Meet the Other Phone. Only the apps you allow.

Meet the Other Phone.
Only the apps you allow.

Buy now

Please or to access all these features

Elderly parents

Scared about being asked to do personal care

36 replies

rookiemere · 11/04/2025 19:33

Please be gentle with me on this.

I am an only DC work full time, DPs who live an hour away have been managing up until now. DF91 actually seems pretty well although frail,but DM 86 is deteriorating rapidly. She has osteoporosis, macular degeneration and chrohns disease. I managed to get her full attendance allowance last year, hoping they might get a cleaner but instead DF bought a wide screened TV Hmm and as a huge concession DM put the washing in the tumble dryer instead of trying to hang it up, and gets the occasional taxi if DF isn’t able to pick her up( yes he’s still driving but that is a whole other thread).

She isn’t coping well and on Thursday fell over on her way into the shower and hurt her hip. It isn’t broken so they discharged her from hospital, but she is in a lot of pain and unable to leave her bed.I am going up tomorrow, she says she needs a commode and couldn’t understand why the GP wouldn’t just give her one, so I will order what she needs from Amazon and try to convince them that she needs a social care assessment. We are in Scotland so if she qualifies for care it will be free, or in the short term they have money to pay for private care.

Except I expect she will resist and I have a horrible feeling when I am up I may be required to support with toileting and bathing. It sounds ridiculous I suppose and selfish, but we aren’t touchy feely people and the thought of having to do that just makes me feel nauseous. I am a very practical person and I can do all the organisation of getting cleaners and carers in if I get the green light. I am also beginning to suspect I may be ND but that could just be menopause.

I know I may just have to get over myself for this one time, but I wonder am I the only one who feels like this ?

OP posts:
Thingamebobwotsit · 11/04/2025 19:39

I don't think you are alone in feeling this way, especially when it is your parents. I don't think it has anything to do with being ND but rather a boundaries thing.

I think you just have to put your foot down and tell them they need a proper solution and that you are happy to provide the support to them to get help, but that you don't want to do it yourself. In reality they will feel more comfortable too I suspect. There is something easier in the anonymity of paying a stranger.

Good luck

Octavia64 · 11/04/2025 19:39

You can buy wipes that mean she can give herself (or your DF can give her) a bed bath.

depending on how unable to leave her bed she is a common arrangement people make is to either move a bed downstairs so they are on the same level as the bathroom or yes a commode.

personally I crawled to the loo. Fucking hate commodes.

if she’s in a lot of pain GP should be involved and painkillers being prescribed.

OldJohn · 11/04/2025 19:44

I am also in Scotland.
We had a visit from an OT who agreed that my wife needed a comode and provided one.
We also had a visit from a Social Work Assistant who said that she would put my wife on a waiting list for care but it was a long list.
She was admitted to hospital and I refused to have her back home without a care package (my wife agreed).
It seems that unless someone is in hospital getting care organised is very difficult.
rookiemere PM me if you want more information

rookiemere · 11/04/2025 19:46

Octavia64 · 11/04/2025 19:39

You can buy wipes that mean she can give herself (or your DF can give her) a bed bath.

depending on how unable to leave her bed she is a common arrangement people make is to either move a bed downstairs so they are on the same level as the bathroom or yes a commode.

personally I crawled to the loo. Fucking hate commodes.

if she’s in a lot of pain GP should be involved and painkillers being prescribed.

That’s a great idea, I will buy some baby wipes before I go tomorrow. I think I could cope with using those if required.

OP posts:
rookiemere · 11/04/2025 19:49

Thank you those who have responded @OldJohnI will PM you as I have googled what to do, but no idea if that’s what the process is like in reality.

OP posts:
BirlinBrain · 11/04/2025 19:51

Could you get a cassette toilet for her room? I had one in my bedroom when my mobility was severely restricted for several weeks, and it was infinitely better than the commode I was given.

utterexasperation · 11/04/2025 19:53

This stuff is fab to use in these situations . However press for help with this. Good luck. I know how you feel .

Scared about being asked to do personal care
thischarmimgwoman · 11/04/2025 19:54

Get a box of disposable gloves too.

rookiemere · 11/04/2025 19:57

thischarmimgwoman · 11/04/2025 19:54

Get a box of disposable gloves too.

Great idea, I have a box of them already from when I was cleaning the oven.

OP posts:
rookiemere · 11/04/2025 19:58

I wish I could like all of these posts, thank you some hugely helpful suggestions.

OP posts:
Bobbybobbins · 11/04/2025 20:08

I would contact their GP who can look at care needs and they probably need to have an adult social care assessment. It’s entirely usual to feel uncomfortable with it OP I think - we had to do some personal care when my DM was terminally ill and we all found it really difficult.

rookiemere · 11/04/2025 20:30

Thank you for the additional posters. Am feeling more comfortable now, as I can focus on practical things to buy and do !

OP posts:
RentalWoesNotFun · 11/04/2025 22:29

In Scotland the OTs recommend the equipment required. The council I think pays for it.

