Hi group, I've posted here before so some of you may remember my situation.
My DF (71) has Parkinson's and Lewy Body Dementia. Four years before his diagnosis, he and his wife moved a couple of hours north from where I live, as well as his other family (sister, nieces) and friends.
He is now at the stage where he shouldn't be left alone - prone to wandering, confusion and falls. My SM has gone abroad twice this year for respite. For this, DF stayed at a care facility nearer to me and his sister. That worked fine, and he shared with us that he is not happy in his marriage, and would like SM to be kinder with him otherwise he'd like to divorce her. I'm not sure how realistic that is - financially or any other way.
SM and I have talked several times about options for when his condition worsens, ranging from them moving to a more suitable home together (though she wants to stay in the same village), to him moving to a care facilty either near where they live, or near where I live. This has still not been decided.
SM does not want carers in the home and is using her daughter (who has LD) to care for DF when she goes out for more than an hour or so.
I'd like to go to visit DF and SM - with the emotional and practical support of DF's sister (a former nurse) and DF's close friend - to chat about the future options for DF.
I find doing this on my own hard. My brother has died and I would really benefit from a bit of support with this situation. SM has said she isn't comfortable with this, and would prefer me to go on my own. She will not tell me why.
Can anyone please advise?