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Does the mirena coil mess with your mind?!

34 replies

footballmum · 06/08/2011 10:31

I've been reading with interest some of the stories on here about the effects if the mirena coil and am starting to believe that mine may have caused me a lot of problems over the last few years.

I had mine fitted 4.5 years ago for contraception but also because I was suffering with dreadful hormonal headaches, made worse by the pill. After about 6 months my periods and headaches stopped altogether so for the first couple of years I was over the moon with it.

However, there has been a gradual change in my moods. I've tracked them and I think they are at a PMT time in my cycle but it's hard to tell when you have no periods at all and I never had a very regular cycle to start with!

At these times I become a totally different person. I find myself having these imaginary arguments in my head with people who have done something to annoy me. If it's DH I regularly imagine myself leaving him. I've even looked at rental properties and worked out the custody arrangements! I've never actually told him as he'd be devastated but the effect is that I end up seething with rage and no one knows why!

When the mood has passed and I'm "better" I cannot believe I got myself into such a state.

The other big problem is the weight thing. For me I'll call it weight control because I haven't put on masses of weight like some people have. I've probably gained about a stone but I've really had to fight hard to stop it being more. At the moment, I'm running about 15 miles a week and I'm just maintaining my weight. I don't eat rubbish and don't drink excessively. I've tried several different diets and slimming clubs and nothing works.

So I suppose what I'm asking is whether anyone else has had similar experiences? I can't quite convince myself that it's all down to the coil as it's all been quite subtle and gradual and many of the stories report an instant effect when their coil was fitted. I think the only way I'll definitely know is if I have it out and see whether things improved but I'm worried my headaches will return and I'll replace one problem with another.

OP posts:
Nyk0420 · 26/03/2019 01:32

I know this thread is low key dead... but please, if there is anyone sill here, I'm desperate for help.

I literally made an account for this thread. I've had my IUD out for 5 days now and I seriously feel like I'm going insane. I had mine for just shy of 3 years, and it was quite possibly the worst decision I've ever made. I had bad feelings about the IUD since day one. But no one would listen to be and I felt pressured into not only getting it, but in keeping it.

So the list of things I've experienced:

  • 30 lbs weight gain
  • ovarian cysts starting in 2017. They went away on their own, but I had FOURTEEN of them at one time.
  • my period CAME BACK in June of last year. And in the last 3 months I've been spotting continuously almost non stop.
  • I NEVER had migraines before this IUD
  • *Severe depression/anxiety.* I stress this because I've always had general anxiety, but it has gotten EXPONENTIALLY worse in the last 3 years (my TEN ER visits IN 18 MONTHScan testify to this)
  • mood swings/disassociation
  • my final straw was my swings toward my boyfriend of 6 months. One minute I'll be infatuated with him and talking about our future together, and then the next I'm questioning if we love each other.
  • the first year my sex drive was non existent, then it came back, and now it is gone again.

I'm scared. I'm tired. I feel like all of this is never ending. And I dont want it to ruin my relationship.

Please. Please. If there is someone out there reading this... tell me it gets better.

Nyk0420 · 26/03/2019 02:25

I also forgot to mention the INSANE breast pain. For 3 months now. They hurt so bad and are CONSTANTLY swollen.

12 pregnancy tests have all come back negative.

Clara45 · 12/05/2019 08:50

I had the coil fitted last year. I had it in my body for about 4 hours, and I had the WORST night of my life... Anxiety, panic, irrational thoughts, low mood... I literally felt INSANE... My friend spent the night with me as she was so alarmed, when I rang her... I was at the GP'S surgery the next morning, GET THIS THING OUT OF ME... They said... Give it time... NO, get it OUT... Within 3 hours of removal, I felt calm, and back to my usual self... That thing was EVIL... And so scary, for me personally... I think I'm 100% progesterone intolerant...

SkipJoan · 23/05/2019 18:18

I've had mine in for 6 months, the time they say it takes to get used to it. I have had a permanent squeezing type headache for a few months and am not myself. I am making mistakes and not as 'aware'.and feel more vunerable. I have shouted a few times then thought wow what happened there. Do enjoy not having periods but that is it!

