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Elderly parents

I am having THE worst time. Long- sorry

92 replies

Kenworthington · 31/03/2020 21:55

So, I posted a bit about this on an old thread in the dementia threads. But this board is busier so here I am. Anyway.
Bit of back story, my dad is end stage vascular dementia/Alzheimer’s. He’s been in a home for nearly 5 years now and is close to dying. I was told this back in December. He doesn’t really eat, completely immobile, doubly incontinent, doesn’t speak etc etc. Despresing and sad but he’s had it for around 15 years. We are already at 11 years post diagnosis. Never ever expected he would go on so long with it but he had it early in his early 60s.

Meanwhile, my mum. So she’s 81. Up until August/September time last year, she was quite active, going out on the bus independently, looking after herself. She’s type one diabetic. Around sept things started going downhill- several things happened in quick succession-
*she developed a really bad pain in her hip/leg. Could barely walk, became very unsteady, wasn’t sleeping. After many many trips to the Gp and an x ray they discovered she had severe osteoarthritis in her hip. After a few physio sessions where she was give exercises to do at home, it slowly eased. The pain went away but Walking was still not good. She started using a stick. Very shuffly. Around this time she had already stopped going out independently as too wobbly.

  • then she developed extremely swollen feet/ankles. She went to doctor. Saw a new qualified doctor who said it was due to her varicose veins. I didn’t think this was true. She’s had the veins forever and has never had this problem. She is also tiny. You could see it wasn’t a usual thing for her. So I took her back and said I didn’t belive that was the cause and asked them to check her heart. Another doctor came in and checked and checked her heart and her chest. Fluid on chest. It was agreed that her heart was failing . She was put on various meds to sort the heart and remove the fluid.
  • I started noticing her memory was getting bad. She started asking me stuff over and over again. I just knew this was the start of dementia. It’s got worse and worse.
  • she became isolated and needy. She needed me every single day, for hours on end. She wanted to do the same thing every day. She would be depressed if she thought I wasn’t going over and difficult if I was Poorly or something and had to cancel. There were many many trips to and from the doctor. The doctor and diabetic nurse became concerned about her insulin/blood sugars . She still seemed able to Anaheim it all herself.
  • we saw a consultant at the hospital who thought vascular dementia was probable. He did a brain scan anyways o tile anything else out and we were due back at hospital in May for memory clinic for official diagnosis.

Fast forward slightly to two weeks ago. I knew the ‘isolation’ thing would be tricky for her and as such I was going over every other day rather than every day. And I was just going and sitting with her and having a cuppa rather than our usual trips out to the cafe and supermarket. I could tell she was getting more depressed and gp agreed to put her on antidepressants in her next pill pack.

Now the big problem:
I saw her briefly the Thursday before lockdown. And sat morning she text me early to say she as fine and not to go over and shed see me the next day. On a whim I decided to pick her up some treats and drop them over. When I got there I couldn’t find her straight away then found her lying barely conscious on the bathroom floor where I thought she’d perhaps had a hypo. She was talking nonsense and crying. I tried to get her up but just couldn’t do it. She was a dead weight, and pouring with sweat. Ambulance came and as soon as they turned her over she was totally grey and one said to the other ‘she’s going to go’ Sad. So anyway eventually they took her off to hospital and I still really thought she’d come home that night. I went back in in the pm and took her some clothes etc. By which time she wa sin the acute medical ward. Late that night I had a phone call from the doctor to say they’d discovered she’d actually suffered a massive heart attack. It was clear they expected he’d to die. I went in a few times the next day. Becaus if the virus we were only allowed in one at a time for up to an hour. Also saw her in the Monday. Then- lockdown. So she’s been in hospital now for a week and a half. She can’t have any visitors. She’s getting more and more sad and depressed and confused. They moved her yesterday to a small community hospital. Which is miles away from me. And now we are waiting on a room in my dads nursing home. Which she doesn’t know she’s headed for but there’s no way she can go home to live alone now. Today on the phone she asked me about her mum and could I check on her Sad - she died 17 years ago.
Anyway I don’t know what the actual point is of this, perhaps to just get it all out so I can return to it. I am SO stressed and anxious. I’m an only child and I have to sort it all out. There’s too much. She’s going to hate going into the home but the three carers a day they are offering me (becasie they want her out of the hospital) is going to be nowhere near enough, esp as they often don’t turn up and they don’t stay long. I also know how resistant she is to having carers in the home. She looked after my dad mostly alone apart from support from me wat longer than she should have. I mean she’s not going to get better. It’s going to get worse and worse and it’s all so fucking unfair .

