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Elderly parents

How long in cognitive / cardiac limbo

10 replies

VoltaireMittyDream · 03/12/2025 01:27

I’ll try not to be too longwinded here. My DM is late 70s, widowed. We moved countries to be near her when her partner died, and are living next door.

We’d not been here long when she had a minor heart attack. Shortly after that I discovered she’d been drinking secretly - neat vodka, from early in the morning. This was a total shock to me.

I had some hard conversations with her about this, mainly around driving. She refused to seek any help with the drinking. She will stop for a few weeks or even months at a time, and then fall off the wagon again for several weeks, then stop.

She’s recently had another acute episode of heart failure, probably triggered by starting drinking again after a long sober period.

She increasingly relies on me for things like making phone calls for her, or making small decisions she gets very stuck on. She sometimes forgets things we’ve just spoken about. And she will have these little lapses where she doesn’t understand something very basic about the world (like the weather changing with the seasons), or recognise a common household item - she was very puzzled by her lip balm the other day and asked me what it was for and how to use it.

She will also sometimes say incredibly inappropriate things - e.g. make lighthearted jokes about my child who died, or tell my hairdresser I find her annoying (😳) which is absolutely not like her as a lifelong people pleaser.

It seems clear to me that there is something going on here - whether it’s small strokes or the beginnings of alcoholic / vascular dementia or insufficient oxygen to the brain or what - but nobody else sees this except my DH. And about 80% of the time she seems to be functioning fine, just with these bizarre lapses, and an increase in fretfulness and indecision.

When I take her to appts she comes across as completely sharp and together, and makes out to the medics that I’m some kind of hysterical hypochondriac by proxy who’s determined to treat her like a frail old lady.

She will also flat out lie - telling doctors she feels fine, denying she has any symptoms at all, saying she doesn’t drink alcohol and exercises regularly with the dog (when in fact she neglects her dog and I’ve taken over much of her care).

When she was being admitted for her heart attack, she insisted to the A&E doctor that she felt fine - and she was very convincing, not breathless or in any distress at all, though her BP and heart rate were through the roof and her oxygen sats were 80.

After her usual performance at the cardiologist today, he pronounced her in great shape and only in very early / mild heart failure with a couple of leaky valves and some stiffness of the heart muscle. With some tweaks to her meds he reckons she should enjoy a good quality of life for years yet.

But I don’t know how long I can deal with this, living next door to her, while she is increasingly needy and expects to lean her life against mine. I have a young child with SEN and things are pretty complex as it is.

I don’t know what I want from this thread apart from maybe to hear others’ experiences of a parent who is more unwell than they let on, in many ways, but is likely to be in stable physical health for up to a decade, while becoming increasingly confused and difficult.

Does this sound like dementia, or the sort of cognitive decline you might expect from heart failure, or alcoholic brain damage…? I think if I had some framework for understanding it I’d feel a bit less lost.

OP posts:
Greybeardy · 03/12/2025 18:25

could be any of the above...could also just be that she's a bit manipulative? It's often pretty obvious when someone's drinking to excess/confabulating so even if the HCPs don't say it out loud they may have spotted it. If she's drinking and driving then that should be reported to the DVLA or equivalent (not clear which country you're in). It may be worth leaving a message with the GP explaining your concerns. They won't be able to discuss it with you unless your mum's given consent for that, but it may help provide a fuller picture the next time they see her. If she is an alcoholic she may benefit from being prescribed some vitamins to help protect her brain from the type of damage caused by alcohol. If she doesn't want to help herself though there's nothing much you can do except work out what you are prepared to help with, establish boundaries and stick to them.

Brightbluesomething · 03/12/2025 18:34

I’d be speaking to the GP about alcohol related dementia such as Wernicke encephalopathy or Korsakoffs before writing her off as manipulative. Is she taking Thiamine? If not this is your first step to prevent further cognitive decline. She’s unlikely to stop drinking especially if she has a neurological condition, which it sounds like she may have.

VoltaireMittyDream · 07/12/2025 16:26

Greybeardy · 03/12/2025 18:25

could be any of the above...could also just be that she's a bit manipulative? It's often pretty obvious when someone's drinking to excess/confabulating so even if the HCPs don't say it out loud they may have spotted it. If she's drinking and driving then that should be reported to the DVLA or equivalent (not clear which country you're in). It may be worth leaving a message with the GP explaining your concerns. They won't be able to discuss it with you unless your mum's given consent for that, but it may help provide a fuller picture the next time they see her. If she is an alcoholic she may benefit from being prescribed some vitamins to help protect her brain from the type of damage caused by alcohol. If she doesn't want to help herself though there's nothing much you can do except work out what you are prepared to help with, establish boundaries and stick to them.

I've spoken to her GP who has known my mother for 30 years and gave me the impression she didn't believe me about the drinking. She said my options were to do a facilitated intervention and put her in rehab, or just basically suck it up.

