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Elderly parents

Going NC with DM who has signs of dementia?

65 replies

SinisterBumFacedCat · 14/09/2020 12:08

I’ve not spoken to her for 3 days, no calls from her. The last time I saw her we did some DIY for her and she had a go at me and slammed the door in my face.

She lost her husband last year, he was doing everything for her and since then I have picked up where he left off. She lived with us for a time and became gradually ruder during that time. We moved her, we did up her house, we put so much time in. Since lockdown I delivered food to her twice a week, then started taking her shopping twice a week. Managed all her admin, she struggles with all paperwork and hates technology. She looses things, forgets dates, gets paranoid about people throwing away her stuff and has been rude and called me a liar when she forgets information I have given her. I have spent the last year making sure she is in a safe place and has everything she needs, answering numerous calls and dropping everything to go round and find something she has lost. She is manipulative with money and has cast my DH as a villain even though he has done so much for her. Her siblings are getting similarly fed up with her. She will not consider going to the GP about her memory loss and says it’s all due to “trauma” of loosing her husband, but he noticed symptoms before she died and spoke to me about them.

I know that when people get dementia/Alzheimer families are supposed to be extra tolerant of all symptoms including what feels like lies and rudeness but I feel I have reached the end of my tether. I can’t keep turning the other cheek when she is rude to me, or pretending there isn’t something medically wrong because it makes her feel better. My DC have had to take a back seat this year and I don’t think it’s fair. I did care for my DF who has a progressive neurological disease before he went into a care home and that was harsh, but he was never intentionally cruel like this.
She can walk to the shops, it’s a bit of a walk but it’s doable. There is some paperwork to do but it’s not the end of the world if it doesn’t get done. I think she really needs to see how much I do by my stopping. I have been so stressed and neglected my own family and others keep telling me to step away and let her fail so she can get proper help. But I feel bad that it is probably an illness that is making her this way. It has really taken over my life and at some points driven me to incredibly dark thoughts about self harming and running away. Is it ok to go NC with a demented parent? I should add that we had a good relationship before however when I look back on my childhood there was some things that were really not right and I would not put my DC through however I don’t know if this was down to age and experience (she was a young mum) or her being a bit of a narc.

OP posts:
Heffalooomia · 03/10/2020 17:21

can ypu step back and let social services take over?

SinisterBumFacedCat · 03/10/2020 17:40

I doubt they will be interested. She still washes, dresses herself, cooks and eats. She is perfectly nice to her neighbours and friends. It’s just me she depends on for admin, shopping, helping her drive but me she hates, blames everything bad on and emotionally manipulated. I have taken this very personally today and I can’t snap out of it. She has been trying to manipulate me with money for months and I had come to terms with that, but actually accusing me of stealing is just morally wrong.

My dad has Huntington’s disease. It was a struggle to get social services interested, even when environmental health shut down his accommodation because it was a health hazard. They were consequently always playing catch up with his housing and care. The desperate physical and mental state my dad was in before they helped leads me to believe they won’t consider someone who can answe the door politely and say they are fine.

OP posts:
Heffalooomia · 03/10/2020 17:42

Pity you dont live far away:(
that makes it easier to distance yourself

tsmainsqueeze · 03/10/2020 17:46

I had unofficial responsibility for an elderly relative , she was not rude or abusive but was stubborn and not keen to accept much needed help , i made sure she had food , gradually took on the collection and safe keeping of her pension , sorted any bills i could find laying around .
It was not ideal as she needed so much more help than what she would accept from me , she had early dementia too.
Sadly it was a crisis that occurred , she had a fall , before she finally received what was needed.
I think you should back off for your own sanity , do the bare essentials until the time comes when she has no choice but to accept care etc.
I certainly would not stay in her company if she were rude to me but equally i don't think i could go nc.
Really hard for you and i hope things sort out , be aware if social services do get involved that if you give an inch they take a mile.

tsmainsqueeze · 03/10/2020 17:47

Sorry just re read , you are familiar with social services !

