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Elderly parents

Parkinsons diagnosis for MIL

5 replies

BogstandardBelle · 17/08/2018 08:00

My MIL has just been diagnosed with Parkinson’s, following a scan some months ago. My FIL went to the appointment with her, but tbh neither of them are particularly good at understanding or remembering what they are told at medical appointments (she also has bad osteoporosis and other things, so she has a lot of them) and they get very muddled about who they’ve seen for which ailment - they’ll turn up for an appointment expecting to “see about” her physio and it’ll turn out to be an info session about a scan etc instead. My question is: will they receive a written report regarding her Parkinsons diagnosis as a matter of course - something that DH can read through and explain to them (and understand more himself)? Should DH or his sister be getting in touch with her GP to explain how confused they are by it all, and how best to clarify things for them? They are very stressed as MILs care needs / mobility have become much bigger issues recently.

Thanks all

OP posts:
Greenteandchives · 17/08/2018 08:06

Can you contact Parkinson’s UK? They have a lot of literature available which explains various apects of living with Parkinson’s. There may also be a Parkinson’s Nurse Specialist in your area, who would visit and help with explanations.
Best of luck. It is a tough diagnosis, but there is help out there.

Chuggachuggatoottoot · 17/08/2018 08:14

How old is your MIL? If you don't mind me asking.
I would recommend speaking to with your MIL and asking if they would mind your DH or you speaking to the surgery on your behalf, this will definitely help as you will be able to get more information. They usually ask for a letter signed by the patient confirming it which you can take in.
My mother had PD.
I also recommend lots of physio but unfortunately you don't get much on the NHS.
If you need to ask me anything else I don't mind you PM me.

BogstandardBelle · 17/08/2018 10:39

She’s 76.

DH is visiting for a week: if he can, he can maybe get a dr appt and go with them to find out more. Will her GP automatically get a copy of the PD diagnosis?

Thank you, it’s a scary new world atm as she has been hale and hearty all her days until the last year or two.

OP posts:
Chuggachuggatoottoot · 17/08/2018 10:44

Yes GP get a copy from the hospital

TragicallyUnbeyachted · 17/08/2018 11:01

The local Parkinson's Nurse ought to be able to help. Also Parkinson's UK are helpful -- their newly diagnosed section has links on how to find support locally, what to ask HCPs, information for friends and family, etc. There will probably be a local Parkinson's UK group near them too and they can get advice there from people who have BTDT.

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