She said she couldn't do any cognitive / memory investigations unless my mother asked for them, which seems nuts to me - how many people with dementia ask their doctors for a cognitive assessment? But we're in the US and things work very differently here.

I don't think my mother is any more manipulative than your average common or garden people-pleaser. She's structured her entire identity around not making a fuss, and will bend over backwards to make sure nobody thinks badly of her. Being an alcoholic with cognitive decline is very off brand!

I just don't know how much longer I can keep going, with her fluctuating and unpredictable capacity and a high needs DC.

OP posts:
deplorabelle · 11/12/2025 09:46

VoltaireMittyDream · 07/12/2025 16:26

I've spoken to her GP who has known my mother for 30 years and gave me the impression she didn't believe me about the drinking. She said my options were to do a facilitated intervention and put her in rehab, or just basically suck it up.

She said she couldn't do any cognitive / memory investigations unless my mother asked for them, which seems nuts to me - how many people with dementia ask their doctors for a cognitive assessment? But we're in the US and things work very differently here.

I don't think my mother is any more manipulative than your average common or garden people-pleaser. She's structured her entire identity around not making a fuss, and will bend over backwards to make sure nobody thinks badly of her. Being an alcoholic with cognitive decline is very off brand!

I just don't know how much longer I can keep going, with her fluctuating and unpredictable capacity and a high needs DC.

I'm sorry I'm very late to this thread. No advice but sympathy as I have a v similar mother. I liveiles away though which protects me from some of the day to day awfulness.

The part of your post that rang especially true is the "putting on a show for healthcare professionals" bit. My DM always passes memory tests too - in her case I think it's a reflex from years and years of disguising alcoholism (a lot of things about my childhood fell into place when I realized how serious and long-standing a drink problem my DM has). My DF tells me that DM is having memory problems but is just as indignant as DM is if ever a Dr or nurse tries to address it. "They tried to give her a cognitive test! Of course she passed it, she could have done it in three different languages!" So then of course there is no help forthcoming. I would be completely disavowed if I tried to weigh in.

DM also has certain red flag dementia behaviours that she's indulged since at least her 40s (eg tipping medication into one container and taking two pills of anything whenever she thinks of it - she has done a variant of this all my life). This makes it very hard to assess what is going on. I am of course also a complete idiot who hates her so even though I work in healthcare, anything I say has to be disregarded unless the other (golden) sibling also says it.

I don't have a solution but I can say you're not alone.

VoltaireMittyDream · 13/12/2025 13:47

For anyone still reading this - my mother died yesterday morning of a heart attack. I was there with her.

I am so lost and confused and devastated.

I feel like I have been such an irritable shit with her for so long. I just hope she could feel how much I loved her.

i think I am a bit hysterical and delirious right now after a night of no sleep and awful flashback and terrible grief - but I currently feel very strongly that

  • I knew things were really not right even when the doctors were nonchalant, and her lab results weren’t too bad
  • There was no one thing that caused all her symptoms - it was a big cloud of contributing factors. Long-term, slow cognitive decline from 60 years of heavy smoking and not enough oxygen to the brain; likely ADHD or ASD traits (rife in my family) meaning lower impulse control and poor interoception so she genuinely didn’t seem to register pain like other people do; the drinking, fed by the cognitive decline and impulse control; and grief for the loss of her soulmate 4 years ago.

She had lost the will to live partly through the apathy and anhedonia that comes with heart failure, but also because she didn’t see a purpose without her partner.

She lived how she chose to live, and she was loved.

And if I could go back in time and advise myself again, I would tell myself to stop trying to fix anything - stop trying to help her with things she doesn’t want help with. Just love her as well as I possibly can while focusing on my own life and allowing her autonomy.

i guess hindsight is 20/20 and it could have all gone differently.

But I see her so clearly now the way she was when she was young, and I can see how far she had changed from that. And I just wish I had been kinder and more patient.

OP posts:
NewUserName2244 · 13/12/2025 14:06

I’m so sorry to hear that.

She will have known how much you love her. Thad love is clear in your post, and in your actions.

Take care of yourself over the next few weeks and months xx

tiredwitless · 13/12/2025 14:09

So sorry for your loss OP, I’ve read your posts and I am sure she felt how much you loved her.

27pilates · 13/12/2025 14:47

So sorry OP. Of course she knew how much you cared for her, not many daughters would have spent 4 years living next door and helping her so very much, so please don’t spend a second berating yourself. You tried very very hard, that’s all you can do. Flowers

user86397409754 · 13/12/2025 16:50

I’m so sorry OP.
If I was your mother I’d be eternally grateful that you’d moved to be near me, I’m sure you made her last years much happier just by being there.
And personally, I’d rather have had a heart attack that the slow awful decline into dementia. Look after yourself X

Greybeardy · 16/12/2025 19:27

sorry for your loss. Hope you are being well looked after and supported. Not many people would move countries to live next to their Mum to support her...sounds like you did a brilliant job for her.

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