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Elderly parents

I am frightened my mum will die tonight.

72 replies

DowntonTrout · 27/12/2013 23:07

This will sound so silly.

Just as I was leaving my mum whispered "Look after yourself."

She has been unable to express any form of interest in anyone else for some time. The only voluntary sentence she has is "where am I?" Other than that she does recognise us and will smile or answer a question ( maybe not competently) with yes or no, but that's it.

Mum has not really eaten since August, not more than a slice or two of banana or a few teaspoons of porridge every day or so. But she has had no food at all for the last 9 days. Her fluid is down to 2 or 300 Ml.

I had sat and rubbed her hands with the hand cream I bought for Christmas, just skin and bone, I could feel each bone as I rubbed it in. She sighed and said "that's nice, I like cream." I sprayed her with perfume. She wasn't properly awake. Just sleeping and only opening her eyes occasionally when I spoke. So I told her I would leave her to have a little sleep, I never say goodbye, and she said that^

I think she is dying. Well, I know she's dying. But I just felt as if I had heard her speak for the last time. She said what mattered, what she had to say. And she expressed a thought. I can't put into words exactly, but it just feel that she was saying goodbye.

I have slept for 3 hours on the sofa tonight. I was so distraught that it exhausted me. I am afraid the phone will ring. She was calm and peaceful and sleeping, but her breathing was strange, and it is so much like the day before my dad died. I feel so silly saying all this when all she said was look after yourself, but that is so out of character and not something she has been able to say, or think, for so long, that I am convinced it is meaningful. Sad

OP posts:
DowntonTrout · 28/12/2013 00:34

That's comforting iammelting

Mum has someone waiting. It's not my dad- they divorced- he had God and that was enough for him. But mum has someone, her DP who passed away last year. He will smooth her way.

OP posts:
CocktailQueen · 28/12/2013 00:35

Hi downton, I really feel for you. I hope you and your mum have a peaceful night. Sending you big un-mumsnetty hugs. Xx

Pancakeflipper · 28/12/2013 00:41

Downtown - hugs.

CiderwithBuda · 28/12/2013 02:10

Thinking of you Downtown. Your poor mum. I remember your other thread about her not eating and the battles you were having to have her properly looked after. Sad

She may well have been having a final moment of clarity. As you say funny things happen around the time of death. Things we don't really understand.

ChippingInLovesChristmasLights · 28/12/2013 09:01

Downton - just popping in to say that I'm thinking of you this morning, I hope you managed to get some sleep.

peggyblackett · 28/12/2013 09:08

Downton, just wanted to say that I'm thinking of you. I hope you're managing to get some sleep x

oldbaghere · 28/12/2013 09:10

I am thinking of you Downton xxx many many hugs.

wewillmendit · 28/12/2013 09:27

Thinking if you this morning Downton. Hope you managed some sleep.

pudcat · 28/12/2013 10:01

Thinking of you Downton. Don't have any advice to give you. All this week we have been expecting a phone call but Mum will not give in and I can see her still being here this time next year. take care.

DowntonTrout · 28/12/2013 10:12

I slept ok thank you. Very vivid dreams but not of mum. I was trying to get somewhere and kept missing the train. Symbolic much?

Anyway, no news is good news. We have another day at least. Thank for thinking of me. I am calmer this morning.

OP posts:
Needmoresleep · 28/12/2013 11:10

I hope you can take comfort in the fact she has said goodbye.

So much time is devoted to the mechanics of caring for someone, and so often the personal connection is missing. I treasure the memories of a last conversation with my father two days before he died. It was unusually personal as if he had accepted the illness he had fought for so long. Your mother reached out to you through the dementia. Something really worth remembering.

DowntonTrout · 28/12/2013 11:28

Today I am not crying. So far so good. I am going in and will make the staff aware what I think is happening, because they were wrong about my dad when I had this gut feeling so I want to make sure everything is in place.

