Hello.
Long post warning - trying to include all relevant information,
Having a tough time with DM and would really appreciate any experience or wisdom!
DM diagnosed with vascular dementia about a year ago. Honestly, we saw no sign of it and she was fully independent/full capacity - running her home, socialising, helping with reading in a school, etc. I saw her frequently to check in and make sure she was ok, but she needed no real support and no additional care.
She has an old back injury that flares up from time to time. This happened late in December and - long story short, led to a hospital admission via A and E for an x Ray, pain meds etc.
Unfortunately , the care was poor (I hate saying this but in this case it was true). It took them 5 days to do the corrrect x Ray then another few days to report back that there was nothing of concern and nothing they could do/no treatment indicated.
The ward she was on was chaos (no one’s fault) and during her admission she became delirious - not orientated in time and place, very confused, paranoid. This is not normal for her at all. All the staff saw “dementia” on her notes and just assumed it was that, no one listened that this was new for her, and sudden onset during her hospital stay.
Her infection markers were checked - there was no infection. No new meds given.
She was discharged to a care home, temporarily, on the 22nd as the confusion was still acute. I’ve heard friends describe similar experiences with their parents - delirious in hospital then eventually settle off the ward. I was hoping this may happen with mum. Initially in the care home she became much more orientated - was starting to make sense of what had been happening, what had been happening with her mind etc, but has become confused and paranoid again over the past few days.
I don’t know what to do? Ask for her infection markers to be checked again? Accept she may not adjust fully till she’s back home - or possibly, ever?
Social care are assessing hopefully next week with a view to going home with care in place/adaptations - which is scary but I’m feeling we need to try her at home to see if the confusion reduces any more.
I guess my question is - do I try and get a doctor to see her (she is temporarily registered with one near the care home) to understand the delirium/confusion is new, and possibly check for infection again, or just accept that she may not settle till she’s home/ever.
She did see a doctor yesterday they are trying new pain meds as her back is still painful, but no one communicated that the delirium is new. Because no one knows her they think this is normal, although I’ve repeated myself about this it feels like hundreds of times in the past few weeks!
Sorry for the long post. Thanks for reading this far!