Please or to access all these features

Mental health

Mumsnet hasn't checked the qualifications of anyone posting here. If you have medical concerns, please seek medical attention.

Convinced we are enabling our son but don’t know where to start

56 replies

Sleepless1234 · 15/05/2024 01:28

Hi
Our son is twenty and has been struggling with his mental health for some time. I referred him to CAMHS whilst he was still at college. They sent him details of support groups, therapy etc but he did not engage.

He has never been particularly helpful around the house. If he was asked to perform any chore such as empty the dishwasher his response would be to ask how much he would get for it. I don’t remember him ever volunteering to help. As he went through his teenage years he spent more and more time gaming online. His schoolwork started to slide. We spoke to the headteacher about our concerns but nothing ever came of this.

He moved onto sixth form college but failed to engage with this. I could see he was struggling hence the referral to CAMHS. He just didn’t seem to care about anything other than getting online to game. I did say to him that once he finished college he couldn’t just stay in the house gaming, he had to get a job/apprenticeship/further education. If he planned to just continue gaming he could leave home.

He got a job. Night shifts as the pay was higher. We were concerned about this as his lifestyle/sleeping/eating habits were erratic and night work was not likely to help but it was his decision. He started with five shifts a week, then cut down to four, then three. We didn’t see him. Even on days off he would barely come out of his room because he was tired from the previous night or preparing for the next night. Around the time he turned nineteen he started smoking cannabis. He claimed it was the odd occasion when he was out with friends. He didn’t like drinking, he preferred to have a smoke. We were neutral about that. Is the odd smoke any more harmful than a few drinks? I don’t know.

But it was more than the odd smoke. There were times when he was smoking £150 worth per week. He was spending all his spare money on weed.

He had a breakdown in October. He gave up work - he had lasted almost a year. We encouraged him to see the GP and after several weeks of having him do various online questionnaires he finally was offered a face to face appointment in January. He is now being treated for anxiety and depression, possibly has PTSD and is awaiting an Autism assessment. He has been treated with fluoxetine without much success and has recently started taking sertraline. He has also been having weekly counselling since January which is obviously bringing up things from much earlier in his childhood which he has never shared with us (and certainly never showed any signs of at the time).

He will get up to attend appointments (job centre, doctors etc). If he has no appointment he may come down for a bowl of cereal in the morning but it is often lunchtime or later. He goes back to his room where he stays in the dark. He eats with us in the evening, although he clearly finds this uncomfortable (and has said he finds eating with other people uncomfortable - this has only been the case since around puberty). We then hear him gaming in the evening and he tells us this goes on until 2am.

He has been spending almost all of his universal credit on weed. He says it is the only thing to calm what is going on in his head. He says it helps him relax and to be able to sleep. And I can’t deny that this may be the case but he has been smoking more than his income. And he is smoking so much that it may well be the cause of some of his symptoms.

I have suggested he tries setting his alarm and getting up at a regular time. When he stays in bed until 4pm it isn’t surprising that he can’t sleep the following night.

I have suggested going out every day, even for a thirty minute walk could help him. He says he is too tired.

I asked if anyone else has suggested similar things to him. He said he guessed so. When I asked what stopped him from doing things he said it was hard to get motivated.

But he will go out and buy his drugs. Because we won’t?

I will cook in the evening and he does come and eat that. He will have a bowl of sugary cereal for ‘breakfast’ and a cheese wrap for ‘lunch’ if he has anything. He doesn’t eat fruit. The only vegetables he eats are during the evening meal and even then I have to be careful what I include. He was picky as a child but not this picky. There is always food in the house so he doesn’t need to worry about this.

I have stopped asking for his laundry. He has not had any sheets on his bed for at least 4 weeks. He will go for days without showering. His room is chaotic - but it is his room so that is his business.

I know he is unwell and a lot of his behaviour is down to his illness. But he can do things - he can keep his cannabis supply topped up, he will shower before going to an appointment. It feels like he just doesn’t bother when at home.

We did point out that his UC was for him to pay for essentials. We suggested he pays the majority of it over to us when he receives it, we would ensure he received a weekly amount so he could meet any expenses such as bus fares. We will hold the money in an account for him until he is better. This made him angry, he said he had no choice. I said he could choose to keep the money but from then on he would have to buy all his food. He chose the first option. Whether he will next month

He referred himself to the local drug and alcohol support group, but only when I asked him to.

Sorry for the long post. It is more of an offloading than anything. But if anyone has any advice on how we can help him to begin living in the real world again I would appreciate it.

Thank you x

OP posts:
Inulatheyellow · 15/05/2024 16:22

Sleepless1234 · 15/05/2024 09:09

@FaeryRing Whilst there are times when I think the same about the laziness and entitlement, I have also seen him sobbing and shaking uncontrollably and have seen him struggle to eat and even leave the table to throw up. Very easily triggered.

