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Mentally ill brother

38 replies

chickencuddles · 28/09/2022 10:07

Brother had no history of mental health problems growing up.

We had excellent relationship, (5 years between us) visiting each other at uni, welcoming each other into the others friendship groups etc.
He developed a skin condition, a bit like eczema, called red skin syndrome (related to overuse of topical steroids) and spent about 5 years going through an awful withdrawal process (age 25-30). He was living at home with our mother during this time, having given up work. He wasn't believed by the medical profession that it was a withdrawal process, and many dermatologists suggested further use of topical steroids. It was an appalling physical process to watch and he was very ill. I supported him the best I could throughout this process, although with working and having 2 young toddlers at the time I couldn't always be there for him. It was also difficult to know if him going against all medical advice was the correct treatment for him. He is extremely intelligent and was second guessing the doctors constantly. I am more inclined to follow instructions as per medical advice.
He then started to see his skin improve eventually. At this point he seemed to develop depression/anxiety traits.
He also started to turn on me and my husband, saying we hadnt supported him, or believed him about his diagnosis. He claimed we did nothing for him to help him (I flew back from holiday once to go and help look for him as he threatened suicide and ended up hiding out on the local common, the police eventually found him). He suffered psychotic episodes. One time when I was with him, he put his hands around my neck and began to squeeze. He was always included in family events by my wonderful in laws, but would often turn nasty at them and start accusing my in-laws of not supporting him (he had also kindly been given accommodation by them in their house when he was going through an obsession about allergies in his own house).

My mum tried so hard to support him throughout this process. She had been widowed when I was 13 and had done a great job bringing us up, but I often had to step into the parenting boots during that time, as she also had physical issues from a stroke.
He also had my grandmother removed from her own home (the house was shared between my mother and her mother as they were both widowed) and put into a care home (she was displaying early signs of dementia but certainly didn't need a care home at that stage), mainly because he hated her and couldn't bear to live with her. As I had moved out many years before it was difficult to intervene as I didn't have the full picture. In hindsight I can see what happened.

Over the last 5 years my mum gave up everything for him to try and help him rebuild his life. The effect on her was monumental. She constantly cancelled plans to see me and her grandchildren, even for things like her own birthday celebrations. I would message him on a regular basis to ask if he wanted to meet up, if he needed anything, but conscious of the fact that by this point I was actually scared of him and didn't want to be alone with him in any setting (aggression was always directed at me, not my mum or my in-laws). He would generally ignore my messages anyway or hide away in the house when I came round to pick my mum up. He would regularly try to turn her against me and she occasionally had to come and stay with us to get away from the toxic atmosphere in her house.

During this time my mum had a hospital spell for a badly broken leg. She was in for weeks. He only visited once.
She then developed bowel cancer. Luckily this was treated fairly easily. My brother convinced her to lie to me about the cancer so I didn't find out until a year later that she had it. I was under the impression that her colostomy bag was being fitted due to severe ulcerative colitis. Again no visits for her in hospital from him, not even on Christmas day.
Sadly the cancer reoccurred, and spread very quickly. She spent 3 months in hospital. He maybe visited her once. I tried to visit most days. It was the most awful thing I have experienced. She eventually died this February, I got to be with her as she went. My brother refused to come, despite contact from everyone who knew him. On the same day that she died, he was sectioned after frantic calls from me to his psychiatrist and the crisis team. Although eventually he went in voluntarily, so he was able to leave a few days later of his own free will. During his stay in hospital I visited the house to get mum's paperwork to start organising the funeral etc. The house was in absolute squalor. Dog poo on the floor. Vodka bottles everywhere (he is an alcoholic).
By this point our relationship was non existent.

Fats forward 6 months and he is in and out of hospital (general hospital), often for alcohol withdrawal and associated issues. He's had a few aggressive phone calls with my husband. I've had messages blaming me for mum's death. I've also just been through a bowel cancer scare myself, luckily I'm OK. I panic whenever my phone rings in case it is him, hands shaking, heart racing sort of thing.

I'm now getting messages from a well-meaning friend of my mum's, saying something needs to be done, now, as he has just been sent home from hospital back to truly horrific living conditions. Which is all well and good, but what on earth am I supposed to do? I can't solve any of his problems. He's so far down the black hole that I haven't a clue how to help him. The medical profession haven't been able to help, his psychiatrist is lovely but overstretched, as are social services, and I just feel utterly helpless. I barely know him anymore, so it's like being asked to help a total stranger. The only thing that has helped my sanity over the past six months whilst I try to grieve for my mum, and stress about my own health, is reducing contact with him. His friends are rarely in contact with him anymore. We have a few cousins dotted around but basically, he has no one because he has alienated everybody. I understand that mental health problems can do this to a person, but the fallout of his problems on everybody else has been absolutely massive, and people just don't have the time or energy for him any more. It's so incredibly sad, and I feel desperately sorry for him, but I don't see how he will ever get better. I feel incredibly guilty, but also incredibly angry with him for everything he's done. How do you distinguish between actions caused by mental health issues and other actions? It's all blended in to one for me.

