isn't right. It does feel like my mind ruminates, and fixates a bit on things. I'll check out that site, thank you very much.

OP posts:
JustAstateOfmind · 08/10/2024 18:07

BluebellsareBlue · 08/10/2024 18:05

Please don't apologise!!! You gave a trigger warning and I chose to read on to see if I could help in any way x

Thank you, but my description is very graphic. I should have been more specific with it being repulsive imagery! God just typing it nearly made me throw up, even now, just half thinking about it is making me shudder 🤢 It is the level of detail I see that really is worrying me. My mind hones in on every little detail despite never having seen this image before. It is like I am seeing it in high definition, awful. The stimuli I do actually see is bad enough.

OP posts:
LockForMultiball · 08/10/2024 19:21

JustAstateOfmind · 08/10/2024 18:02

Thank you for your post, and kindness. The thing that is worrying me the most isn't so much the stimuli like the floor that is triggering the visceral response (bad enough), but the images my mind has created in my sleep. They're so detailed, and when I replay them through the day, or when I am reminded of them it is like I am seeing a picture in my mind so clearly down to the finer details. I noticed the very first time this happened was when I started Lamotrigine, then since then the dose has been repeatedly changing, the latest time it has happened the dose has been adjusting again (maybe a coincidence there possibly). Dh is saying maybe it just needs to settle, but I'm unsure. I don't want to take something that is doing this to me for how ever long, and what if it doesn't stop. I am terrified the seizures will get worse taken off it, and god knows what else they'll put me on in it's place 😱

I was saying to dh I hate taking meds that interfere with my brain, and kind of forget how I am supposed to feel.

Edited

It feels understandable to me (though horrible for you) that you have these vivid, disturbing images… your mind has identified what it believes is a threat, and feels the need to return to the subject again and again to make sure you're prepared and can keep yourself "safe". It's extra-vigilant and always ready to see potential occurrences of the thing, and uses any opportunity to model predictions and come up with scenarios, then produces vivid mental representations which it then can't help but focus on.

It's all so bloody unhelpful, though, and I feel for you. I know that taking meds for MH problems isn't the same as taking them for epilepsy — I mean, the very reason I take meds is to change how my mind functions — but FWIW I can totally empathise with that feeling that a drug is changing you in ways you don't want, but where the idea of coming off it and trying yet another unknown quantity is just as worrying.

It's possible IMO that the drug is predisposing your brain to this kind of thinking (I'd be suspicious of it in your place too, as lamotrigine does seem to be able to cause this kind of thing, and your timings do line up — but I'm not a doctor, or anything close to it). It's also true that might not be related to the drug. Even if it is the drug causing it, that might not necessarily mean you need to come off it — some of the treatments used for the problems you're having with these unwanted thoughts can probably still be used, medication doses can be adjusted, and so on.

But really, you need to discuss it with whoever decided you should take these drugs and/or whoever's prescribing them.

If you were getting worrying physical symptoms that were interfering with your life this much, and you suspected they were being caused by a medication, I would hope you'd have the opportunity, and feel able, to discuss it with a doctor who can help you move forward with this. So, if this is a side effect of the drugs, it deserves to be taken just as seriously as an equally-troublesome physical side effect. (And if it's not a side effect of the drugs, it equally deserves to be taken seriously as a health problem.)

Seeing the doctor who manages/prescribes your medications is really the only way to determine whether it not it's likely to be a side effect of the drugs, and what actions to take. I'd guess those actions could be drug and/or non-drug treatment for the worrying/intrusive thoughts, adjustments to your epilepsy meds, both, or something else, but I don't know much about epilepsy treatment except that they often seem reluctant to withdraw something that's even partly working.

I suppose it might be a bit tricky because the side effect is in a different field of medicine from the condition being treated, and the NHS can be difficult to navigate in these circumstances. But side effects outside of the strict remit of neurology can't be unusual in people taking medication for epilepsy, surely?

I know how when it's your own thoughts that feel bizarre and out of control, it's really upsetting and alarming, and you said about how embarrassed you feel, but I promise that these kinds of difficulties are not at all shocking to doctors. They will not think you're weird or disgusting or dangerous or crazy, or conversely that you're fussing about nothing. They'll recognise that you're experiencing a variety of mental glitch that happens to LOTS of people, where systems that are meant to help us can go a little awry (either on their own or pushed by a medication), and which they're trained to identify and offer treatments for.

It's shit that you've got to deal with this when you're still trying to get on top of your epilepsy, and presumably have all the other stuff going on that life generally inflicts on us. But the kind of problem you're describing isn't something that you should just have to accept and live with. I hope that it won't be too long before you're past all this experimenting to find a tolerable medication regime that works for your epilepsy… I know it's not always that simple, but I can only wish you good luck.

Sorry about the lengthy post(s)… it's a side effect of one of my medications Grin (It actually is. I wish I was kidding.)

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