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Elderly parents

Cant decide whether, or in what form, to bring mum home for Christmas. (She ate my L'Occitane hand cream)

25 replies

QuintessentialShadows · 19/12/2013 21:32

My dad said yesterday that he did not want to make a decision regards to bringing mum home for Christmas dinner until both me and my sister had met her to see if she has deteriorated much.

Well, I saw her today. She was happy to see me, did not know I am her daughter, so nothing new there. But she was more in her own world than before, not able to keep any kind of conversation.

Conversation consisted mostly of her having a greeting card in her hand, pointing to various places on the card saying stuff like "And then I went there, and she was here, and he brought this, and I did not like this one, but I had been here, and she went there, and then he put it there." All along while pointing. There is nothing much to respond to that sort of stuff. There was finally some sense when she rubbed her hands and made a coherent sentence:

"My hands are really dry"

I pulled a small tube of cream out of my bag and squirted into her hand and said "rub it in" and she promptly licked it off saying "Yuck".

So, yes, she has deteriorated a great deal. She also does not realize she has her own room, she has forgotten her own bedroom in the home.

But I think it is a tough decision for my dad, if we were to say, "no, lets not bother with mum this year" We cant really do that.

So, I am really at loss what to do. Is it ok to just bring her home for dinner, play it by ear and bring her home when she seems tired?

That would mean not being present for opening gifts.....

OP posts:
CMOTDibbler · 19/12/2013 21:39

I guess the thing is, what will your mum get out of coming home? I'd guess nothing. And what would the rest of the family lose from you being out a lot of the day driving, and all having to deal with her etc.

And if your dad told you not to make a decision, then he almost undoubtedly feels that not having her at the house is the right decision, but wants you to agree.

QuintessentialShadows · 19/12/2013 21:45

Picking her up will just be 30 minutes round trip.

The thing with alzheimers, or any memory illness is that we have to forget about doing stuff for the sake of creating memories, but only live in the moment, and enjoy the moment. I think she will enjoy the moment. She wont remember it later, but the kids will, and my dad will.
My sister and I will mostly be stressed.

It is the aftermath. How will we feel about just visiting her for Christmas, as opposed to taking her home to enjoy the food and the atmosphere with us?

OP posts:
scoobysnack1972 · 19/12/2013 21:49

This is a really tough one and I can understand what you are going through. I remember the feelings of guilt we had when my Mum missed special occasions when she needed to move into a care home due to early onset Alzheimers disease. We felt terrible when we decided that she wouldn't come to my brother's wedding. It helped a lot when the carers explained that she would feel very confused and disorientated being away from the care home. We handled Christmas by spending the morning with Mum in the care home (Dad stayed and had a small lunch with her) and then having the afternoon at home with Dad The first time felt very strange but then we got used to the new routine and it was nice to have some time focusing on Dad in the afternoon too.

Sirzy · 19/12/2013 21:50

I agree with Cmot.

Its a horrible illness, and having to make such decisions is hard but chances are it would simply stress her more and leave her upset. Much better to make part of your christmas to go and visit her.

My Grandma had Alzhimers and we had to make the decision that my sisters wedding and her husbands funeral would both be too much for her to cope with. Horrible to have to do but it was in her best interest.

If in doubt though talk to the staff, see what they think would be best. Have you also considered the practicalities of things such as toiletting (dependant on her mobility/continence)

InTheRedCorner · 19/12/2013 21:51

I think she will enjoy the moment. She wont remember it later, but the kids will, and my dad will.

That would be the decider for me I think.

I have no experience though so not sure if you and your sister being stressed would have a bigger impact on the day, I really feel for you.

StillNoFuckingEyeDeer · 19/12/2013 21:55

It's tough.
I'd worry that taking her away from her home to somewhere that will be unfamiliar might unsettle her.
Yes, she'll probably enjoy the moment, but couldn't you take the party to her for a while in the morning?

QuintessentialShadows · 19/12/2013 21:55

We wont be stressed if dh and sis goes to pick her up as I do the finishing touches on the dinner.

