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Elderly parents

DM/DGM drama

17 replies

Onlyadaughter · 15/10/2024 21:05

My widowed DM is staying with my extremely elderly DGM following her release from hospital some weeks ago. DGM is bedbound (seems unable to walk but has been getting OT) and has carers coming in several times a day.

DGM seems to be spiralling on and off. Wondering if she has some type of dementia or if it's just the UTIs she keeps getting that are affecting her. I don't really know much about these things but she exhibited something similar to "sundowning" behaviour initially in the hospital in the evenings which went away eventually (it was found to be caused by a UTI) and will be fine for a day or so now then starts acting up.

DGM keeps saying she needs to pee and trying to pull at her catheter. She has also stripped completely naked a couple of times and screamed at my mother. DM has in turn shouted at her. She will be nice to the carers and nasty to my mum but has also started saying unkind things to the carers. DM keeps saying my DGM will be the death of her and other dramatic stuff. DGM is also saying that she is going to die and it will be my mum's fault. DM phoned me up yesterday because she just needed to talk to someone but I'm getting sick of it. She dumps all her stuff on me and then I'm left stewing over it, I try not to but I love them both however I think my mother is going about this the wrong way and needs to take a step back. I think she needs to speak to someone who is not emotionally involved. And maybe have some time back in her own home (she's slept in her own bed once since DGM was released from hospital).

I've told DM over and over NOT to get too involved in it or let my DGM's words and actions take over. That she needs to keep boundaries and have a life of her own. But I don't think she's listening.

Any words of advice? Thanks

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kiwiane · 15/10/2024 21:14

It sounds as if it’s far too much for your DM to cope with and she shouldn’t have offered to care for your DGM at home. She can seek a social services assessment / extra care or a nursing home but it takes time. Involve the GP / District Nurses etc.
If your DGM does go back into hospital my advice would be to insist she goes to a nursing home rather than back to her own home.
I can see why you’re fed up but they’re both really taking the brunt of things. If your DM can be open with your DGM and say this is too much then maybe they can look for a care home that suits her.

Onlyadaughter · 16/10/2024 21:26

DM is prone to anxiety and flying off the handle but I definitely think it's too much and she seems unable to withdraw has to have the last word etc. It's exhausting. I might try pointing it out in a roundabout way, the struggles etc. DGM had insisted before that she did not want to go in a home but perhaps it's time to reassess.

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PermanentTemporary · 17/10/2024 05:23

It sounds highly likely that your DGM is delirious and cognitively frail - you're right it could well be dementia as well but at this stage post hospital and UTIs it might not be diagnosed.

Is there anyone your dm would actually listen to? It sounds like she needs to be ordered to go home and rest for her own sake. Has your DM's GP seen her?

Flopsythebunny · 17/10/2024 05:57

Do you know what empathy is?

Oneearringlost · 17/10/2024 06:37

I think your mum needs a break.
Can you organise a social work assessment via your Grandmother's GP.
It all sounds too much.

MoserRothOrangeandAlmond · 17/10/2024 10:04

Your poor mother.
It sounds as though she thought she could cope caring for your grandma and didn't realise how hard it would be.
Having carers in don't really help with all the emotional side of things and what happens when the carers aren't there.

If your grandma is as you described re sun downing, pulling her catheter out, stripping naked, verbally abusing your mother then this 'could be the death' of your mother.

Carer stress is very real, quite often carers look worse than the person they are caring for...stressed, not eating or sleeping properly etc sometime carers die before the relative they are caring for.

What you need is some empathy and look into how you can support your grandma for example....24 hr care, starting with respite first.
Your grandma doesn't sound safe to be left at home if your mother wasn't there

PussInBin20 · 17/10/2024 18:30

I think your DM should think about what your DGM needs rather than what she wants ie a care home where she can be looked after round the clock and your DM gets her life back.

PolaroidPrincess · 18/10/2024 07:36

I would try and encourage your DM to see their GO and be honest with them about how's she's feeling. Maybe you could offer to sit with DGN whilst she goes?

It sounds as though the situation isn't working at all. Has your DGM seen her GP recently to rule out infection and for advice on Sundowning?

Has your DGM got a SW?

Is your DM willing to consider a Care Home for DGM even if it's just for a bit of respite?

Redburnett · 18/10/2024 07:50

From your description of the circumstances it sounds as though DGM should be in a nursing home. It would better meet her care needs and improve your DM's life immeasurably. Your DM should start researching this option, even if she does not want to act on it yet - if DGM is admitted to hospital again DM can push for discharge to nursing home.

Borntobeamum · 18/10/2024 11:52

This has really hit me. I was in your mums position after my dad died. My mum hated me because I still had a husband and I refused to resurect hers 😓

She once had a bowel movement in the supermarket and I had to deal with people filming her in Distress in their phones.

It was true an absolutely horrific time for me, and my Mum who had so very little control over her life and had lost her soul mate.

