Thank you, this is a difficult area to get to grips with, MiL has savings less than £20,000 and a very small income, state pension and tiny extra, still in rehab hospital who have said they are looking at continuing healthcare package; the hospital bed and equipment have been in her lounge for 3 weeks, organised by previous hospital, with her paying out for storage of her furniture at reduced rate for first 8 weeks, after than it will cost her £40 to store the furniture that had to be moved for the hospital bed, chair etc.
We don't have PoA on health and as she has been diagnosed with dementia I imagine we are too late.
We are tenants in common but don't live in the property, so I believe care in the home will be assessed on needs first and then if she does need it, they will take from her income up to an amount which leaves her with enough for her bills and food - that seems to be how it works, but different areas seem to have slightly different cut off points - I think her area, borough of Richmond, Hounslow/Chelsea and Westminster for health, are not very generous.
Where it could get complex is if there is talk of a care home, can she be forced into one and the authority force her to pay, i.e. sell half a house because we can't be forced to sell? I know of people who are fighting this for their very frail parents, the criteria for continuing care is tough - so we hope the 4 visits a day that we have been told to expect come into effect - we have no names of people involved in the decision making, we have had no contact from the GP, although they have a letter giving permission to talk to DH, her son.
No one is giving an idea of a return to home date, although the department that organised the delivery of the hospital bed etc. were in a real hurry to get the delivery done. Still waiting for a hand rail that was promised 6 months ago, the guy turned up and said he had the wrong drill bit?! MiL knows the surgery, metal rod inserted to stabilise her ankle, mean she will not be able to walk normally again, at the moment walking is very painful and with help and a walker, she also knows she forgets things and gets confused, she seems to have lost the ability to read, but can sound quite sensible and together when not over tired.
She hasn't been out on her own for over 2 years, we do her shopping and take her to appointments.
I am sure there are many others in this position and charities such as Age Uk are a great source of information, but the communication between the experts involved excludes family unless you have PoA on Health ... luckily my parents organised theirs years ago!!