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Elderly parents

Dad has had a brain bleed. What next?

4 replies

Dontbesaft · 16/01/2024 12:13

Dad is 95. He still lives in his own home with care. He has 4 visits a day plus over night carers. We self fund so we can add as his needs change.

He had a fall on Friday and something was clearly off. He was taken to hospital and diagnosed with a brain bleed.

They are anxious to discharge him as there is nothing medically that can be done. However I am finding it nearly impossible to give me any information about what to look out for going forward, a prognosis or how to adapt care.

Has anyone got experience of brain bleeds in older people and what is in store for us?

thankyou

OP posts:
Greybeardy · 16/01/2024 14:45

there's not enough info in your post for anyone to make specific suggestions, but some things that are worth thinking/asking about and may make a difference to his longer term prognosis include...
there are several different types of intracranial haemorrhage and it makes a difference to know exactly what he's had. Does the bleed that they've found look acute or chronic - do they think it explains the current picture?
It's also probably important to know whether the plan is for conservative management because that's the usual management or whether his co-morbidities prevent a more aggressive approach.

Did the bleed cause the fall or the fall cause the bleed (the pattern of the haemorrhage may give that away). If the fall caused the bleed, then what caused the fall and is there anything that can be optimised to reduce the risk of that happening again? Is he on any medication to 'thin' the blood - if he is, should that be reviewed?
If things were to deteriorate would there be anything more aggressive that they would do (eg surgery) given his age/other medical problems, or would conservative management still be the plan.

What does he want for himself (or if he doesn't retain capacity now, what would he have wanted to prioritise) if he does deteriorate or fall again.
What do his current carers/agency feel about their ability to support him at home safely? Is there any chance that the fall was due to the fact they're struggling to meet his needs with the current care plan (are there any safeguarding concerns)?
hopefully some of the answers to those questions will give you a better idea of where things are going.

doyouwanticewiththat · 16/01/2024 17:46

Hello, I'm just learning about community care after my DF had an admission . They need to make an urgent care response team assessment if they think his needs have changed which would assess the care he already has , I believe. If they think nothing has changed then they may think he can go home with the same level of care . If I were you, I would probably try and speak to the consultant asap .

PermanentTemporary · 16/01/2024 19:38

Has he been seen by an occupational therapist and a physiotherapist? Doctors can truthfully state there's nothing they can do medically but there may still be issues from the point of view of how he manages at home.

Were you worried about him before this?

Are you worried about him now?

My mum had a big bleed over two years ago at 87. She was very impaired by it from the beginning and I'm afraid we have hoped for her death from that point, but she has deteriorated to the point where we are daily expecting her death. But it doesn't have to be that way and you can be more positive than us. I'm not sure the outcome would be any different tbh.

Bimbop5 · 30/04/2024 17:14

My mom is going through this as well. She has late stage dementia and the neurosurgeon has refused to drain her brain bleed as he feels its pointless. Her entire brain is surrounded by blood as there are 2 bleeds. She can’t move her left arm or leg anymore and her face droops on the left side. They said its because her brain is being pushed over to the side by the bleed. I think the plan is for her to be fitted to a wheelchair and go back to the care home. She had a bad fall there and 2 weeks later two huge black eyes. ITs been one thing after another and we don’t want her going back to that particular care home.

The Neurosurgeon said she might have 2 days to 2 months to live, they really don’t know and she is on comfort care only.

What was the outcome for your father? I’m so sorry you are going through this as well. ITs horrible.

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