We got feet things to go under the living room chairs/couch to raise them and make them easier to get up and down from.

We got a commode for using downstairs as loo upstairs only.

A shower chair that goes in the bath that has a swivel action to get into the bath to gave a shower (wirh assistance).

An outside key box wirh a numeric code to open in case of emergency.

Handrail up the stairs and outside the back and front doors.

Yoy can get up to four visits a day free for personal care. Morning to get up and dressed wirh help to wash and toilet, lunchtime and early evening if required, nighttime “tuck” call to get them ready for bed. All free.

If you want other stuff like meals prepared or hoovering etc it’s not ‘personal care” so you pay for that.

tsmainsqueeze · 11/04/2025 22:39

Have a look at 'fresh wipes' on qvc.

I would feel exactly the same as you op , the thought of doing intimate care for someone makes me feel totally nauseous too ,not everyone is cut out to be a carer.

Sparsely · 12/04/2025 00:29

If it continues it may be worth pushing for a CT scan. My Dad has just spent 2 weeks trying walk on a fractured hip because it was only visible with a 3D scan..He is 90 and had surgery yesterday. Apparently they have operated on a lady of 111 successfully.

I asked what would happen without surgery and they said likely become bedbound, then listed a whole load of risks from being bedbound (respitory disease, bedstores, not being able to walk again etc).

I would also push for respite care in a nursing home for her. It doesn't sound like she's getting teh care she needs at home.. She'll be at risk at further falls without a very structured regime to get her mobile again. It also sounds like she'll be guilt-tripped into resuming normal domestic service ASAP at home rather than being allowed to recuperate properly.

rookiemere · 12/04/2025 07:51

@Sparselythe only person guilt tripping DM into household chores is herself. She had DF doing the laundry yesterday when I called hardly a priority a day out of getting checked out in hospital. She has the telephone number for a cleaner, refuses to call it, yet claims she isn’t expecting me ( work full time and live an hour away to do it). I am going to use today to insist they get a cleaner, even someone coming in once a week to let me know if any issues would be a great help.

The hip pain has receded, but her lower back is sore. I agree this is unfortunately probably the start of these accidents. She has phoned the GPs about getting stronger pain killers. I don’t think she is at nursing home stage yet, but that really depends on getting the assessment done and/or getting in private care in the short term.

And horrible as it sounds, I don’t know how I am going to cope with organising it all. I don’t want to lose my job - I am mid 50s and only started there last year and I enjoy it, it’s a fixed term contract but I think I will be kept on if I continue to do a good job.
But I am a few stages ahead so I need to focus on today and now and tasks. Thank you for all the good advice and things to buy.

OP posts:
thedevilinablackdress · 12/04/2025 08:56

I've been in a similar position to you recently OP and was fortunate enough to get OT/Physio/Carer assessment and support for DM when she was discharged. My advice if/when this sort of thing happens again is, when they are talking about dischargeto make sure you emphasise you are not around, DF cannot cope, what the safety issues are. This is hard as you might feel bad, but do it. For now, which local authority are you in? Look on their website to get contact details for an adult/older people assessment. There should be info about the services they offer to support people to stay in their own home. You can speak to them and tell them the risks, issues, safety concerns.

rookiemere · 12/04/2025 09:32

@thedevilinablackdressshe was only in A&E to get her hip assessed not in hospital admitted as such, I should have made that clearer in my OP.
I think I have found the correct telephone number and email address for their local authority to start the assessment process. Suspect DM will resist, but I am going to push it on the basis it means she will get the support equipment she needs without having to pay for it. If additional care support is recommended as I hope it will be, they either have the means to pay for it, or wait until allocated as we are in Scotland.
I suppose the good news is they have money to pay for whatever is needed, if they can be persuaded that it is in fact needed.

I have been to Boots and bought baby wipes, intimate wipes and a portable urine thing - thought it might do until we get an agreed commode/toilet cassette from Amazon.

OP posts:
thedevilinablackdress · 12/04/2025 09:38

One step at at time @rookiemere It's so horribly stressful trying to fix everything, anticipate everything and manage people's behaviour and emotions. You can't do it all, especially that last bit, so focus on the basics.

starpatch · 12/04/2025 09:44

I am in England but here there are urgent care teams who combine the OT assessment with short term carers. Have a Google of your local community health trust for urgent care, and if you can't find it then try NHS 111. If she is genuinely bed bound then the hospital should not have discharged her without support.

ooOO00 · 12/04/2025 11:47

I saw this thread last night randomly on another device not logged in because I have suffered a bereavement as a parental carer so have hidden this and similar topics as I don't want to get upset. Maybe it was intended by the fates for me to see it.

I did think last night maybe I should reply as could potentially help two people here so here I am. I didn't want to be here or writing this as thinking about caring = thinking about my grief and loss so I hope it is useful to you @rookiemere

  1. The main thing I would say about personal care is that the thought of it is much worse than it actually is. Before I got involved I felt the way you describe and thought I never would or could.

