Meet the Other Phone. Flexible and made to last.

Meet the Other Phone.
Flexible and made to last.

Buy now

Please or to access all these features

Elderly parents

My poor Dad. Hypoactive delirium

14 replies

Smallredclip · 01/06/2021 12:38

He’s 76, and was admitted 5 weeks ago with a severe UTI and confusion, dizziness. He has been in hospital since, and in that time also went through alcoholic withdrawal, which was awful, and the hospital were amazing and stepped in with their withdrawal protocol which was Librium based I think. The UTI has been sorted but he became psychotic and was given a course of Haloperidol which sorted the psychosis but seemed to knock him into what they’re calling hypo-active delirium. He just can’t seem to wake up. He’s had an MRI which was clear but there was a bit of shrinkage on his cerebellum when he was first scanned on admission.

So here we are over a month later and his bloods are ok, he’s got mucus on his chest which they’re sucking out, and he can’t communicate or move at all. He opens his eyes and I think he knows I’m there and then goes back down again.

He’s being treated with Keppra now to try and suppress any seizures which may be taking place, but is off a drip and now has just an NG tube. The doctors are so kind but I know he would hate being like this and I also wonder at what point they call Time - and what happens then. It’s heartbreaking. Any ideas would be helpful. He doesn’t have a terminal diagnosis so the hospice aren’t interested and this seems to be going on forever.

OP posts:
Smallredclip · 01/06/2021 14:22

Anyone?Sad

OP posts:
Purplewithred · 01/06/2021 14:25

I don't have direct experience but do you have POA? if not and nobody does are you next of kin? Are doctors communicating with you effectively? Have you had a discussion with anyone relevant about his prognosis and his future?

DogsSausages · 01/06/2021 18:31

That sounds very tough, do the doctors hope that he will recover.

BetterCare · 01/06/2021 18:42

Firstly I am so sorry you are going through this.

From my experience with my Mum when they didn't think there was any more they could do they placed my Mum on palliative care. At this point we were then able to work with the palliative care team at the hospital to help us with options for my Mum.

Our option was to have my Mum home and they helped with everything, getting her home, all the equipment that was needed, and the funding.

My advice would be to speak to the doctors and see what the plan is and if they are thinking of palliative care

Good luck.

Smallredclip · 03/06/2021 15:56

Thankyou so much, everyone, for posting. We don’t have POA and the hospital says his cognition is improving but it’s so so so slow and it’s impossible to say where he will end up if that keeps improving. Physically he’s immobile, totally, but his doc says that there’s no objective reason to withdraw treatment and if they DID withdraw he would essentially starve. It just seems like the most dreadful quality of life.

OP posts:
Smallredclip · 03/06/2021 15:58

@BetterCare bringing him home isn’t an option yet as he isn’t classed as terminal.

OP posts:
Hairyfairy01 · 05/06/2021 21:48

Sorry to hear about your dad. In my experience such things just take time. I'm glad you are pleased with his treatment. It is so difficult for family members but it sounds like he is in good hands.

Smallredclip · 06/06/2021 18:07

Thankyou. Unbelievably he has improved! Just a little bit each day - he recognised me and smiled and made ahhh noises when I talked about the pets and the kids. He starts physio soon as he has no movement really. What I do know is that he’s still in there and the only thing that is real is love. We stared at each other for ages and ages. Star

OP posts:
Hairyfairy01 · 06/06/2021 19:02

So pleased . Little improvements everyday add up to big improvements overall.

Hairyfairy01 · 06/06/2021 19:04

Do try and keep and eye on if he's eating enough (he may have a food chart by his bed, otherwise ask a health carer) and if you are concerned ensure his nurse refers him to a dietician.

Smallredclip · 06/06/2021 20:02

Hairyfairy1 he has an NG tube, he can’t swallow at all.

OP posts:
Smallredclip · 06/06/2021 20:03

They seem genuinely very caring there but I wish we could get him home somehow.

OP posts:
Dunlin · 06/06/2021 20:13

Things that can help hypoactive delirium:
Repeated gentle reorientation. Keep telling GI. Where he is and what’s happening, what season, month day and time it is.
If he wears hearing aids make sure the batteries work and they are in and on.
If he wears glasses make sure they are clean and on.
Any movement at all is helpful. Can he sit out of bed yet.
Discuss sleep hygiene with the staff. Keep disruptions to his sleep (light and noise) at night to an absolute minimum. Likewise if he can have sunlight and any sort of gentle stimulation during the day that is good.
Is he in pain? His nurses should be able to assure you they are assessing for this and managing accordingly.
The Delirium Wheel app is excellent for further information.
Wishing you both all the best OP x

Dunlin · 06/06/2021 20:13

Apologies for the random GI in there Hmm

New posts on this thread. Refresh page
Swipe left for the next trending thread