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Elderly parents

My mums declining health - please help me I need some support

121 replies

oustedbymymate · 29/09/2024 13:21

Hello

New to all this and so just need some support and help. Sorry for the outpouring.

I don't want to be too outing but I'll try and explain as best I can.

Mum is under 65 and over 60. Has always been a bit on the 'depressive' side. However recently it's become unmanageable along with a lot of other issues and I need help as to what to do.

She 'cares' for one of her parents and that is obviously a strain as it's been going on a number of years however over the last year she does less and less care and just says she doesn't want to go and wishes that her parent would just die as 'it would be easier' we pay for daily additionally care 3 times a day to call at grandparent flat which is in assisted living. DM refuses to acknowledge that she can step back and we can put more care into place but is insistent on 'controlling' everything but then doesn't want to do anything about it.

DM has depression. We have tried to get her to access services such as IAPT for counselling and she won't. She says it's a waste of time. We have asked her to see GP who prescribed 25mg of sertaline. DM starts and stops medication regularly as 'it's not doing anything' but she doesn't give them change to actually work. Nor has she been back to gp to say it's not working.

Then more recently more things have started to happen. She has muscle weakness. Can't open jars, lift things (she dropped my 1 year old 6 months ago - luckily I was right next to her and caught him but it shook me up and she seemed non plussed about it). She has poor mobility.

Her writing has deteriorated and is really shakey now.

She cannot hear. We have asked her repeatedly to go and get it sorted and even go private as it's just so isolating not being able to hear. She says she is sorted it. It's been going on for over 8 months. Doesn't wear the hearing aids she should.

Cannot follow a conversation. Associated with hearing I'm 90% sure but then it's also seem a lack of understanding or concentration.

Struggles to remember basic words

Forgets the names of the children in our family.

Had a strange walking gait with a foot drop

Doesn't take pride in appearance anymore. Isn't smelly or dirty but rarely wears make up. Doesn't get hair done and it's all limp and lifeless.

Recently has suffered with incontinence but not just a minor leak. A full flood. And then it happened in public and she didn't seem overly upset about it. Just a bit 'oh dear'. I was horrified and my mum of times before would have been mortified. Hasn't taught medical advice for this despite going on for over five weeks.

Doesn't earn well particularly. Is a little underweight.

Lies about what she's been doing.

She is literally a husk of the woman I knew.

She seems to have no joy. No purpose in life.

She doesn't exercise. At all. Doesn't really leave the house besides the obligatory visit to her parent.

She used to bake, read, knit

I have tried so much to help her. Things I have offered and she's declined;
Go to doctors with her
Do online food shop to be delivered at her house
Meal plan
Booking things like swimming for her
Finding a knit and natter club
Finding a local social club for her.
Finding help to support grandparent.

I don't know what to do now and where to turn. I really need help. Who do I contact to help me? How do I get her infront of a GP
With me so that I can be open and honest. About what's going on.

I feel like there must be something else at play. Alzheimer's? Dementia?

I have a young family of my own, work full time and a supportive DH but I just don't know what to do or how to help?!

My dad is younger than mum and still working full time. Mum retired over 5 years ago and took retirement to 'spend time with grandkids' which she doesn't do. Dad is great in lots of way but shit with this and is just burying his head in the sand. And says oh yes I know but doing nothing proactive.

I'm sorry about the essay but I need to write it all down somewhere and try and get some help from somewhere?! Thank you if you've managed to read through all that.

OP posts:
oustedbymymate · 02/03/2025 21:52

Clarking not claking

OP posts:
SockFluffInTheBath · 02/03/2025 21:56

Bloody hell, rollercoaster indeed. Hopefully a plan will come together now so you can both get some rest.

Sunholidays · 02/03/2025 22:13

Wishing you and your mum all the best for a speedy and full recovery OP 💐💐

DisplayPurposesOnly · 02/03/2025 22:16

Best wishes to you and your mum. You're doing her proud in very hard circumstances 🌻

healthybychristmas · 02/03/2025 22:47

Oh what a time you've heard of this. I'm about your mum's age and when I started to read her symptoms I guessed something was seriously wrong. What on earth was the doctor thinking about when he said she was just depressed?

Seeing her in a psychotic state must've been very frightening for you. I really feel for you, wanting to care for her but feeling everything is against you. I hope your mum makes a full recovery and that they keep her in hospital until she's really fit to be home.

