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Elderly parents

DAY 6 - I am losing my mind

14 replies

MonkeyfromManchester · 12/01/2020 18:12

I’m a kind and giving person, I support my family, friends and do voluntary work. However, right now, I feel like screaming. My mother in law is staying with us (she arrived on Tuesday from hospital) in our tiny house. Background: she is 82, has been showing increasing signs of dementia of some kind, she lives alone, over the last ten years or so, she has increasingly isolated herself from friends, she positions herself as the sole Carer for my partners’ disabled brother. My brother in law has MS but is totally capable of looking after himself. She gets up at 2am, cleans her house , gets the first bus to his house at 5.30am, she’s been mugged twice walking through a dodgy estate to get to the bus stop and has been told by us and advised by the police to stop travelling so early to the bus. Even though my brother in law wants to stay in bed til a reasonable hour, she arrives and starts cleaning. The real reason she visits every day is to feed feral cats and she’s bored (suggestions to socialise fall on deaf ears).. She has my brother in law at her beck and call all day every day. We have offered to help but we are blocked at every turn. I’m sure wider relatives think we are terrible leaving this little old lady to do all the caring. She had a chest infection from before Christmas, refused to go to the doctor to get antibiotics, we ended up taking her to a walk in centre, she didn’t take her medication and a week later we brought her to our house and that day we had to call an ambulance to take her to hospital with breathing difficulties. The ambulance trip ended with four days in hospital. She is now at ours, she has our room (of course and that’s absolutely right), my partner has the sofa bed and I have a futon in the spare room. It is day to day hell as we are subjected to the endless martyr act. My pillows aren’t right, the cushions aren’t right, I don’t want any food (I can see her watching my out of the corner of her eye as she refuses food - it’s like dealing with a child), my mum (a 73 year old lively stoic) comes over after a half hour drive to help with some of the stress. It is day 5, we have the constant refrain of I don’t want to be any trouble, I could just go back to hospital. No, you fucking can’t, there are no beds, you are well enough to come home, you have two people looking after you (I - now hugely regretfully - work from home). More background: she bullies the disabled BIL and has done for the last five years with increasing bile, she physically abused my partner as a child. I can’t bear to have her in my house. We’re taking her to the doctor on Monday, we will sit in the consultation with her to find out about her myriad of illnesses and hear from the doctor what his thoughts rather than getting “I can’t remember what he said”. I think it’s memory clinic and Carers visiting her to get her to take her medication, my partner is in complete denial about dementia and reckons she’s fine. All the signs of dementia are there: shuffling, anger, memory loss, forgetting to eat and hoarding money (2500 quid under the sofa) I found food shopping in her spare room and years of unwrapped presents from us which is understandable but hugely hurtful. It’s self-denial and martyrdom left right and centre. I bought her underwear and nightclothes as she had none: what did you do that for? Because you aren’t looking after yourself, won’t wash yourself and we look like the shittest son and DIL in the world when we were at the hospital. And she has just thrown herself on the floor when I was unpacking the shopping as I watched her - she’d had a row with DP. I am SO angry. I feel like staying at a friend’s but then I feel like I’m being bullied out of my own home. She would like nothing more than to sink her claws into my partner who’s had counselling because of her abuse and have another person to dance to her tune. How can I stop this shitty bullying behaviour? P.s. partner has got his head round dementia after talking to cousin. We just need some strategies to help.

OP posts:
AutumnRose1 · 12/01/2020 21:18

I must admit, I struggled to read this without paras (I know the app removes them).

But I feel for you, sounds like a nightmare. Sorry if I missed it but do you tell her bluntly not to criticise? I would.

NationalShiteYear · 12/01/2020 21:42

Sounds awful OP. To be blunt, why does she have to stay with you? What is the plan to get her home? You need a plan, or she'll never go

AfterSchoolWorry · 12/01/2020 21:48

Well, what about residential care?

She won't want to go of course but nobody does.

MonkeyfromManchester · 12/01/2020 21:57

Hi AutumnRose I’m a former English teacher and I’m too lazy to use paragraphs today! Honestly, the knackered state I’m in I wouldn’t recommend me as a teacher to any child! You are all right, we need a plan. The hospital was supposed to give us a care plan. But didn’t.

