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Elderly parents

Expectations and aged parents

11 replies

retirementrocks · 27/07/2023 12:14

Having spoken to friends of a similar age, I know that the following is a fairly common scenario and I just want to share it to see if there are others on here who feel the same as me. I waver between feeling positive about what I am doing and guilty that I don’t do more! I love my parents and have always had a closer relationship with my dad than I have with my mum.
My mother and father are 93 and 94 respectively. They still live in their own home. Mum has, as yet undiagnosed, dementia (totally denies anything is wrong with her) and is becoming more confused and irrational by the day.My dad has just has a minor heart attack and is recovering well. His mind is still pretty sharp. There is free support going in mornings, evenings for my dad to help with personal care for the next few weeks (and then he will probably continue with the care but pay for it) and I arranged homecare for two hours each day and cleaning and washing, ironing time midweek. They also have mobility aids such as a stair lift, raised toilet seat etc. My mum recently had a fall but is ok. I did talk to them about having an overnight carer but she wouldn’t hear of it. She is blaming the fact that my dad had a heart attack for having to put up with all these people in her house, although she then said to our daughter that everyone was very kind and she didn’t mind at all!
To be honest, the past few weeks have been supremely stressful. We live 40 miles away and although that may not sound very far, when it amounts to a (sometimes) 4 hour round trip because of the heavy traffic, it is very tiring. My husband is 71, I am 67 so we’re not exactly spring chickens. We were visiting 3-4 times a week whilst my dad was in hospital and stayed with them for a couple of nights after he was discharged until we got the care and mobility aids sorted, and now visit once a week, twice if necessary. They have local friends and neighbours who pop in to see them daily. I also fill their freezer with home cooked food and take fresh food for the carers to heat and serve so they are eating a good diet.
I am trying to get my father to manage his expectations of we should do for them given that they are well off and can pay for care. I have told him that I want to be their daughter, not a Carer and certainly not their skivvy. I reminded him that at our age, he and mum were living a great retired life sometimes abroad, sometimes in the UK. Their parents died whilst they were in their 50’s so they have never experienced what we are going through now.
We are knackered actually and I am doing my best to ensure that we don’t get run down and ill. I am the only child since the death of my brother some years ago so the expectations from others of me managing my parents care falls on me. For the first time in 15 years, I have had to ask for help with sleeping and my anxiety.
Selfish or not, I am determined that my husband and I will have a good retirement whilst we are still fit and well and I will NOT take on further responsibility for caring for aged parents. I have learned that I would be a rubbish carer anyway…I just don’t have the patience for the constant demands of can I do x,y,z , where is your mother, has she gone upstairs, can you pass my glasses, can you bring my book…it is relentless!
I believe that it is NOT the role of adult children to look after their elderly parents, especially when parents have the financial means to pay for full time care either in a home or in their own home, and have made that very clear to our offspring. I want to feel grief when they pass, not relief and would rather my daughter felt likewise when we pop our clogs.
End of rant! It felt good to get it out of my head and on paper!

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Lovetotravel123 · 27/07/2023 12:24

I totally get what you are saying and agree with you. I have even told my son that in the future it is ok to put me in a home. I don’t want his life ruined because of me.

Willowcat77 · 27/07/2023 13:14

I totally agree. I am in a very similar situation to you looking after my mum. I grapple with the ethics of this every day and dream about fleeing the country to escape from the responsibility! I am Autistic and also have to work long hours and feel like I'm going to have a complete breakdown if things don't change. The problem is, unlike your parents my mum can't afford care, so does this mean I have a moral/social obligation to continue?

thesandwich · 27/07/2023 13:22

Completely agree and well done on getting all the support in place. A quick read of the long cockroach cafe threads highlights the challenges others have faced.
Hold those boundaries.

retirementrocks · 27/07/2023 14:16

Willowcat77. No you don't have a social/moral obligation. There is support available but I know from having been employed in the social care sector for many years, you have to really stand your ground or it is a case of" the more you do the more you may" and there is sometimes an assumption from LA Social Care that you will take the reins. Have you had or have you asked for an Assessment from the Adult Care Team in your area? Wishing you all the best. It's bloody hard!

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JussathoB · 27/07/2023 14:49

It sounds as if you have given great support to your parents and done a good job of organising suitable external help for them too. I also agree with your view that you and your husband and DC have your own lives to live and health to protect.
I hope your dad makes a good recovery and maybe when he is a little stronger you should have some more conversations with him about ensuring they buy in care and arrange their lives and affairs so that things are in order and as straightforward as possible to manage. Do you have LPA for health and for finances?
You may need to try and get your mum to see the GP.
Good luck.

