Dementia and 2 brain bleeds, left sided weakness

[Bimbop5]

Just looking for advice… and support. My Mom is only 74 and was diagnosied with Frontal temporal lobe dementia 4 year ago. We had to place her in a care home 2 months ago and it’s been horrible. She was mobile and healthy and VERY resistant to care. This caused the care home to over sedate her when she was admitted and sadly she had a bad fall that day.

Then 2 weeks later she had huge black eyes like a raccoon but the care home said they didn’t know what happened and seemed very blaze about it. Now I realize she should have gone to see the doctor because that was probably a result of a brain bleed. Last week she suddenly couldn’t walk or balance herself standing up and the staff didn’t tell us that she was in a wheelchair until 3 days after.

Her entire left side was paralyzed and they sent her to ER finally when we found out what happened. She had a CT scan which showed 2 brains bleeds which is pushing her brain over causing the left sided weakness. She was rushed to another hospital to have surgery only to find out that the Neurosurgeon wasn’t informed that she is in late stage dementia and he then refused to drain the blood. He said that her brain was too atrophied and it would just cause her to suffer more and that this would continue to happen.

They then sent her back to the original hospital for comfort care and to assess her for palliative care. She was also having problems breathing at that point and had to have oxygen. Luckily that resolved and she can breathe fine now. She is stable now but has limited movement on the left side and cannot walk or move herself to an upright position to sit. She can feed herself and is still interested in food. So they have determined she isn’t palliative and will possibly be discharging her on Friday to a care home. We refuse. to allow her to go back to the care home she came from as we feel they neglected her.

I’m wondering if anyone has gone through this with a brain bleed. The doctors can’t give us information as to her prognosis. We don’t even know if the bleed has stopped.

Thank you for reading if you have got this far.

Sorry to hear this, the doctor will know if there is a chance she can recover, you can raise a safeguarding concern with the hospital and refuse her going back to the first carehome, was it residential or nursing care. The hospital should carry out a care assessment if her needs have changed, she has gone from walking to being bedbound, the same happened to my parent after a few falls, she was in short term respite and fell, ended up in hospital then nursing home. The first home was awful, they lied, blamed parent for falling . If you're paying privately then ask for a refund, they will give you some shite about the contract states a month's fees. I would ask for a meeting with her doctor, nurse, therapists and the hospital discharge social worker.

Giv