OP posts:
Orangeblossom78 · 13/01/2020 09:13

Will you take her home? Maybe she needs an assessment at home. Might not engage though

DonnaDarko · 13/01/2020 09:35

You shouldn't have allowed them to discharge her to you without a care plan. You can't refuse, we've done so in the past for my mum.

All you can do now is push for a proper assessment. Tell them you're not prepared to care for her and that the house isn't in her name at all - in my experience with my MIL, that gets them moving pretty fast.

DonnaDarko · 13/01/2020 09:35

Ah, you can refuse

MereDintofPandiculation · 13/01/2020 11:28

Good that DP has now got his head round dementia so presumably you are now both on the same page. At this moment you don't need strategies for coping, you need a plan to get her out of there! With two of you without proper beds and you working at home, it's not feasible for her to stay with you long term, and 6 days is more than enough.

Have you spoken to Social Services, said you are unable to have her there? That you are unable to provide care because although you are physically present you are actually at work?

Try to detach yourself mentally. Be brisk and no-nonsense. "Do you want some dinner? ... No?...OK, no problem". If you don't give her the rewards she want for her behaviour, she may herself decide she'd prefer to go home, which will mean getting her out is easier.

MonkeyfromManchester · 13/01/2020 23:32

Thanks, everyone. I feel much better. The brisk approach is working - here’s your dinner, you need to keep moving, climb the stairs, get into bed yourself, you need to wash and get changed. To be fair, she was very shaken up by being admitted to hospital (her fault for not taking her antibiotics) followed by a (probably self-inflicted) fall.

A brisk and positive approach has paid dividends. She looks better. She’s still whiny but knows it doesn’t work with a family friend, my mum or me (all very stiff upper lip). My partner has cottoned on to the fact that she views him as the soft-touch (yes she does, idiot boy, and has done for years) and is following my lead.

She has had a terrible GP for years and THANK GOD, he has now retired. We went with her to her new GP (wonderful) and went into the room with her. We agree - even though it’s going to be hard - to have her til the week after next as that’s when she will have results from blood tests exploring why she’s falling and if there are any physical reasons for her memory loss. Then the doctor will refer us. Then we will say this “flat share” cannot be a permanent solution.

That’s fair enough but the lack of an immediate care plan has infuriated me. How can there be so little investment in social care? I really feel for women with children and elderly parents. God knows how you do it, sistas.

P.S. I hope the paras are working better now. I re-read my earlier rant and the Oxford Grad within me shrivelled at the dreadful punctuation and grammar. That’s what rage does!!!

OP posts:
MereDintofPandiculation · 14/01/2020 06:07

How can there be so little investment in social care? Probably because it's a relatively recent problem brought about by increases in life expectancy. Previously so few of your aged relatives found themselves in care for long periods that no-one paid much attention to the problem. Too few votes.

Apparently we're beginning to send our loved ones to care homes in Thailand ...1-1 care for less than you'd pay as a self-funder here.

Orangeblossom78 · 14/01/2020 07:34

Have they done a referral to social services? It can take up to 6 weeks we were told

MonkeyfromManchester · 14/01/2020 08:24

I quite fancy a trip to Thailand myself. :-)
Referral to social services comes after blood tests’ results in two weeks. Then I’m going to get very insistent.

Partner is very aware that this can’t be a long term solution. Luckily, a relative knows the system (nurse) and we will get some advice.

This morning she was whining about going into a home as she wanted me to sort her pillows out (although she’d walked to and from the bathroom) and I told her she needed to do them herself. I think “going into a home” is ridiculous and told her so.

After all these years of (angry) independence, this is even more passive aggressiveness coming to the surface.

I can have Thailand and she can have a care home smelling of wee. Sounds like a good deal to me. Grin

I really appreciate your support and just someone to talk to who’s been through this mess.

OP posts:
Orangeblossom78 · 14/01/2020 12:51

Best thing to do with social services apparently is if they ask say you can't do stuff from the start. Then she might get more support.

MereDintofPandiculation · 15/01/2020 11:40

If she keep s talking about "going into a home" and she owns her own home, direct her towards retirement flats for the elderly, then let her get on with it. Well done with the pillows!

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