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Agoraphobia support thread

68 replies

rainbowninja · 12/12/2021 20:08

Would anyone like to join a support thread about agoraphobia?

It's just one of the many anxieties I seem to have 😂.

I was pretty much housebound for the best part of a year but recently started to take some tiny steps back out in the world and I do mean tiny. Is anyone else in a similar boat and would like to share their experience/support each other?

I don't have a master plan and I thought I was done with CBT exposure type therapy but I've been feeling motivated to take action recently and wondered if anyone would like to join me?

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rainbowninja · 07/01/2022 12:27

Hi @forrandomposts

Sorry to hear you're suffering but you are certainly not alone in this and you're in good company here ☺️

What did you decide to do about the dentist? I worry about not being able to go to the dentist myself, luckily although I have a little bit of discomfort it's not urgent yet.

I'm working on doing small but repeated exposure to going out but all methods/coping strategies are welcome!

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rainbowninja · 08/01/2022 20:45

Hello all,

So I didn't manage to do as much exposure today but on one of the short walks I did do I bumped into a neighbour and had a really lovely chat. She invited me round for coffee, I'm freaking out about the idea of that obviously 😂 it gave me a boost to be invited though even if I can't do it straightaway.

Hope everyone is having a decent weekend.

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rainbowninja · 12/01/2022 14:08

Giving this a hopeful bump in case anyone else would like to join in and take some positive action with their anxiety/agoraphobia.

I've been doing repeated very short walks out my house for the last week or so and finding that I am getting calmer. Frustratingly I'm already worried about my ability to do the bigger things but I'm hoping that if I keep on working on the small ones that they will take of themselves 🤞🏻

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rainbowninja · 20/05/2022 12:00

Anyone interested in reprising this thread? I’m still battling with my agoraphobia. Had a bit of a breakthrough a few weeks ago when I got diagnosed with pyroluria, a metabolic condition that impairs your ability to manage stress. I’m taking zinc and B6 and it’s helped a bit but going out is still really hard. I’m better than I was a few months back but it hasn’t been plain sailing 🥴

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MenAreNotWomen · 06/06/2022 01:13

I have agoraphobia too, can I join this chat?

Flaxmeadow · 06/06/2022 01:48

I'm interested too.

Harrystylestutu · 06/06/2022 05:20

Hello, I'd like to join in if I can. Agoraphobia with panic disorder. I'm so drained. I suspect I'll have some hospital appointments coming up soon and the ward I need is on the third floor which is the worst! Either trapped in the lift, or loads of stairs to climb and would take ages if I needed to 'escape' 😥 already panicking about my gp appointment tomorrow.

whatsnewpussycat34 · 06/06/2022 21:11

I too have agoraphobia stemming from a major panic attack 15 years ago which resulted in depersonalization for a solid 12 months. Kicked my arse it did!

I didn't leave the house for a long time, but I'm now able to hold down a full time job, and go to the city for meals, nights out etc. but no travel outside my comfort zone.

I'm much better now and here for support and to give support!

rainbowninja · 07/06/2022 21:43

Oh yay! That’s more of a response than I was expecting! Welcome @MenAreNotWomen, @Flaxmeadow, @Harrystylestutu and @whatsnewpussycat34

I hope you got on ok at the gp @Harrystylestutu?

@whatsnewpussycat34 a year of depersonalisation sounds like hell! How on earth did you cope? I get it too sometimes, horrible feeling.

I went out for a short walk today, had had a decent spell of getting out a bit more and then got a bit overwhelmed but want to have another try and would love to be able to share the ups and downs with anyone in the same boat.

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whatsnewpussycat34 · 08/06/2022 11:44

@rainbowninja hi 👋🏻

I didn't cope is the honest answer! But I recognize th triggers and understand what is happening to me which makes it bit less scary. Although not by much lol

Eyesopenwideawake · 08/06/2022 11:59

Hello! I don't know if any of you saw my AMA thread (about remedial hypnosis) but if you're interested I'd be happy to explain the common reasons for phobias and how you can overcome them?

whatsnewpussycat34 · 08/06/2022 16:38

Eyesopenwideawake · 08/06/2022 11:59

Hello! I don't know if any of you saw my AMA thread (about remedial hypnosis) but if you're interested I'd be happy to explain the common reasons for phobias and how you can overcome them?

100% yes! Thank you!

Eyesopenwideawake · 08/06/2022 18:17

OK. Might be a good idea to get a cuppa - this is a bit long!

Imagine that your mind is a ship, with a captain and a crew.

The captain is your logical, conscious, objective mind. The captain decides where we are sailing to, and why we are sailing in that direction and what we're going to do when we get there. In other words achieving our short, medium and long term goals. There is, of course, only one captain and s/he can only work on a limited number of thoughts at any one time.

The crew is our subconscious mind, they steer the ship and carry out all the day to day tasks we are not consciously aware of; all our automatic thoughts and actions. They are also the custodians of our emotions, our creativity and our imagination and (most crucially) our core beliefs, which is the way we view the world and our place in it.