What your mum is dealing with is far more than you and you ought to step in and by far more empathetic and supportive.

olderbutwiser · 18/10/2024 12:04

DGM - it could be hospital delirium (which may improve), UTIs (why is she catheterised? is she on preventative antibiotics?) or dementia; very likely all three.

Does your DGM need 24/7 care? If so she needs another care assessment that rules out your DM as live-in carer. It sounds as if she would qualify for residential care.

The plea never to be put in a home is a frequent one; either people think care homes are like the workhouse, or they think it means they are not loved. The reality nowadays is that a good care home can provide wonderful care and many people do far better in them than they will at home with carers; they also allow the family the space to be daughters/loved ones not carers or nurses.

In the meantime, your DM is having a terrible time. She's lost her lovely mum and had her replaced by this needy, difficult, hard-to-love, vulnerable woman. Soak up some of the load for her, it may be your turn in the future.

PolaroidPrincess · 18/10/2024 15:54

How's your DM today @Onlyadaughter?

Onlyadaughter · 18/10/2024 22:50

Hi sorry meant to reply yesterday but got distracted.

She's ok mostly today, she's up and down with it in general. I keep telling her to go outside, maybe stay back at her own house for a night (she's done this once already and DGM was fine). Sometimes she watches tv or does a bit of gardening in DGM's garden, I tell her she needs to have boundaries and try to enjoy life.

I do try to help, my sibling and I both do but we are only 2 people. No other family, my DF died last year. Sibling works away 2 weeks and I work full time so have to work helping my mother with appointments and shopping around that. DM doesn't drive, she's managed to get a taxi back to her house a couple of times but wants me to take her to appointments I think she's worried about getting a taxi back from the dr etc.

I don't like the suggestion that I'm not empathetic. It's just hard, and DM never asks how I am and frequently monologues about what DGM has said/done as soon as I walk in the door, which is stressful as well. I've suggested she speak to a counsellor but she won't listen. Just wants to talk to me/us as we're family. Sibling feels the same and will withdraw if she goes on too much. She once phoned me up wailing down the phone, I thought something was actually wrong but no, it was because DGM had got confused and thought it was the morning when it was evening (this was pre-hospital when DGM was mobile). A quick talk with me and a bit of a joke and she was totally fine, just needed someone to talk to but then I got a stress headache afterwards! It's the not soaking up emotions that's the struggle, hence why it's better to talk to a professional rather than family I guess.

DM has seen her GP but for various physical issues rather than discussing her mental state and the strain of helping look after DGM. I'm sure the GP is aware and she's probably mentioned it but not how it's affecting her. I took DM away on holiday before this all kicked off with DGM ending up in hospital and sometimes we go for lunch or to the garden centre. She has a cousin who sometimes calls round too, they went for lunch last week. A couple of friends as well but seems reluctant to see them at times - told me she "prefers the company of young people"?! Alright then. I try to be light hearted and get her to see things a different way but it's hard at times.

As to DGM we think she did have delirium before when she was in hospital, she totally changed for a while. I think she's lost her confidence and quite depressed at being stuck in bed (she was very independent still living at home, cooking and cleaning prior to going to hospital, everyone says she's amazing etc but I don't know if she'll be able to walk again despite doing well with the therapists and her exercises. I mean she's basically just lying there, no TV she doesn't want one and doesn't seem to read the magazines my mum leaves for her, then she doesn't want to drink although we say she needs to. The carers seem to be quite good with her, make sure she's eating etc but once they're gone she starts trying to get out the bed and stuff and then starts on my mother. She already told her she doesn't want to be left alone there. She seems to have a good day when she's quiet and chatty and doesn't get all riled up then next day it starts again. What's a SW, social worker? She doesn't have one of those no, should she? I'm not sure how that works? I remember a boy at school having a social worker as there were problems at home, didn't realise they work with elderly people too? I guess DGM has a catheter because she can't walk to the toilet? She's had it since she was in hospital but seems confused how it works and says she needs to pee. She was on antibiotics for infection not sure if she still is.

I did mention to DM about the respite care thing once after seeing it mentioned here, she just ignored me. I think she does need to think about the option though, skirting around the issue doesn't help. The situation isn't improving and we need some normality.

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PolaroidPrincess · 18/10/2024 23:11

I think you and your DSis need to go around and have a chat with your DM about how she sees this panning out. DGM could literally be like this for years.

Yes a SW is a Social Worker. Are the Carers a long term thing or have they been given for a few weeks and are assessing?

Onlyadaughter · 19/10/2024 22:10

Yes, I tried telling her tonight we need to have a think about what's best for DGM but she's not really listening just texting me what she's doing (clothes off again) and not taking anything on board at all. I'll speak to my sibling once they're home. The carers are there long term yes.

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PermanentTemporary · 19/10/2024 22:40

Catheters often make people feel like they need a pee, they can irritate the bladder and of course they make infections more likely.

Your DGM may have had social work involvement if she has a care package, yes they do work with elders.

Onlyadaughter · 20/10/2024 22:18

I'll ask mum about the social worker. Yes I think there must be irritation there she seems quite fed up with it.

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