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Elderly parents

I’ve just about had it

17 replies

bringincrazyback · 10/12/2018 09:10

Pushed for time right now, so will probably need to explain context properly later on when I get a minute, but does anyone else who has elderly parents living with them feel they get treated like dirt whenever they happen to be having a bad day?

Barely a word of thanks, just being alternately ignored and spoken to like a troublesome and clueless child when I dare to make suggestions about their medical issues. I just feel so angry, hurt and bitter right now that I need to put it somewhere. I’m very grateful I still have both parents still alive, but my mum’s behaviour in particular is testing me to the limit. My father has Parkinson’s disease and mobility/pain issues, but is capable of interacting like a normal human being. Not so my mother (not on bad days, anyway, and those are increasing in frequency) who at her worst is domineering, neurotic, narcissistic, weak, gaslighting, endlessly negative and possibly starting with dementia which she refuses to acknowledge. She keeps trying to ‘block’ my dad’s reasonable attempts to seek the doctor’s advice on his various conditions. It’s all ‘What do you expect the doctor to do?’ etc etc. Any attempt to introduce a bit of reality into the situation is met with tears, victim behaviour and attacks on my personality, and I’m at the end of my tether from the hurt of it all.

If my comments about my mother sound harsh, please consider that she’s put me down my whole life, been critical about pretty much everything about me, and been no kind of role model whatsoever even when she was younger and fitter, my emotional wellbeing has always been bottom priority. She dominates my father psychologically, and he’s never really stuck up for me when she was being unkind. I bite my lip on bad days, while waiting on them hand and foot and trying to keep some kind of a life of my own amidst all this. I suffer from depression and chronic fatigue (poss fibro, it seems to be turning that way), but am I ever asked how I am doing? No, never, because I’m just here to wait on them hand and foot and serve as a wailing wall for them to take their frustrations out on.

Christmas is throwing everything into sharp focus and I am just hurting so much. The worst thing of all is that I honestly don’t think they appreciate the sacrifices I have made for them, to keep them from having to go into sheltered housing or a home which they didn’t want. It’s all just taken for granted and I’m just seen as a combination of skivvy and nuisance (on the occasions I dare to make any suggestions about their health). I've given up a lot to make this living set-up possible for them and the worst thing is knowing they'd treat me better if I'd done none of it, because I'm just so conveniently bloody 'there' all the time that they've come to see me as nothing more than some kind of live-in servant.

If it wasn’t for my husband’s support my MH would probably have collapsed altogether by now, but even he doesn’t really get it, as my mum does the classic narcissist thing of being all charm around others, but as family it’s apparently fine to speak to me and my dad like we’re dirt. I don't think DH believes me about how my mum treats me sometimes. The only respite I get from this shit is time spent with friends, but even some of them have turned their backs on me because they don’t understand what my life is like now, and occasional trips away at times when they are coping between them, which I usually get guilt-tripped about. It’s like they think my role in life is to be there for them to just take all their frustrations out on and I’m supposed to just smile sweetly and keep right on waiting on them hand and foot, and to hell with my own wellbeing.

I can only see this getting steadily worse as time goes on, and it’s causing so much resentment that in turn becomes terrible guilt because I should be grateful they’re still alive. Fuck my life.

Just needed to vent.

OP posts:
Singlenotsingle · 10/12/2018 09:16

So you've got a DH? Do you all live in the same house? Why can't you take a step back/move out/let them get on with it?

bringincrazyback · 10/12/2018 09:33

It's not quite as claustrophobic as it sounds actually, because we all pooled funds and bought a large house so my parents could have separate/accessible living space. But the house belongs to DH and me, with my parents paying an affordable rent at their own insistence. The problem is that my dad is virtually chair-bound when his conditions flare up, leaving my mum to do everything unless I help out, and she suffers badly from fatigue too. I do realise that when she's tired her personality issues will 'flare', and of course I care about her quality of life, but the main reason I don't disengage more is that I don't trust her with my dad's care. She manages his meds all right (albeit with a massive song and dance about how much she allegedly has to 'remember' even though she has it all written down in a book) but has some sort of weird blind spot around my dad's seeking medical assistance when he needs it. Twice last year he almost died because she wouldn't do anything when he became seriously ill, she's discouraged him from having any more physio because she doesn't believe in it (she's a former assistant OT so knows everything a physio knows, of course(!!!!)) and she's negative every time he wants to talk to the doctor about any of his other problems. I just don't trust her with his care, in a nutshell.

OP posts:
bringincrazyback · 10/12/2018 09:37

Not sure whether I'm allowed to link to one of my own threads, but this gives more context so I'll put it here and hope for the best, lol. www.mumsnet.com/Talk/elderly_parents/3257035-Caring-for-elderly-parents-when-one-has-personality-disorder