The dementia consultant is due to visit mum on Monday and I need to be clear, that if she lasts til then, she is not admitted to hospital and that the necessary drugs are there should they need to make her comfortable. They have fobbed me off over the last couple of months when I wanted to talk about an end of life plan and the LCP, but now mum has made the move to stop eating completely, we are 9 days into that, they will be forced to accept it is time.

My thoughts are ( again probably superstitious rubbish but...) there are 3 dates coming up. Her father died on 1st January, my birthday on the 4th and mum is 86 on the 9th. She may be holding on for one of those.

OP posts:
Heifer · 28/12/2013 13:14

Hi DowntonTrout. I completely understand how you are feeling. I lost my Mum 8 yrs ago. She was in a hospice for 1 month before she finally passed away on 23rd Dec. My DD was 2 on the 20th and I believe that she hung on for that.

Like your Mum she hadn't eaten or drunk anything for days before she passed away and I was told around 7 days before she actually died that she could go at any time. I decided that I wanted to be with her if possible so was given a room at the hospice to sleep (DH looked after DD).

I was told by the hospice nurses that quite often people would wait until they were alone to go, so I decided to leave my mum alone every couple of hours in case that is what she wanted.

As it turns out she passed way about an hour after my DD visited me at the hospice and said goodbye to her Nana (she didn't see her as we had the curtains closed as my Mum didn't look herself/good and I didn't want to scare DD) but my DD actually said out load "bye bye Nana"...

The minister and I were with my Mum went she finally passed and it was very peaceful. As good as it could be I guess (if there is any good way).

I would advice you to think about what you want, do you want to be there? I found that I had so many "what ifs" that I knew I wouldn't get over getting that bit wrong. I didn't think my Mum would want to go on her own but at the same time I wanted to give her the option just by poppng out to the toilet or lying down on the bed every so often.

Is staying with her an option for you? Can you sit in a chair etc or do you have actual visiting hours?

Thinking of you, it's a horrible time but I am pleased that you had that clear moment with your Mum.x

magimedi · 28/12/2013 13:33

I am not in the slightest bit 'woo' but I do think strange things can happen at these times.

I think you will be there if you are meant to be.

Sending you big hugs at this awful time. Try to eat a bit & make sure you have enough fluid.

Big hugs.

ChippingInLovesChristmasLights · 28/12/2013 20:15

Yes, maybe she is waiting for one of those dates. Tell her everything you want to tell her, don't leave anything unsaid x

TaraLott · 28/12/2013 20:16

Thinking of you Downton.

libertychick · 28/12/2013 22:16

Thinking of you Downton - hope today was ok. Flowers

DowntonTrout · 28/12/2013 22:45

Today was " normal" in as far as it is ever normal.

I spoke to the sister. Apparently mum is not typical- they have never seen someone present this way. She should be dead and yet she is a long way from those that lie in their beds for months, not moving or unable to communicate and developing sores. So they are unsure what is happening. She is living on borrowed time purely because of her intake and yet she is strong as an ox and physically, apart from the malnutrition, fit and they are sure the consultant will not withdraw meds and offers of food/ drink. The best she can say is mum could go tomorrow or in weeks.

Confused
OP posts:
CiderwithBuda · 29/12/2013 02:59

That's hard Downton. Mother Nature can be very cruel.

My mum is in a nursing home too and although not nearly as bad as your mum yet is losing her ability to eat. Still gets annoyed at my dad for things and still tries to have a laugh with the nurses but won't/can't open her mouth to take food or medication. I dread to think she will linger for months. We are all praying she just slips away in her sleep one night.

pudcat · 29/12/2013 09:42

We are all praying she just slips away in her sleep one night
I have done this for nearly a year now, but my Mum keeps going. She has stages of not eating and drinking, accompanied by more extreme confusion.

ProfessorDent · 30/12/2013 15:16

It is true that some people wait for privacy in order to pass away. My parents were tending to my granddad all day some 30 years ago, he was at his home, having been in a few (awful) nursing homes the last few months. They went downstairs for a chat, half an hour maybe, that was all it took, that's when he died. It wouldn't be right to think, well, "If only I'd have been there", for some I think it is a private moment.

FannyFifer · 08/01/2014 23:00

How are things now?

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