💐

friendlycat · 02/03/2025 23:00

This all sounds absolutely awful. You have done so very well to get to where you are. Well done you. Keep going. One day at a time. I really hope everything improves gradually for you. And wishing your Mum good wishes for a full recovery.

marena1 · 03/03/2025 07:07

Been in a very similar but not exactly the same situation. Brain tumours - terrible outcome ( sorry but you would know that) Psychosis is horrendous to deal with , especially at home with no outside care.
You need to get your Grandma's POA changed asap ( sorry just being pragmatic as your mum is no longer a fit and proper person to do the job)).
Best of luck to you and your family, you are doing amazing.
If your mum has some money get some care in when she comes back to your place. It's expensive but worth it. Even just a couple of hours in the morning sets everything up for the day. Just a suggestion. Don't get stuck like I did with 3 children and no way to get them to school except leaving my family member alone. I feel your pain and am truly thinking of you. x

oustedbymymate · 15/03/2025 20:39

Further tentative update. They have discharged mum home. We have a very firm plan in place and feel
Supporter thus far. She's not been home long. Is on a long wait list for neuropsychology rehab. We have been looking to go private to try and bridge the gap but no ideas of costs at this point.

Just praying that we don't have a down turn again.

OP posts:
TesterPotQueen · 17/03/2025 22:54

@oustedbymymate I just wanted to say that I am a 63 year old woman,so a similar age to your mum, and I think you have been an outstanding daughter. You have not given up, you have looked out for her, and you have literally saved her life. Once your mum is back to something like herself, which I sincerely hope will be soonish, she will be very, very proud of you.

DaughterOfSqualor · 18/03/2025 10:11

I just read all your posts, Ousted, and wanted to say that I think you are a warrior. You have been absolutely amazing. So has your mum, come to that. She's young yet and tied to this caring role for her parent, and now you are.

It's dreadful that you've had to make so much noise and fuss just to get your mum's very serious health problem dealt with properly. I agree 100% that women of this sort of age are very easily shelved as 'depressed' or 'hormonal'. I hope that GP has a rocket put up his arse by his manager!

Going forward, I just hope that your mum can relinquish the care of her parent and just do the social stuff, going to see her mother for brief visits. It's just too much to do herself, especially in the aftermath of this surgery. And I really really hope that you are able to source some help with your mum. All the very best.

oustedbymymate · 11/10/2025 19:32

Thought I would come back and update really as I like to see how things turn out. My mum has made a very good recovery and is practically back to her old self. I can’t believe 8 months ago how drastically different things were. I’m so bloody proud of her. What a time eh?!

OP posts:
SoloSofa24 · 11/10/2025 20:19

Wow, that's amazing! You did so well in persisting in advocating for her with doctors who are far too ready to write off women's symptoms as psychological. Did you complain to the original GP?

DisplayPurposesOnly · 11/10/2025 20:21

Oh, brilliant news! You really really did a life saving job of advocating for her.

oustedbymymate · 11/10/2025 20:28

@SoloSofa24i want to complain but truthfully until about a month ago i found it all so raw and ‘triggering’. my mum is still registered at the same practise however since the whole episode in Feb mum has gone from never going to dr to having possibly health anxiety but needless to say they are taking her very seriously. She is advocating well for herself and getting the right support (the latest issues being hip pain) with a potential it will need replacing as not right for years really.

I also need to look at PALs for the hospital we went through an and e as the care for the first five days there was disgusting. I had to kick and scream and fight to get her under someone who knew what to do (and actually was excellent!). I have been back to thank that Dr and his team but that initial admission on the relapse was shocking. I’m not sure if there is a time limit on it.

OP posts:
Claricecannotsleep · 11/10/2025 20:29

Wow. Congratulations. You did so well under very extreme conditions. Thanks for the update. So great to hear of a positive outcome. So pleased your mum is doing well.

MBL · 11/10/2025 20:45

It's so nice to read a positive outcome. Well done to your mum and you for battling through tough times and medical obstacles. Thanks for updating.
Wishing you all the best going forward.

LargeChestofDrawers · 11/10/2025 20:53

I'm not surprised your mum has health anxiety now after being brushed off with 'depression' only to find it was a tennis ball sized brain tumour. Poor her, and poor you. How awful. You've done so well advocating for her though, so well.

Summerhillsquare · 12/10/2025 08:10

Good heavens, what a wonderful support you have been to your mum.

Freysimo · 12/10/2025 08:26

This has to be one of the saddest posts I've seen on Mumsnet. Your mum is so lucky to have you to advocate for her, you've been amazing. I'm older than your mum and I absolutely dread getting ill, there will be no one to advocate for me. Well bloody done OP.

Crikeyalmighty · 13/10/2025 20:00

Great to read this OP

PermanentTemporary · 15/10/2025 05:21

I’ve read through and was so happy to see the update in general. Hard to believe you have made all this happen with children still of nursery age. Maybe just write a complaint letter and just let them flap about it, No huge advice to offer, just admiration.

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