Leedsutd40 · 22/09/2019 17:20

I had the Mirena coil fitted nearly 2 weeks ago whilst having a Hysteroscopy procedure which by the way was absolutely horrendous, I wasn't given any pre-information or advice about the procedures as it was a last minute booking by the hospital and it disgusts me that these sites state that the pain some women experience during a Hysteroscopy and Mirena fitting depends on a variety of things one being your pain threshold, which is utter rubbish. I have had 2 children through complicated deliveries and also endured years of pain due to having Endometriosis in my pouch of Douglas and the pain I experienced during the above procedure was totally unexpected and worse than what I have ever experienced. I wasn't offered any anaesthetic before hand, the gynae just cracked on as if it was the norm.
Since having the coil fitted I have been in severe pain and discomfort mainly in my abdomen just above my belly button down into my pelvis, the pain has sometimes been like a big wave that stops me in my tracks.
Due to experiencing this much pain I contacted my GP who sent me to A&E where I asked them to remove the coil due to the pain I was experiencing, when the Gynae tried to find the threads she told me she couldn't find them due to the coil either coming away, the threads moving upwards or the coil may have dislodged, I was sent home with painkillers and an urgent out patient scan request was put through. 2 days later the pain was still extremely bad, especially when driving my son to school it was excruciating, so after phoning for more advice from my GP and the gynae team I was sent back to A&E where I was admitted. I had a scan that showed the coil was in the right place, I still asked to have it removed due to the pain and discomfort around my belly button which also heightened when trying to do normal day to day duties. On my request I was told that there was nobody available to remove it and I had to make another outpatient appointment with my gnae to remove it and yet once again sent home with more painkillers. Nobody will help me get this thing out of my body which is obviously not suiting me, I feel a heaviness in my abdomen like I can actually feel where the coil is placed, I'm in severe pain and discomfort and nobody in the medical profession that I have seen wants to help me, it is literally driving me to insanity.

Linzi67 · 13/10/2019 13:20

I'm in the same position. I had the implant before I got pregnant it was absolutely fine with me so after giving birth I went back to it. I have had it removed and I have got the kyleena coil. My baby is 8month old. I feel on getting more mood swings. It's not effecting my relationship yet with my partner. But I have become more snappy and when it comes to the time of the month I'm really irritable or other end of the scale emotional. I wasnt like this before having George. Or is it just in my head and need more sleep and just de stress plus people who have come off the coil or implant what have they used instead thanks 😁

Ash12345678 · 22/11/2020 10:47

Hi for the last 5 year since having my first born I haven't been the same personI cry all the time I eat like a pig I'm tired I have the most severe head aches I have no energy Im very snappy I have no paitance i have the most crazy mood swings I sometimes forget what I have done I'm so awful too my partner and I blame him for everything and then a few hours later I cry and can't believe what I said and done it's getting worse, I used too be the most happiest outgoing free young girl now I just feel anxious all the time, a friend of mine had mentions it might be the merina coil that I have put in 5 year ago? Is there anyone else in the same boat x

Hollysbiz · 06/02/2021 02:56

OK! READING THIS HAS SCARED ME TO DEATH!!!
i’ve had my merena in for 13 years and i’m 33. well i’ve never had any problems with it but after reading this we’ll .....
i’ve always been a little crazy but this really feels like something i never knew what it was even being on antidepressants of prozac 80mg didn’t help!
just the past year i’ve been feeling trapped and will want to change my life so i’ll go all out to start working out, eating better, cleaning up and the. a couple days later i’ll give up i’ve been doing this on and off for well 13 years!
today i’m on a mind blowing roller coaster! i’ve had some issues with it recently but went to the ER and they told me it was fine and still in the right place. but it could be the reason i am now clotting black clots on the side of the tampon closest to my uterus and kidney infections, UTIs, high fevers.
i really want to get it out but i’m terrified i’m going to go through such a bad mental breakdown i will not know how to get out of it! i have a 13 year old girl and i’m wanting another baby soon. I ASK myself is the MERENA the reason i’ve had such a depressing state of mind? will it help or make me feel worse to get it out. i had SUCH bad periods that i would cramp and throw up everytime all cycle long. but i got past that then got pregnant at 18. i’m really scared all the time and since covid GYNO aren’t available really.
another question is if i get it taken out and i’m on 80mg of prozac will it shock my head and make me SUPER HAPPY. or the opposite. bc personally i’m tired of being depressed and i do want off my prozac bc it has made me gain so much weight and my sex drive...... ZERO!
HELPConfused

WoolleyThinking · 06/05/2024 22:00

Doctors in the UK are trained to tell women the Mirena's progestogen somehow magically only acts locally. However, it clearly acts systemically, because it commonly causes depression, anxiety, weight gain, loss of libido according to the manufacturer's own literature.

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