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Elderly parents

Where to start… 🤯🥺

9 replies

FFSWherearemyglasses · 27/06/2024 19:27

Hi
I’m here looking for help formulating a plan and for any tips/ advice 😵‍💫
I am an only child, I live overseas, no other relatives, I have LPA in place.
My Mum is 84, lives alone and probably for the last 4 years has been developing memory issues which have got progressively worse.
Her short term memory is now very poor.
She had a stoke in February and while she is physically recovered; her cognitive/ memory issues have become a problem.

On a routine post stroke check up the Dr noted her as "vulnerable”, noticed memory issues and put a referral in to the memory assessment clinic.
Unfortunately, the referral was rejected and we were advised to request a re-referral 6 months post stroke to be able to get a clearer idea of her issues (fair enough).
In the period following her stroke I have found managing her meds a challenge. She gets obsessive about them and when organised in a dossett box, she was double dosing because she didn't know what day it was. I have now got a time lock pill dispenser in place.
I have a "Myhomehelper" device in place but despite updating with with numerous reminders and diary entries etc she doesn't seem to engage with it; it serves only as a digital photo frame. She still chooses to look at the paper calendar on the wall. She pours over letters/lists etc for ages but they don't register.
She has 3 very good friends/neighbours that look in on her daily but I am conscious that they have their own families, are not spring chickens themselves she is not their responsibility.

Yesterday, she was taken for an appointment to have a heart monitor fitted. I had expected her to resist but she went with it and when I called her afterwards she seemed happy enough with it.

I had a message off her neighbour this morning telling me she had called very late last night distressed and confused; she couldn't find her meds, she had nothing in to eat (She'd had her meds at 9am and she had been shopping the day before). She'd taken the monitor off ..... she "couldn't be doing with it". It's also possible that she had been out in the garden with her green bin 🥴

I am going back to the UK next week, I have asked the GP surgery if they can make the re-referral to the memory clinic "early" ahead of the 6 month post stroke period to perhaps get her an appointment while I am in UK. They have agreed and have done this. Whether it will be acted upon remains to be seen and is up to the triage team.

From my early research it would seem a diagnosis is a first and significant step in our journey to a plan for support.
I'm here to ask if there is anything else I should/can do to start to get some support to keep my mum safe and fed so I am not relying upon her friends and neighbours.

My Mum does not own her own home, has no savings or investments, has a state pension and a few small workplace pension payments per month.
Sorry for the lengthy post
Thank you

OP posts:
haropo · 27/06/2024 19:50

It's good you have lpa, the diagnosis will help though you can contact social services before hand as their should be based on needs not diagnosis's. Maybe supported accommodation maybe a better option like warden controlled flats with carers going?

Sounds likely to be vascular dementia though you will need to evidence a decline in function as well memory.

D1ngledanglers · 27/06/2024 19:59

Extra care accommodation perhaps? Your own flat but with carers on-site 24/7, daily hot meal and social activities.
ASC assessment of needs.
Attendance Allowance.
careline
Day centre/ social or lunch clubs to relieve the friends
equipment needs at home to stay safe eg grab rails or Tec such as cameras in the home or door contacts?

DeliciousApples · 27/06/2024 20:00

Sounds like she needs carers in four times a day at the very least to feed her and give her medicine.

Sigh. It's such a worry.

FFSWherearemyglasses · 27/06/2024 23:14

Thanks so much for your replies.
I have got Attendance allowance approved- starts in August. I have cameras around the house and arranged for her to wear a falls sensor/ personal alarm which is connected to the council careline.
She doesn’t understand the time lock pill dispenser and gets obsessive about her meds (and why I stopped her doing her own)

For now she is OK with mobility and personal care but she can’t be arsed with preparing meals. If I put a plate full in front of her she will eat the lot though. The weight is dropping off her.
I do think she’d benefit from staying in her own home for now- she’s a potterer and a home bird but she clearly needs help and monitoring.
If I suggest clubs, outings etc she’s not interested but I know she does enjoy company 🤷🏼‍♀️ … perhaps she’ll go if her friends go too initially 🤔
She has a little dog - I arranged a dog walker.
If I apply for an assessment is there anything I should/ should not be saying to get a more favourable/ speedier outcome for her?

OP posts:
D1ngledanglers · 28/06/2024 16:18

How many times a day are tablets? Can you phone her at the time of the alert from the dispenser and guide her through, also using your camera?
can you set up hot meal delivery? The service is £7-8 per day for a main meal. If you give the key safe code, they can plate up and serve it to her.
or does she need carers physically there and prompting?

Does she have savings over £23250 such that she would be full cost for care at home?

if it were my mum, I’d get the care in now, then wait for the ASC assessment.
the priority for ASC assessment is based on risk. Call your Council & let them know your concerns. Some can put in a Reablement service in from an initial telephone assessment, to allow further assessment of needs; then follow up with a face to face.
if the needs are only medication & meals, she will likely not meet the criteria for a service through ASC.

D1ngledanglers · 28/06/2024 18:11

On re-reading your first post, I would say the weight loss is the big risk & possibly reduced fluid intake - risk of infection.
Get in touch with ASC to arrange an assessment and suggest a Reablement service to support her needs in the meantime.
best of luck

Violet17 · 28/06/2024 19:23

Can you see if there are any specialist dementia clubs in her area. We had a great one in ours which my mum went to for a couple of years. Even if it is once a week. They often provide a meal there and make sure they drink as well as the social and activity side of it. Definitely get an assessment from adult social care for her as it seems she needs more support than her friends and neighbours. They can assess if she needs help in the home.
It depends on how much money she has as to whether she has to self fund or it is paid for her.
Also would meals delivered be useful. It might be she needs a carer to do some food for her.

FFSWherearemyglasses · 28/06/2024 21:03

“How many times a day are tablets?” 7 tabs once a day. The device beeps until it is tipped. It’s not so much the taking them that’s the problem, she just can’t grasp that she’s had them despite the dispenser. Someone is with her every day when she takes them

“can you set up hot meal delivery?”
There aren’t hot meal deliveries, only freshly made microwaveable. Which are excellent but she “doesn’t fancy it “ when it comes round to heating it up. If someone does it for her I suspect she’s just eat it so could do with someone coming in to do that for her at teatimes.

What is the reablement service?
I’ve requested a needs assessment referral.

“Does she have savings over £23250 such that she would be full cost for care at home?”
No, no savings

There are so many clubs, meet ups etc but while she is chatty when she gets going, getting her to go to something is a battle. I’ll keep at this and see if she’ll go with her friend initially 🤔

She is ok sorting her breakfast and lunch. I’m always at her to drink.
It’s really regular and substantial evening meals, evening company and generally being kept safe that are my main concerns. 🥺 ….. oh and Christ knows how much she’s feeding the dog 🤦🏼‍♀️ but that’s another challenge. Dog’s not bothered 🥴

OP posts:
D1ngledanglers · 29/06/2024 16:31

Reablement service is the 4-6 weeks of non-chargeable care on leaving hospital. In my county, it’s also possible to have this support on first referral within the community

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