SunshineGlamourIfOnly · 27/07/2023 14:54

Hi @retirementrocks Today my mother had an early morning carer, followed by her cleaner for two hours. I rang this morning and she was busy having tea and biscuits with her cleaner and didn't have time to talk.

I've just received a message from her ( despite what family and I think is the start of dementia, she can sometimes (!) text quite well. She's decided that she needs something that's down several outside steps that she's only just safe managing in calm weather, and today it's wet and very windy. She wants me to go now.

It's something that can wait, and my son is visiting later, plus carer again this evening. So I said, trying not to be bossy, that she might get blown away, and best wait for someone, but I have a busy afternoon and can't help her just at the moment.

She said she'll get it herself then. It's frustrating as hell, because I could go, though it's 10miles and inconvenient, but she has form for manipulating me like this. Now I'm anxious once again, but I'm standing my ground. I've reiterated my concern for her safety, and I cannot jump whenever she clicks her fingers.

All that so say, I get it, and you are welcome here where we are all trying our best, and very often our best isn't deemed to be good enough!

MermaidEyes · 27/07/2023 15:10

I agree. My parents are at that stage where suddenly, due to failing health and hospital visits, I've had to step in and take over so much stuff my head is spinning. I'm lucky in that they try not to put on me more than necessary, but I've also had to start putting firm boundaries in place. My mum has recently started paying for care which i helped to sort as it became obvious very quickly that it was needed and my dad was struggling with lots of things. Also your comment about services and "the more you do" really resonates. Again, in the last few weeks I've had to firmly state to some people that I'm not my mum, I don't live with my mum and I'm not available to do everything, otherwise they seem to assume I sit by the phone all day waiting for their next instruction! I have a job, life and family of my own that still has to come first at the end of the day.

retirementrocks · 27/07/2023 15:11

JussathoB I have written and called the GP more times than I can remember. Got a call yesterday from the GP my mother is seeing tomorrow and she seemed very understanding. I was pretty clear about the situation and she has read the letters I have sent previously. (They probably think "it's that bloody women banging on again, every time they get an email from me!) I think GP's have to go through a procedure in order to diagnose dementia officially even when it is as clear as day that it is well and truly present. Can anyone elaborate?
I was told that the last memory test was satisfactory...how, I don't know given that she can't remember meeting a long term neighbour ever before, or that we visited the day before yesterday! I do have POA for Health (and for Finance and Property) or the GP's wouldn't talk to me at all.
Thanks for all your replies.....I so understand that thing about instant gratification when asked to do something, Sunshineglamourifonly. I have noticed with my dad that things that would have inconsequential to him in younger years, are now a matter of urgency and cause of stress. Possibly a symptom of his general stress levels in trying to look after my mum as best he can, even with the help and support going in.

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LondonNQT · 27/07/2023 15:34

Good on you OP. I was run through the wringer with my Mum (early onset Alzheimer’s) and cried with relief when a stroke finally took her, having been suffering from panic attacks for years. Not before I had to make end of life decisions mind, but significantly less years of suffering than there could have been.

Hold fast to those boundaries - it’s a marathon, not a sprint.

YukoandHiro · 27/07/2023 15:39

Given their ages and declining health it's time to have a realistic conversation with them about maybe finding residential care they can enter together. It's absolutely ok for you to say that you're too old and tired yourself to become a carer to them - it really isn't the same as if you were 25 years younger.

retirementrocks · 27/07/2023 16:03

YukoandHiro · I agree. The talk about residential care has started with my dad and he hates the idea if care in their own home can be provided. A fulltime carer at home has been discussed too. My mum changes from wanting to do it to "I'm not going anywhere" and she doesn't want anyone living in. As a friend of mine said (she's a nurse and knows my parents well since her mum is their oldest friend) "you're on a hiding to nothing trying to reason with somebody at her stage of dementia".
I still wouldn't be their carer even if I was 25 years younger! I worked full time then and we had a child to raise. Now, I have a husband, a grown up daughter and SIL, a grandchild , a dog and a community we love. We live 40 miles away and we intend to stay here for as long as our own health allows us.
and LondonNQT I love "it's a marathon, not a sprint" So true!

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