OP posts:
bringincrazyback · 18/12/2018 20:00

Bumping because hand-hold needed. I lost my rag a bit earlier (we're only talking 'telling off' here, there's no way anything would ever escalate beyond cross words) with my mum because it turned out she hadn't thought about my dad's main Christmas present yet, after a week of general disorganisation which I've had the brunt of, and she was indirectly asking DH and me to organise it for her, she's supposedly been 'doing nothing but think about Christmas for ages now', and yet this. I usually try to mask exasperation when I feel it, because I know their lives aren't good now, but dammit I'm 51, going through menopause, skint and suffering from depression, a sleep disorder and CFS myself so my life ain't exactly plain sailing either. So I didn't especially trouble to hide my frustration. Cue industrial-sized meltdown. My mum sitting there crying saying I didn't understand how tiring my dad's care was for her, my dad sitting sobbing in his chair because he feels like a burden. I feel like the worst person, and the worst daughter, in the world already, so please don't anyone pile into me, all I was trying to do was get my mum to show a little more consideration for me and my own limitations and it led to Armageddon. I'm exhausted and ill, I can't cope with this living situation, but I have no choice but to cope with it, I can only seeing it getting worse as their health declines and on top of all that I have the constant guilt of knowing each day should feel like a circus parade of bliss because I still have both parents alive. Sorry to whinge but I just needed to let that out. I just can't see a way that things are ever going to get any easier and it's all just so upsetting, especially sitting there seeing both parents sobbing and feeling like it was my own selfish fault.

OP posts:
SeaSandLandSky · 18/12/2018 20:33

Big, big hug for you op.

From what you have said here, it's all far too much for one person to cope with.
Is there any way you can get some carer support in, to give you some respite, eg, friends, relatives, care organisation? Or is there anywhere they could go for a few days to give you a break?
Because if you become ill, too ill to cope, then they will have to go into care permanently which is what you have obviously tried to avoid..

Grace212 · 18/12/2018 20:36

oh I really feel for you Flowers

you didn't do anything wrong

I wonder if this is about getting a carer or about getting them to respect boundaries more. I had to do a lot of work on parental boundaries when I was about 30...I'm sure I annoyed the crap out of them repeating myself but it worked....

take care and do keep posting if it helps, no one will judge you!

Grace212 · 18/12/2018 20:38

sorry, just to be clear

I think a carer would be a good idea but maybe a boundaries talk as well...though looking back at your first post I'm not sure how your mum would take it.

is it time they moved out? Certainly that sounds like the best case for you.

HollowTalk · 18/12/2018 20:39

I know you've tried to avoid them going into a care home but honestly it sounds as though your dad would be much better off in one. You could visit daily and relax knowing he's cared for.

I'm really worried that your dad will pass away and you'll be left with your mum. His physical problems are surely easier to deal with than her MH problems.

As far as your husband is concerned, I would record your mum so that he can see what she's really like.

bringincrazyback · 18/12/2018 20:43

Yes, exactly what I am afraid of, and thanks for the hugs and understanding. I am going to have to look into that kind of thing, it's been on my mind a lot. My mum did say earlier that she and my dad could afford to keep paying the cleaner after I said I can't really keep it up, but she won't accept help with my dad's day-to-day care, beyond medical necessities. It's 'more trouble than it's worth', apparently, I think some of this stems from her knee-jerk reaction to anyone in the caring professions that isn't a doctor or nurse. My dad can't seem to persuade her that we should ask for help either. She also won't see a doctor for either her mental or her physical health, so all in all it does lead to a lot of worry she could just collapse with exhaustion, or something worse. sad face

I had been planning a week away in Feb before all this kicked off, but am now wondering whether it's fair to them and whether my mum would cope for that time. Difficult to think straight atm, but I definitely do need some form of respite break at some point after Christmas.

OP posts:
bringincrazyback · 18/12/2018 20:45

@HollowTalk I have the same fear. My dad's much better in himself at the moment, but that won't last forever. My mum is terrified of going into a home, and DH and I promised them a home here for as long as it was workable (if that couldn't be 'for the duration', so to speak), so it's a really tough one. Good suggestion re DH BTW, I might try that sometime. lol

OP posts:
bringincrazyback · 18/12/2018 20:47

Sorry, just to make clear when I said 'I am going to have to look into that kind of thing' I was referring to respite care, in whatever form that might take. My mum keeps saying there's nothing available, but I think that's part of her refusal to let anyone outside the family help.

OP posts:
SeaSandLandSky · 18/12/2018 22:26

TBH I don't think it's for your mum to decide about what your dad does or doesn't need, if he feels he needs help beyond what you can give them, then so be it, go andf get it put in place ASAp.....and I'm speaking from a very similar platform to you.

You could say that your not getting carers in to help them, but to help you - and be firm, very firm.

Wrongwayup · 18/12/2018 22:36

Come over to the caring for elderly parents thread. We are all pretty much in meltdown so you will fit right in. Ps it's crap. X

bringincrazyback · 18/12/2018 23:49

Thanks, I will. It's good to know people understand.

OP posts:
MereDintofPandiculation · 19/12/2018 11:38

I had been planning a week away in Feb before all this kicked off, but am now wondering whether it's fair to them and whether my mum would cope for that time. The tough streak in me suggests that this might be a wake-up call for her. After a fortnight in hospital, my DF has accepted having a key safe which previously he has refused. A small step, but maybe it will lead to others.

poglets · 20/12/2018 21:34

Sorry but you must take that week in February for all sorts of reasons.

It will be a good break for you. If you are going with your DH then it will be good for your marriage. A bit of time to relax, be away from it and back in some kind of normality will help you get grounded and reset.

Your parents need to either accept help or be more self sufficient. Giving them that space may help them realize this.

Sorry OP, you're going through some tough things. Stay strong for yourself.

thighofrelief · 23/12/2018 01:52

Was going to say - come to the long running thread but my fellow oldie wranglers have beaten me to it. If you're going nuts and you can type it's the thread for you.

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