Up to the age of around 9/10 years old there was no captain on board the ship because children don’t have the capacity to consider the validity of what they are told or to think about long term goals. So the crew lived in the moment to keep the ship afloat as best they could, trying to keep us safe and happy. At the same time they absorbed lots of information, ideas and opinions about who we are and how we fit in the world. Some of this information was correct, some of it wasn’t, however it was all taken on board and believed to be absolutely true, both then and now. We call this the map of reality or critical faculty.

When we mature and try to do things that the crew decided earlier in life were not a good strategy, our ship hit the rocks. It could be something simple such as accepting that spiders are not dangerous or it could be life changing, such as standing up to a bully or giving a confident presentation to a 100 colleagues.

With agoraphobia, and other phobias, something happened (which could have been so minor you can't now remember it, or could be seared into your memory) and a crew member decided that that was so scary that it was going to take on the responsibility of protecting you from ever being in that dangerous place again. That crew member is doing its job every day because it believes this is the best strategy for the most happiness.

I'll give you a silly example. When I was a child I spent a lot of my on a nearby farm, playing with the animals and generally making a nuisance of myself. One day the farmer jokingly threw a small worm and told me it had landed in my welly. I was hysterical then and, to this day, always shake out my boots...just in case there is a worm lurking in there!

So how do we persuade the crew to stop doing what they're doing? If you know what your particular trigger was then consider what happened, when it happened and what was the outcome. Look at it from every angle now, as an adult - not with a child's eyes. How likely is it to happen again? What steps can you - as a grown up - take to ensure your safety? Did anything truly bad happen or did your imagination concoct a series of events that could have, but didn't actually occur?

Now (and this is when it sounds a bit mad but if you've made it this far you might as well carry on!) try and talk to the crew member in charge of your phobia. Start by thanking it for having done a fantastic job but explain that the work it's doing now isn't making you happy, in fact it's actively stopping you from doing the things that would make you happy and you'd like it to stop now. Have this conversation out loud or in your head. What will generally happen is you'll get lots of thoughts popping into your mind as the crew member panics a bit and tries to remind you of all the scary memories. Let your captain (your conscious mind) counter these fears with facts and rational thoughts. Keep going until you can think about the phobia without emotion.

Phew. I need a cuppa now.

rainbowninja · 10/06/2022 22:34

Wow! Thanks @Eyesopenwideawake for typing all that out! It actually makes a lot of sense and I like that way of thinking about it. Will try 😊

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Lisalisaandcultjam · 10/08/2022 22:22

Hello, I'm wondering if I can join you all.

I've been agoraphobic on and off for many years with the recent bout being about 5 years where I barely leave the house.

I work with an OT on graded exposure but it has been really difficult to achieve much progress. I do try very hard and whereas I managed to do well in other bouts, this has been far more difficult this time.

It's my parent's birthday coming up in 2 weeks and a family member has suggested a dinner quite a way away knowing that it would be extremely difficult if not impossible for now. I'm not sure what to say. I feel quite embarrassed and ashamed. I feel like I can't just own it and say point blank I can't go for fear of being judged. I've been in tears over it.

I don't know how others feel but I feel that non sufferers generally really don't get it. I've had people telling me to get a grip and all sorts. If only it were that easy.

rainbowninja · 16/08/2022 19:38

Hi @Lisalisaandcultjam

Sorry I didn’t see your message until now but you’re very welcome to join. I’m also in the midst of a long bout of agoraphobia, having had it on and off for many years.

Situations like this with family are just the worst, I hope you’re doing ok and have found a way to navigate it. Please let us know how you’re getting on, I’ve had a lot of situations like this over the years and I know how tough it is.

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Lisalisaandcultjam · 16/08/2022 19:50

rainbowninja · 16/08/2022 19:38

Hi @Lisalisaandcultjam

Sorry I didn’t see your message until now but you’re very welcome to join. I’m also in the midst of a long bout of agoraphobia, having had it on and off for many years.

Situations like this with family are just the worst, I hope you’re doing ok and have found a way to navigate it. Please let us know how you’re getting on, I’ve had a lot of situations like this over the years and I know how tough it is.

Thanks so much for welcoming me.

Your heart just sinks when people mention these things. What's also hard is having to repeatedly tell people over and over again.

I've spoken to my Mum and she prefers to stay locally so I'm going to put that to the others and see what they think. This should prevent me having to say I can't do something for now. I am still worried about whether I can manage it on the day but am trying not to think too much about that for now.

I'm very fortunate that my husband is super supportive of me. I had this mildly not long after we met so he's well used to it over the years,x

rainbowninja · 17/08/2022 18:35

@Lisalisaandcultjam

I’m glad you have a supportive husband and that the issue might be partially resolved by your mum being keen to stay local anyway. It’s so hard to negotiate these situations 😫 I sometimes don’t know what is worse, the not being able to go to things or the fear of people not understanding.

Thanks for posting, it’s always helpful to hear from another sufferer.

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