Sorry about the monumental essay and now I’ve got it all out I’m afraid I’m going to do a terrible thing and go to bed because I’m emotionally shattered but if you do reply thank you so much and I promise I’ll be back tomorrow.

OP posts:
RandomMess · 03/04/2020 19:38

ThanksThanksThanks

How very tough on you Sad

CMOTDibbler · 03/04/2020 20:19

I'm so glad you've found a home to take her. Over the years, I've found making it sound like someone in charge (and not you) has said things have to be a way. In this case I'd go with 'the doctors say you need to get your strength back and be looked after' over and over. The phone is awful for someone with dementia as they have no context.
Look after yourself

TheFutureMrsHardy · 03/04/2020 20:28

Firstly, it all sounds horrendous and you have my utmost sympathy.

I used to work as a home carer, and we weren't allowed to inject anyone with insulin, even with a pen. It had to be the district nursing team to take that on. And I highly doubt they'd go in 5 times a day.

A nursing home will keep her physically safe, her medication under control and she will be well cared for with regular food and drink. She may not agree, but she's just not safe to live alone. And that's what this all boils down to.

Flowers
MintyCedric · 04/04/2020 10:51

I just wanted to send you a virtual hug and wish you all the best. I'm also an only child dealing with elderly parents and suspect we're going to reach 'critical mass' sooner rather than later. It's awful.

Take care of yourself as best you can Flowers

Afternooninthepark · 04/04/2020 11:37

So sorry you are going through this, my mum has Alzheimer’s which seems to be progressing quite rapidly the last few weeks, it’s so tough 😩Flowers

MondeoFan · 05/04/2020 21:21

Sounds as if you're doing well. Wanted to wish you and your parents all the best. I bet you feel exhausted most days? Be sure to take some time for yourself, reading or listening to music. Buy yourself some chocolates - you deserve it 😄

Kenworthington · 06/04/2020 20:39

She’s moving tomorrow. The nurse I spoke to from the onward team this afternoon told me she understood and was happy about it as she was scared of going home alone and didn’t want to go home. So all good I thought. She’s going to be happy in the home and will settle in nicely. BUT I just had a call from her. She’s furious, cantankerous, upset, doesn’t want to go, doesn’t understand why she has to go, generally just cross with me. I said I was making the only decision I could and that they won’t let her go home as she’d be totally on her own as I’m not allowed to see her. I think she feels like I’ve abandoned her. She was so angry omg. I just can’t do this. It’s so hard

OP posts:
AwrightDoreenTakeAFuckinDayOff · 06/04/2020 20:43

Still thinking of you.

She is lashing out because she’s feeling scared and vulnerable. She’s lashing out at you because you love her enough to still love her even when she says terrible things.

It’ll come right as you have made the best decision (and only one) you could.

Take a breath, then a cuppa or a gin. It’ll be reet. Flowers x

mineofuselessinformation · 06/04/2020 20:43

That must have been horrible for you, OP.
Maybe you could try a different tack with her, and remind her that she has agreed to go?
If she says she doesn't remember, recount what the nurse told you.
Ultimately, she made the decision, not you.

Kenworthington · 06/04/2020 20:48

Thank you. She’s kind of often been a bit like this. She would vaccilate between unbelievably lovely and loving one minute to being difficult the next. Like she would offer money to me to get some work done on our house for example then once it’s been booked she’d start worrying about her money and saying she shouldn’t have given it to me!

OP posts:
Kenworthington · 06/04/2020 20:49

That’s a crap example but you know what I mean

OP posts:
Kenworthington · 06/04/2020 20:51

Also she is used to seeing me every day. I used to find she would start taking me for granted and start being difficult and mean and demanding and the minute I’d pull back and leave her for a few days she’d be back to being lovely. But I can’t ignore the phone calls from the hospital in case somethings happened and I know it’s because she’s confused. But she agreed to this. I don’t have a bloody choice. She’s been sat in a bubble in her little hospital ward with no clue at all of what’s going on in the outside world. I keep telling her but I don’t think she believes me, I think she thinks I’ve abandoned her

OP posts:
Notverygrownup · 06/04/2020 20:54

Oh bless you, OP. This was me last year: also an only child, knowing Mum had dementia and then discovering that dad had it too.

The doctor told me to use the phrase "The Doctor said . . ." It seemed to calm them. "The doctor says that you need to go to this home, whilst we sort out who is going to do your injections . . . "

I also found it helpful not to discuss long term plans. So just say that the home is "for a while", not forever.