Thinking about it, it will be much worse to go see her, as dad needs a disabled transport, and it will be difficult to book it for Christmas. Sometimes, because they are adapted large taxis that can bring a motorized wheelchair on board, the waiting time can be long, between 1-2 hours, and that will really ruin things. It will mean dad sitting home alone. Or our schedule thrown totally overboard by waiting for taxis.
Not sure we can let that happen either. It will really dampen things.

OP posts:
CiderwithBuda · 19/12/2013 22:05

Hi Quint. It's shit either way isn't it?

My dad took my mum to my sisters last year on Xmas day. It really threw her. She spent the whole trip back to the nursing home telling them they were going the wrong way and home was the other way. She then got very depressed - for weeks. And went back to asking for her key and some money for a taxi. Heartbreaking.

We didn't think it would be a good idea to repeat this year as she has deteriorated a lot over the year but dad still wanted to. It's taken a few talks to make him realise he is doing it for him not for her. My mum can't even eat now as she is losing her ability to chew and swallow so is on a soft food diet.

It's a horrible decision to have to make. I'm not going home this Xmas and my dad is going to my sister again. She said she would let him decide although she didn't think it was a good idea. My dad's cousin and a neighbour have also told him it's not a good idea.

JeanSeberg · 19/12/2013 22:06

I lost my mum to dementia this year so I wish you luck whatever you decide.

BettyBotter · 19/12/2013 22:28

I'm sorry Quint , it's shit.Sad

Rather than trying to work out what's best for your mum, would it make the decision easier to think what's best for your dad? From your OP it sounds as if your dad is anxious about bringing her home. What do you think he would honestly feel if she didn't come? (If genuine disappointment perhaps you should bring her. If guilt tinged with relief - perhaps you shouldn't). about her coming? Would it be distressing to your dad if she is unhappy or disturbed if she comes home?

Sadly your mum won't know if she misses the family Christmas dinner and travelling to you could possibly be confusing and upsetting for her. She'd forget the distress but your dad wouldn't. Sad

Perhaps the very kindest thing you could do is take your dad to see her on Christmas Eve/ Boxing Day and reassure him that you are taking the decision out of his hands and that it is the right thing to do not to bring her.

I'm so sorry.

QuintessentialShadows · 19/12/2013 22:35

I need to speak to him to find out what HE really wants.

He is visiting her 2-3 times per week, but never for very long, as he finds it really exhausting.

Sorry to see so many of us in similar situation. Sorry about your mum Jean.

Buda, your mum has deteriorated rapidly, too. I remember us in the "early days" on threads sharing experiences. Sad

OP posts:
pudcat · 20/12/2013 21:29

It is difficult to know what to do for the best. You might find Quint that by bringing your mum home for Christmas dinner will add to her confusion and make her worse. Have you had a word with the Home to see what they think? I will visit my Mum tomorrow for her Carol Service, my sister will go on Monday (if she doesn't I will) and then I will go on Boxing Day. I also find it very exhausting. Mum was very bad on Wednesday. All the food was poisoned etc.

HamletsSister · 20/12/2013 21:32

Could you bring her to your house for a big meal a day or so afterwards to avoid the stress of the day but to mark it for her? The children could show her their presents and you could sing some carols, look at photos etc but you would be less pressured and your Dad could relax for the day.

QuintessentialShadows · 24/12/2013 20:35

Well, update.

We brought her home. And took her back earlier than planned. She was son doo-lally that it was not workable. But I am glad we did, because we are now at the point where we can say "Ok, this was the last Christmas we took her home"

It just isnt workable. Cooking Christmas dinner which takes 3-4 hours, visiting cemetery and lighting candles, bringing mum home, eating the dinner, then coffee and cake, followed by unwrapping of presents. Too much. We took her back to her care home after coffee and cake before unwrapping presents, because she was too knackered to make any sense. We could barely get her to walk to the car. Her coordination was just gone by then. My husband had to carry her down the steps from our house, as she refused to walk down, she did not know how to do it.

So, that was that.

Will now go and watch the Pope celebrating Mass from Rome.

