Likelihood of funded stroke rehabilitation centre / cost of private settings

[PeanutButter82]

Hello
Sorry if this is the wrong place to ask this.
My mum had a serious haemorrhagic stroke 10 weeks ago. Following some complications and infections she is now doing well and is medically stable. She was recently transferred to her home hospital (having been in a specialist neuro unit initially as she happened to be near there at the time of the stroke) and the setting is not suitable for her needs as it’s very noisy so she can’t properly sleep as she needs to. We are trying to get her referred to a specialist neuro rehabilitation unit, as she looks likely to be able to make a decent recovery (all limbs still working, knows when she needs the loo, knows what is happening etc), albeit hampered by muscle wastage after a long time in bed meaning she can’t yet walk or even stand up herself.
There is a specialist NHS unit for precisely her needs in our area but it has a waiting list.
Has anyone been in a similar situation and been able to get a funded place at a private centre? Most of them say that they take nhs funding but I don’t know how hard it is to actually get this. We’d expect her to need to stay for around 12 weeks but obviously can’t know timescales for sure at the moment.
Failing this, would anyone be prepared to share how much they have paid for private care at a neuro rehabilitation centre? It is impossible to find this info online. I don’t necessarily want to start calling places and getting all the details if it’s just an impossibility for us. My parents have some savings but not huge amounts and I’m concerned that they may need these for adjustments to their home depending on how successful rehab is.
Thank you so much if you’ve made it this far!

I'm sorry this has happened to your mum, it must be very stressful. Ask the hospital what their stroke pathway is, there will be a specific one, likely transfer to a separate rehab hospital if that's not where she currently is. Unfortunately hospital wards are always likely to be noisy so unless she has very specific rehab needs it's highly unlikely the NHS will fund a private centre. Funding for NHS stroke services and therapy is generally very good compared to other areas of rehabilitation. Another thing to consider later down the line is if the hospital provide 'Early supported discharge - ESD' therapy at home.

Thank you so much for replying. I will try and speak to someone at the hospital (tricky as I never seem to be there when doctor is around but I will persevere!).

Dr. may not be the person to speak to but rather a discharge co-ordinator or similar role.
This may be useful:
www.ageuk.org.uk/information-advice/health-wellbeing/health-services/leaving-hospital/

Personally I wound weary of some private rehab settings unless they have dedicated OT , PT and SALT. Neuro psychology is very rare but if you find one amazing!
Try and speak with one of the OTs or physio os you can, they will have an idea of what it being planned and what recovery they are hoping for before discharge. Some rehab settings have day units so someone can go home and them go in for rehab during the week, amd some areas have ESD ( as above) or good community services. The ward will know some of this but also getting in touch with local stroke groups might give you some more local information
I'm sorry your mum has had a hemorrhage. Recovery is hard in the eraly days but also don't underestimate the usefulness of her being in hospital where there are therapies on the ward.