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Elderly parents

Out of my depth

3 replies

Lallybroch · 08/10/2018 21:32

Doctor visited my mum last Monday and told us she is has late stage lung/throat cancer. I have been trying to get help since May and she is now too weak to have an exploratory operation with GA or to undertake radiotherapy or chemotherapy. The only thing they can offer is palliative care. When I spoke to the GP on Friday he was writing to the consultant and trying to arrange a scan. Can anyone give my any idea when a things might kick into place. I've arranged a stair lift to be fitted this week and been and bought things such as riser chair, toilet frame, wheelchair etc as whilst I've been in Canada for 3 weeks she has become increasingly weak and unable to walk far. My brother, who lives with her has been caring for her and obviously, I am now involved. My reaction to problems is to take over and become pro-active which I'm realising is not really working in my mum's case. She feels its too much too soon. I just feel in limbo now waiting for things to start happening and could really do with some advice about where we go from here.

OP posts:
loadofcrap10 · 08/10/2018 21:43

Please ask her GP to put you in touch with their District Nursing Team, palliative care is their bread and butter and they will be a great help for you all

thesandwich · 08/10/2018 22:03

Also Macmillan may be able to help- your district nurse team will also have contacts such as hospice at home/ hospice care. There is also funding such as fast tracked attendance allowance possible chc funding to look at. And an ot could visit to see about things like hospital beds etc. So sorry. Please seek help, and support for you all..

TheFurryMenace · 08/10/2018 22:22

Call your GP and ask for the palliative care team's contact details. Ask if you could have an OT come round and complete an assessment re your mum's activities of daily living - they can recommend and provide equipment such as bath lifts, commodes, simple equipment to help her get in/out of bed etc and also help think about how the environment could be adapted to make things easier for her (not major adaptations requiring building work etc, but just how to set things up and adapt what she is doing to maintain her independence and dignity for as long as possible).

I am so sorry that you are all having to go through this, lung cancer is such a horrible disease Flowers

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