Heffalooomia · 03/10/2020 18:02

if social services do get involved that if you give an inch they take a mile
tsmain, do you mean that if you let them step in they take over completely?

Supersimkin2 · 03/10/2020 21:46

Just cos it's not her fault, doesn't mean it's not happening - you're being abused, OP.

She's not an adorable old lady getting muddled - she's a risk to your welfare. It can only get worse if you don't change things; it will probably get worse anyway.

Tragic for you both, but better to do what you can.

I would follow your relation's advice to the letter. When and if SS get involved, tell them she's an abuser and you can't be involved in her care. This is about the only thing that works with SS, by the way - that or hitting the grandchildren.

Your goal should be to maintain civilised contact, but have no daily chores. Twenty years is a long time to manage this relationship, so start as you mean to go on.

SinisterBumFacedCat · 04/10/2020 13:02

Another family member has since spoken to her and she still believes I have stolen from her. I feel pretty heartbroken and angry. I don’t think she actually cares about me at all. I think I deserve an apology, but I doubt I will get one. What a terrible way to treat your only child.

OP posts:
Heffalooomia · 04/10/2020 13:10

I think you have no choice but to step away ☹️

SinisterBumFacedCat · 04/10/2020 14:17

Yes, have had a good chat with DH. Am stepping away now. At the end of the day I have to look after my own mental health.

OP posts:
Bakedbeanhead · 04/10/2020 14:39

Oh op I have read your update and feel your pain. I am currently low contact with my mum, I swing between feeling guilty and feeling free. Please look after yourself and your lovely family and hope things improve.

PlanDeRaccordement · 04/10/2020 14:45

You could talk to siblings (hers) and see if they’re willing to split the cost of a periodic carer who would go in and do the day to day checking on her. Making sure she has food, has eaten, house is clean, etc. They could then bring you any paperwork that your DM can’t do.

You are doing full time care of her all by yourself. I agree it’s too much when you have DCs that also need you.

MereDintofPandiculation · 04/10/2020 18:12

I don’t think she actually cares about me at all. I think I deserve an apology, but I doubt I will get one. What a terrible way to treat your only child. This is the illness. It's not your mother. You need to step away from this person, but it's no longer your mother. Your mother is no longer in that body.

When people tell you to be tolerant of the behaviour of someone with dementia, it's not just them that they're protecting. They're also saying this is the illness that is talking. There is no real-life meaning to what they're saying. People are trying to give you the defences to protect you from being hurt by the words that the damaged brain has caused to be uttered.

Rinsefirst · 05/10/2020 13:46

OP with a DF who has Huntington’s and your DM with very obvious dementia traits no wonder you are wrung out. Trying to manage them plus navigate your own family life must be so energy sapping.
You sound like you definitely need a break from their demands and day to day.
In your shoes I’d be asking DP to phone the social work adult care team , twice a day if necessary, and telling them you are beyond the stage of assisting your parents for the next few weeks as you are mentally and physically exhausted/ burnt out.
He needs to be very insistent Flowers

gandalf456 · 05/10/2020 13:55

I am in this position with my mum (not the rudeness, though) and she got worse after DF died and then got admitted to hospital for emergency surgery which accelerated the problem.

To be honest, I would give up trying to persuade her to go the the GP and just make the appointment and take her there. We did this with our mum and she was relieved that we did. I would imagine your mum is secretly concerned about herself and in denial. The rudeness could be part of the condition or down to stress.

We ended up being referred to the memory clinic and she came out with the diagnosis of Mild Cognitive Decline. We are keeping our eye out for it getting worse.

Sometimes having a sibling is helpful There is one other to share the burden and to have a rant with but also, it gets complicated if we don't agree about where we are going with this. My sister can be overly anxious at times and I spend a lot of time trying to calm her down and filter out what is and isn't a problem which is stressful in itself. I can be overly laid back and optimistic at times and that probably makes things worse, too.

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