No, he’s not lazy OP.
Just struggling with his MH and worsened by knowing people are not understanding and judgey.
The cannabis is not causing this. It’s a coping mechanism.

Could you contact the National Autistic Society helpline ? He may have autism and related anxiety and depression.

Talk to him when he’s on a better day and see what he feels about his life.
Can he suggest anything that may help?

Theairiiscleaner · 15/05/2024 19:09

Sleepless1234 · 15/05/2024 09:09

@FaeryRing Whilst there are times when I think the same about the laziness and entitlement, I have also seen him sobbing and shaking uncontrollably and have seen him struggle to eat and even leave the table to throw up. Very easily triggered.

OP. Absolutely everything you say is what I experienced with my son who is also on the spectrum. It isn’t just laziness, it’s much more than that. Your GP sounds a lot more helpful than ours was. They just didn’t care and had nothing to offer.

You sound so much like me in your approach and how you feel. It’s heartbreaking. The best thing you can do is offer support kindness and love . It is important too though not to do too much for him so that he just gives up trying to be an autonomous person with agency. He needs something to occupy him that doesn’t stress or trigger him and gently builds his confidence. Hard to work out what that might be though.

broccoliismycrack · 15/05/2024 19:40

Hi op I have ADHD and my brother has paranoid schizophrenia. From what you say it sounds understandably like you are very confused about whether to take the stick approach, or to try and understand, and in any case it's very hard to understand what is going on. And if he does have autism that brings up a lot of looking back and seeing maybe it was dismissed. I wonder whether he may have inattentive adhd as there is a correlation with addictive behaviour and adhd. The cannabis being a form of self medication. It would be worth discussing this with him. Adhd is highly treatable. I'm not suggesting stimulant medication will be the answer but they make significant improvement for many people. Quite a lot of people use CBD. His diet will be playing a huge role in his mental health and it would be better maybe enlisting some help from a nutritionist especially if he is diagnosed with ASD. Finally there is the Access to Work scheme when he gets into a better place which provides support for people who are about to start jobs, including coping strategies. It will be a huge journey for him in understanding how his brain works. But there is absolutely light at the end . People with adhd and autism are often about 6 years behind his peers so personally I think he does need more time and input. There are some good books that might help, one of them is Smart But Scattered Guide to Succes for Teens, I think it's about ADHD but there is a lot of overlap with autism. I have inattentive adhd and possible autism.

If he can find an employer who supports and understands his neurodiversity there is no reason why he can't thrive at work.

Good luck and I am sorry that you had so little understanding but you only do your best.

Sleepless1234 · 16/05/2024 17:26

Thank you to everyone who replied. There is a lot of food for thought and a lot of useful information.

@broccoliismycrack 6 years behind his peers - so he probably is far from ready to be the adult. Knowing this makes it easier to accept his current situation. Not only is he unwell but his level of maturity is not that of a 20 year old.
@UnbeatenMum Will encourage him to ask about the melatonin. He is currently up at all hours gaming and getting food at one or two in the morning because he says he can’t sleep
@AndSoFinally will look into the parenting classes, thank you
@MoominPyjamas will make sure the mental health team have a plan before his discharge. He has give us permission to speak with his GP so maybe this extends to the mental health team.
@Octavia64 he has been in therapy since January. He has also been on medication since January. He says he feels less stressed but there is no improvement obvious to us. The brightest we have seen him is when he had stopped fluoxetine in preparation for starting sertraline.

OP posts:
Sleepless1234 · 16/05/2024 17:46

@Lilacdew I broached the idea of setting boundaries. It didn’t go well at first as he quickly reminded me of the fact he believes he has pathological demand avoidance. Essentially if I ask him to do something he will go into a freeze response. He doesn’t have a formal diagnosis but what I have read about it would explain a lot of his behaviour we have seen as he grew up.

I did later speak to him and explained personal and environmental hygiene are not optional things, they are part of life. But I asked him to set his own boundaries. So he has set an alarm to get up, has set his time to have breakfast, when to shower etc. He also agreed to put sheets on his bed and bring his laundry down once a week. He determined the timings, which are all later than I would like but we have to start somewhere.

The problem I now foresee is enforcing those boundaries because if tomorrow he isn’t showered and dressed by his chosen time he has already stated that him being asked to do something can lead to avoidance. Any strategies I have found so far online are aimed at small children, such as making a game of it. Not really appropriate for a twenty year old.

I did ask him what would happen if he didn’t do what he said he would. He suggested gentle reminders. We will try it.

Does anyone have any experience advice or guidance regarding adults with PDA please?

Many thanks

OP posts:
30andready · 15/10/2025 14:22

Hi OP I just wondered if you had an update. Similar boat myself and curious to know if

New posts on this thread. Refresh page