Bless you. She probably won't remember her anger at you tonight, so try not to hang onto the memory. You have done amazingly to organise all of this during the CV outbreak. You can't solve this problem, only help to manage it, giving them as much dignity as possible. Hang on in there, and keep posting here. There are some wise souls with lots of experience.

smartiecake · 06/04/2020 20:56

You dont have any other choice. You are doing what is best for your mum and you have to make that decision for her. You are doing the right thing.

spongedog · 06/04/2020 21:01

Just sending lots of virtual flowers and gin and cake. You sound as if you have done your absolute best regardless of even the current circumstances. Hope the move goes well.

Flowers Gin Cake Flowers Gin Cake Flowers Gin Cake Flowers Gin Cake

Clymene · 06/04/2020 21:04

Oh you poor thing. What dreadful timing for you with all this going on.

You are absolutely doing the right thing for your mum - you are taking to care of her.

As for what she says to you, she's explaining her fears, she's not blaming you. It's a shit situation for her to be in and you're the only person she can shout about it to.

You are a brilliant daughter SmileSmileSmile

Kenworthington · 07/04/2020 19:12

Well, she’s now in her new home. I was told she’d be arriving after lunch so at nearly 3, dh and I drove up there with her extra clothes and some things for her room and when we got there the ambulance was there dropping her off. So I made him drive round the block a few times , I didn’t want to rush her seeing me and thinking I’d gone to take her home Sad
Anyway it seems really nice, beautiful old Victorian house. My god is it expensive though- £1500 per week 😩 I am going to see how she settles for a couple days before I call her thoigh apparently as soon as she arrived she was asking when I would be coming to see her Sad also what’s annoying and that I didn’t realise is that because of the lockdown, all the residents are staying in their own rooms with carers only going in to them. I had hoped for some company for her.

OP posts:
picklemewalnuts · 07/04/2020 21:50

Where she is, they have the best experience of how to cope with her.

It's not easy, and it's not about you! You're in an impossible position, and her anger and upset is about the situation not about you.

I won't tell you not to worry, of course you will, but try not to take it all to heart. All across the country all kinds of people are putting up with all kinds of stuff. There's nothing any of us can do but make the best of it.

When you do get to talk to her, don't take any responsibility or try and fix it. Use phrases that show her you care and understand that she is upset, but don't make any attempt at making things better.

Your words need to reflect that it's rubbish but we have no choice right now. Because it is and we don't!

Kenworthington · 08/04/2020 16:56

Oh dear. Apparently she won’t let anyone unpack her clothes as she’s ‘going home’ and I’ll be picking her up today😩

OP posts:
RandomMess · 08/04/2020 17:52
Thanks

Your Mum has dementia so it doesn't matter what you say or do she is incapable of being reasonable and she is in the best place for her regardless of how she feels about it and what she says.

The grief and sadness for you must be awful but the staff will be kind and care for her.

Please be kind to yourself Thanks

Kenworthington · 08/04/2020 18:05

Thank you o just don’t know what to do now- phone and try and reason with her or leave it to the carers?! I’ve emailed the manager as I couldn’t get hold of her on the phone. Ugh

OP posts:
RandomMess · 08/04/2020 18:07

There is no point trying to reason with her, you know this. Bright and breezy conversation some days she will be ok others not and you can just hang up.

You are paying £1,500 per week for them to care for her including dealing with her tantrums don't take on the emotional burden from a distance it will make no difference to her happiness.

It sucks, completely sucks Sad

Rinsefirst · 08/04/2020 22:27

ken It’s incredibly difficult at normal times but this pandemic makes it all ten times harder. Such a lot on one set of shoulders. But be reassured that everything your mum is doing and saying is very normal indeed for a new entrant. The staff literally will see similar every week and so while It can be overwhelming for the immediate family it really is not unusual. random absolutely is right, the care home is being paid very fairly and so let them take the strain while you regroup. Being physically distanced would be normal this week anyway until she settles. Flowers Be kind to you, you deserve to take your foot off the pedal for a bit...

Mother87 · 08/04/2020 22:30

ThanksThanksThanks

Notverygrownup · 09/04/2020 10:39

My advice would be to leave her. When my mum, with dementia, had to go into a home, I was guided by the carers to not go to visit her or phone her for the first week. It was agony, and I know that she found it incredibly hard, but after a week, she had moved beyond the "I want to go home" stage and was able to accept me as a visitor. (I did send in a large teddy bear, with a note around his neck saying "I love you. Please hug me until your daughter can come and visit" and it apparently gave her huge comfort during that week.)