Meet the Other Phone. A phone that grows with your child.

Meet the Other Phone.
A phone that grows with your child.

Buy now

Please or to access all these features

Elderly parents

Any experience of orthostatic hypotension and/or general autonomic problems?

4 replies

tobyj · 27/01/2025 22:52

Bit of a specific one, perhaps. For a good couple of years now, my DM (78) has been suffering increasingly debilitating health problems, alongside worsening cognition. I'm pretty certain that she has dementia (undiagnosed), as her memory and cognition problems are now very pronounced. Over nearly five years she's had problems with digestion (a combination of constipation, bloating and diarrhoea) which has never been explained. Then, for the last one to two years she's had dizziness when she stands up - she describes it as everything 'going up and down'. This seems to be getting worse and worse.

Numerous tests over the years have found nothing to explain any of this. Very recently, though, the GP asked her to keep a record of her BP regularly for a week, and it showed a very pronounced drop in BP when she's standing - normally at least 20-30 systolic change, and on one occasion a drop of 50. She's on BP medication because she's generally hypertensive, and her BP rocketed when she didn't take her tablets.

I've done a lot of Dr Google, and it seems very likely that she has orthostatic hypotension, which could well explain the dizziness when she stands up (variable BP also seems linked to all sorts of other risks of stroke, heart attack and dementia, which is not good). But I've also read that it can be one symptom of more general problems with the autonomic system, which can cause digestive problems among other things.

As this all seems much more common among the elderly, I wonder if anyone else on here has experience of any of this - symptoms, management, outcomes? Poor DM is in such a general state of ill health now, I'm looking for anything that could be helpful.

OP posts:
countrygirl99 · 28/01/2025 05:45

Has your mum had an assessment by an OT? They can recommend ways of getting up/ exercises to help with this.

katcatkat · 28/01/2025 08:53

My dad had many of these symptoms and it was parkinsons related it was only picked up as he developed a minor shake in one hand.
He had dementia, bowel issues similar to those you describe(caused by parkinsons paralysis of the bowel), plus the dizziness and blood pressure issues.
Might be worth a referral to the hospital but there is little that can be done to be honest.

tobyj · 28/01/2025 22:46

Thank you both. @katcatkat I hadn't even thought of Parkinsons. I don't know why really - I guess because I haven't noticed a tremor, though I guess perhaps symptoms are variable. I had no idea it could affect digestion. I will look into this further.

@countrygirl99 yes, she was referred to an OT, but she totally refused to engage. I think she was expecting the appointment to be with a doctor, so her view was that it was a pointless waste of time, because he didn't do anything to 'cure' her - just gave her lots of rubbish advice that she didn't need. I've tried to gently explain that this might not be curable (or it might 'take a long time' to make her better), and that in the meantime we need to take advice on how to keep her safe and stop her falling - but she absolutely will not take any of it on board. She just gets cross if it's mentioned.

OP posts:
countrygirl99 · 29/01/2025 05:26

I've got one that refuses to engage with falls team advice. It's so frustrating.

New posts on this thread. Refresh page
Swipe left for the next trending thread