Next move for MIL

[EagerQuail]

I’ve been a long time lurker of cockroach cafe and appreciated the advice on these. My MIL is 93 was discharged from hospital 8th June whilst we were on holiday doubly incontinent 4 care visits a day following a stroke. We were pushing for discharge to assessment but she was sent home with no notice in her nighty. Really struggling to get the continence under control, I’ve upped the pads and put on bed disposable pads etc but still soaking through and soiling frequently. Care now increased to 5 times a day to incorporate laundry visit. Social services came yesterday and did assessment and said lacked capacity and accommodation rated red high risk unsuitable as 2 nd floor independent living no evec chairs and lift cuts out on alarm sounding. We’ve been told moving to area team Monday and we have to try the 5 visits a day. It is all so draining and time consuming at the moment and just wondered if anyone had reached this point and what happened from here, thank you. Carer today reported open sores which I reported to GP and district nurse rang tonight to see if they needed to visit tonight which surprised me

@EagerQuail as a last resort would she/the medical team, consider catheterisation? Kylie sheets are also very good and have the district nurses offered a pressure cushion?

Is she bed bound? Obviously her skin is paper thin and if she is sitting/lying in soiled clothing it's unsurprising she has sores.

Why have the carers not noticed before now, I'd take a look at their diary sheet just to see what they're actually doing each visit.

These teams are under very strict time limits sadly that you/your husband really have to be vigilant to ensure her comfort.

Caring for an aged parent is such a very difficult and stressful time for you all @EagerQuail 🌸

@Arregaithel thank you for your advice, I’ve ordered the kylie sheets as I got some disposable ones but they were much smaller than these. She’s not completely bed bound but only moves to where the carers put her so can’t get out of bed at night or the chair unaided. I’m not sure the catheter would help as it seems to be the poo escaping more at the moment. Who knew we would become experts in bowel and bladder function?!
thanks again for taking the time to reply, appreciate it

Has she been offered medication
to slow down the bowel (e.g., loperamide) or adjust current medications that might be causing loose stools.

Im guessing because of her age surgery would be risky

How sad for her it must be very distressing
sending love 🙏

My mother reached a similar stage and went into a care home (self funded). Would this be possible? We made sure it was a home that also accepted state funded, so when the money ran out she wouldn't have to move. In the meantime you can request (or purchase) a bubble pressure sore mattress topper. I was going to buy my mother one but we were supplied with one. It was a game changer. She was also catheterised which was much more convenient.

Hopefully, the DN will be able to make sure you've got the right cream and mattress, cushions etc. They might suggest an airflow mattress.

Thanks all for your suggestions. I’m waiting to see what happens today but thinking I will ring the GP tomorrow and ask them to come out for a home visit. They usually send a paramedic instead. Ultimately I’m hoping she will be admitted to hospital soon and then I can push more that she can’t come home and get the nursing home hurried up. I’ll make a list with these suggestions thank you

In the meantime
suggest you ringing around all the care homes to see if there’s a place
free
Its unlikely they’ll admit her to hospital unless they assess that there’s something medically they can only do in hospital that’s not possible at home

@WhatsAWeekend that’s very true. I’ll start ringing round thanks