Help! Don't know where to turn

[OldSpeclkledHen]

My DM has lung cancer, she lives alone, I'm an hour drive away (have work and home commitments)

She's not receiving treatment, but is under palliative care team at local hospice.

So, she's had an ongoing cough for about 8-10 weeks now, was scanned in Dec for PE (which was negative) so hospital just discharged her.

Her GP is fucking shit, absolutely fucking shit. He's recently said to her to liaise with the hospice if she is unwell.

The hospice say she needs to see her GP!

No one is taking any responsibility, and I don't know where to turn or what to do.

Am current say waiting for out of hours GP as when I made routine call to her earlier, she was struggling to breathe. The hospice team have been out - called the GP who is now very reluctantantly coming out. But I know they suspect a PE and will want to admit her.

She doesn't want to go to hospital, which I completely understand and agree with, but where do I turn to get the treatment she needs?

She has currently had some meds to calm her breathing and cough, but I would just like to know what to do, and whom is responsible for doing what.

I guess this reads as a rant.. which is it partly, but we really do need help

Sorry, I don't know cohere else to turn/who to ask. I feel like a failure of a daughter as I can't get my mum the help she needs 😭

Sorry about your mum. She will see the doctor who may suggest she goes to hospital for scans and a blood test to see what's happening but she has the right to refuse to go. They probably wont just treat her for a pe without confirming she has one. What treatment do you want her to have if she doesnt want to go to hospital.

Thank You for your reply, I've probably not posted in the correct forum.

I just want her to be comfortable, and to whom to turn too when these things happen. The GP say the hospice, the hospice say the GP?!

She was admitted on a Friday in Dec, it was Tuesday before the scan which was negative, then she was just discharged without further care/advice.

She is coughing up blood daily, and coughs almost from the moment she wakes till the moment she sleeps- which is a bit shit quality of life. I just want her to be comfortable.

It sounds really tough, does she have a careplan from the palliative care team and instructions of what to do if she becomes unwell. I would try and contact the hospice homecare team and ask what plans are in place and who should she call. If she was discharged under the hospice team this would have been set up in the hospital, you could ring their palliative care team and ask. Failing that contact PALS at the hospital and they can investigate for you what was set up for her. Does she have carers going in or a care alarm system. It sounds like the palliative care nurse may have given her medication so she may have a drug chart and medication at home, this is often arranged by the hospital or the gp., hope you get it sorted.