In fact, we all sweat, need to wash, brush our teeth, open our bowels and urinate. It's something we do every day ourselves. It's human and run of the mill. With caring for an elderly parent, there are many similarities to looking after a baby. Wiping a babies bottom and putting on a nappy is basically the same activity but just on a smaller scale. It's not up there with activity that is great fun obviously but most of the fear of it is in your head. It really isn't that bad - and don't forget if you are helping a parent its an expression of true love.

2 The second most important thing is that it is about having the right equipment.
This is part of the reason I am posting because I only found out about 'the right equipment' because of advice acquired over time from nurses and professionals.

You will need gloves - good quality ones. I would recommend nitrile (latex free) and powder free gloves. Shop around because they can vary in price and quality. I used https://www.justgloves.co.uk but in an emergency Amazon also sell them.

Cleansing foam - Molicare is great
https://www.sanareva.co.uk/hartmann-molicare-cleansing-foam-no-rinse-400ml.html
but there are lots of other options like cleansing creams. You will need something like this in addition to a wipe to properly clean after a bowel movement.

Wipes - both dry wipes and wet wipes
https://www.ageukincontinence.co.uk/incontinence-shop/personal-care/incontinence-wipes.html

For wet wipes, the Tena proskin are by far the best but can be difficult to find sometimes. They are larger, thicker and impregnanted with a gentle cleanser and moisturiser
https://www.incontinenceshop.com/tena-wet-wipe-19x31-17cm-48-wipes

Disposable pads or pants can help in early stage light incontinence and late stage will be essential
https://www.ageukincontinence.co.uk/incontinence-shop/disposable-incontinence-products.html This website is great and has lots of good products

Barrier cream - this is 100% essential if some is wearing pads as it stops skin break down and sores developing.

'Nappy' bin bags to dispose of waste wipes, used pads etc.

Once someone is bed bound or having bed washes, a large supply of flannels in two colours (one for face and one for body) is great as 'water' clean is much nicer than just foam and wipes. Amazon basics are great as you can get stacks so you just chuck them in the laundry and dont need to worry about running out.

You can also wet wash someone's hair with flannels as well as shampoo caps. Hair washing with water is a nice thing to do for someone. There are inflatable back washes but I never tried them.

A bed pad to protect the sheets is also good -but look for a breathable one as the plastic backed ones make the person sweaty.

I think that's most of the basics but as things progress, it's worth having a look around the incontinence shop for other things and ideas.

3.Don't forget if someone becomes dependent or incontinent some of these things may be availalbe on prescription.

Speak to your GP. Examples are barrier creams and incontinence pants or pads. You may need a referral to the bladder service but the cost savings can be huge. I was very late on before I found this out and it was only by accident after a random conversation in hospital.

4.Commodes can be rolled over a toilet. Get one with wheels!

If you have a downstairs toilet, don't forget that you can slide the commode bowl out and roll the commode over the toilet and let someone go actually into the toilet not the bowl. This is honestly life changing because you'd be suprised what a massive difference water in the loo covering the faeces / poo makes to the smell. No one would realise this until you've dealt with it I suppose. It also means that there is less waste to dispose of which is a huge deal.

5.Generally help is available and the best advice you will get is from good trained nurses and health care assistants (Carers) - ones working on geriatric wards in hospital will be full of wisdom and have seen it all. If your parent unfortunately has to go into hospital, pick the brains of the careres and nurses about advice about equipment, methods etc.

Caring agencies - be very careful as there are a lot of very bad untrained don't-care health care assistants working for agencies. Self-employed independent ones are usually the best but are tricky to find - word of mouth is the best route I found.

I hope that you found that useful. I learned it all as I went so as much as I didn't want to do this, I thought it might help both you and your mother.

Seriously though, don't worry. Most of what we worry about never happens or is never as bad as you think. Personal care is not really that bad like I said. It's the thought of it that's the worst bit as long as you are properly equipt.

Latex Gloves | Disposable Gloves | Nitrile Gloves | JustGloves

JustGloves are the UK's number one supplier of disposable gloves, safety gloves and accessories - at the best prices. Extensive range of quality gloves of all types in a variety of materials, including nitrile, latex and vinyl.

https://www.justgloves.co.uk

rookiemere · 12/04/2025 13:18

So I have been and was only needed to put a pain patch on Mums back. She already had wipes but not intimate ones. I had bought her a portable urinal thing but she said incontinent pants would be better so I bought some of those. Dad seemed keen to get her in hospital as he wasn’t enjoying having to get her up to the loo, but hopefully the pants will work until better solutions are available from the OT.

By great coincidence the doctor arrived when I was there and said that occupational therapist would come on Monday and I can start the social care process separately.

Yes to getting a cleaner in so that’s a start.

Thank you everyone for your support.

OP posts:
PotterHead1985 · 12/04/2025 13:53

@ooOO00 nappy bags are definitely a life saver for me for disposing of incowear.

I am intrigued to know more about shampoo caps if anyone can tell me.

We are now beginning the process of applying for nursing home care for my mother which is a blessing and a curse.

OP I'm glad to hear things weren't as hard as you feared and that assessments are being put in place.

Swipe left for the next trending thread