Any advice very welcome. At some point the house that he has trashed will need to be sold, but that's a story for another time as it's unsellable right now anyway.

Feeling sorry for myself right now and wondering if I could/should have done more...

Sorry this is so long 😬 well done if you get to the end!

OP posts:
Redburnett · 28/09/2022 16:56

If the house has been left to you and your brother I would push for it to be sold so that you get your share of the inheritance. It could be sold at auction, for example, to a developer, obviously for less than a property in good condition would. That would mean your brother would have to be housed elsewhere and might finally be given sheltered accommodation which might help him, in so far as anything can.

Birdy1066 · 28/09/2022 17:05

You’ve done your best. You’ve suffered bereavement and also the chaos caused by someone who has no interest or desire to behave reasonably whether by intent or through illness.
Time to stop now and let go.
The sad truth is that your brother you grew up with is gone too. The stranger who is left will only hurt you and cause you further pain. Go no contact and field off all attempts by others to make you responsible.

BarnabyRocks · 28/09/2022 17:35

I am sorry about your poor mum and you having lost both of your parents. You're brother cannot be helped if he doesn't want to be. I think you should make you and your family your priority- you need to grieve and be able to focus on your own life. You can't help him really, he is a grown man. As a PP said, you will need to harden up a litl bit when it comes to him. You will feel guilty so maybe give yourself a practical list of things you will do but try not to do any more, as it sounds like it will just get thrown in your face. Like, send Christmas and birthday cards, text 4 times a year, get in touch with psychiatrist twice a year. That's it. Look after yourself. Sending hugs xx

HilarityEnsues · 28/09/2022 17:50

You need to tell the well-meaning friend that you have tried over the years to help your brother, that he does not have contact with you, and that he doesn't share his medical records with you, so you are unable to help. If they are worried, they should call the MH crisis team or the police themselves (which may benefit your brother more anyway). Shut that down.

There's nothing else you can do, your brother is lost at the moment to his illness, he has put his hands round your neck, been aggressive to your husband, scares you and you just have to keep you and your family safe. I would not have contact with him in person full stop, and I think the idea of minimal contact as suggested above is the best way forward- whoever suggested that is spot on, so twice a year contact his psychiatrist, a few texts, birthday and Christmas.

He is not going to get better because of anything you do, your mum can do or indeed through some miracle of the MH system either- he would be safer if housed in a sheltered accommodation but unless he has lost capacity then he may well not agree to that anyway and can't be forced to live there. You can suggest it but I wouldn't expend any energy trying to make that happen. He hasn't reached out to you for a long time and hid when you went around, so I think it's beyond anything you can do.

It's very sad, but you need to keep yourself physically and emotionally safe.

HilarityEnsues · 28/09/2022 17:51

I meant that your mum was able to do, I'm so sorry for her death you sound a wonderful daughter to have given her so much support during that time.

chickencuddles · 28/09/2022 18:41

Thank you all for the kind messages. I think tomorrow I might just try giving the doctors a bit of an ultimatum, by saying that if he doesn't get help soon, proper long term support not just a dip in dip out approach then I really think he could be dead in 12 months. Which is totally possible. And thank you for the be kind kind yourself advice. I will try!

OP posts:
SparklingLime · 28/09/2022 18:58

I’m not sure an ‘ultimatum’ is the best approach with his doctors. Mental healthcare in the UK at the moment is absolutely in crisis. He is very lucky to have a good psychiatrist who he has had some continuity of care with. They also may not be able to provide adequate care for him. It’s appalling and it shouldn’t be like that, but for many it is.

SparklingLime · 28/09/2022 18:59

He is lucky to have you to advocate for him though. A push from an advocate can help.

chickencuddles · 28/09/2022 19:04

You're right, an ultimatum is probably a terrible idea. And wouldn't make any difference. What might help me this evening is a glass of wine and some escapism TV though...

OP posts:
SparklingLime · 28/09/2022 19:05

That sounds like an excellent plan!

hattie43 · 28/09/2022 19:16

I think you have to go no contact , change your phone number if needs be . You aren't responsible for your brother and if he isn't helping himself or engaging with treatment I'm not sure what you can do .
Focus on your own family

magma32 · 28/09/2022 19:32

I’m sorry for what you’re going through but the bit where you said he put his hands around your neck and started to squeeze gave me chills. If he’s not of sound mind who know what he will do. If he was your partner you would have to leave him for fear of being killed next time. You have two young children, they need their mother. I would stay in contact and advocate where possible but not in person unless your safety was guaranteed.

Fraaahnces · 29/09/2022 01:12

@chickencuddles I think everyone is aware of the massive lack of funding for MH. Historically, there has always been a similar percentage of people with MH and substance abuse issues, and after both world wars, there were a lot of “Sanitoriums” and “Rest Homes” built for people with MH issues that are too sick to be home or in society, yet not acute enough to warrant a hospital bed. Unfortunately they have mostly been redeveloped and despite the population being bigger than ever, the number of MH chronic MH facilities and acute hospital beds is smaller than ever.

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