OP posts:
IThinkThat · 24/12/2013 20:47

How very difficult for you all. It's impossible to know what you would do unless you are actually in your position. I guess you just have to trust yourself and your own decisions.
Thanks

Needmoresleep · 24/12/2013 21:11

You tried. I hope you go on to have a lovely Christmas day. Your mother will probably be far happier in familiar and unchallenging surroundings.

nevergoogle · 24/12/2013 21:22

Quint, you are an amazing daughter. Lots of love to you and your family x

Having our own issues here. Mum is here for christmas but her co-ordination and walking is all over the place. I'm holding back the tears to watch her deteriorate. Baking involved baking paper rolling out over the kitchen floor, or massive clumps of butter spread on the kids sandwiches. Little things, fine really.

But people in the supermarket are so rude. People tutting when she doesn't move quick enough, or laughing as she tries to get her coat on unsuccessfully.

You know, this time last year she attempted suicide and spent 3 days semi conscious in hospital. If this year, she takes a little while to get her coat on so some stroppy woman has to wait 30 seconds before sitting down to her mince pie in the cafe, then so be it. I'm just glad she's still around.

QuintessentialShadows · 25/12/2013 11:23

Thanks.
Sorry to hear about your mum NeverGoogle. It is so difficult to see you parents so vulnerable, and other peoples impatience and lack of empathy.

I cant begin to tell you how frustrating it is to cook an elaborate meal, and have to serve 7 people, and at the same time keep your mum away from everybody's plates. Fingering and playing with other peoples cutlery and plates, picking the food out of their plates, and spitting out bones onto other peoples plates. Stirring her fork and knife into all the serving dishes on the table, putting her food back into other serving dishes. In the end all the food was moved off the table, with the result I had to run up and down back and forth for every spoonful of cranberry sauce, sauerkraut, steamed apricots and prunes, a long with cuts of meat (due to where I was sitting and the layout of the table), and wine. While keeping her off my own plate.

We have an eat in kitchen, it was a bit squashed, but decided it would be easier to eat in there, rather than carrying food into the dining room - a corner of the living room, which is generally not in use for other stuff than parking my dads outdoors wheelchair.

Mum was worse than a toddler. And become huffy if somebody said, "please leave my plate alone", or "Please dont dump your stuff on my plate", or "please can I have my plate back." She started to argue, threaten to leave, said nobody loved her, if this was how it was going to be she would never return. etc. She was deeply offended that my 8 year old would not let her feed him food from her plate with her fork/spoon.

The only thing I am grateful for is that she did not soil her nappy, she realized she needed the loo, and we had medical gloves in the house that I could use for wiping her bum.

She refused to move from the dinner table, we just could not get her to come with us into the living room. When we hoped she would follow, she was upset to be left behind. So, we decided to just have coffee and cake straight away at the same table.

Having coffee and cake was equally frustrating as mum decided to play with all the plates on the table, had to try to lick all the spoons, and my kids refused to eat from plates she had played with, and I needed to get fresh ones out. She had to drink from all the glasses, and took my youngest sons drink and poured into the foil from a mince pie, and the rest in to her coffee. Then her coffee tasted horrid and she was offended I had given her terrible coffee.

She still refused to come away from the kitchen to open presents. So we decided to just take her back to the carehome. She was obviously not enjoying herself, and exhausted.

That was another excruciating experience, as she was not cooperating, I kept dressing her, and she got undressed again. She refused to walk down the stairs, just kept saying "bye bye" and laughing like it was me and dh leaving, not her.

Never again. I dont think she is fit to come out for dinner. Not at Christmas. Maybe out for a coffee sometime, but not Christmas dinner.

OP posts:
CMOTDibbler · 25/12/2013 18:39

Oh Quint, all I can offer you is some virtual hugs.

QuintessentialShadows · 25/12/2013 19:33

Thanks, Cmot!

OP posts:
nevergoogle · 25/12/2013 21:00

happy christmas quint x

CiderwithBuda · 26/12/2013 09:04

Oh Quint. What a day. But at least you now know.

It's a horrible illness/condition.

Sorry I didn't get back to the thread earlier. My mum has deteriorated a lot. It's two years today that she was taken into hospital. My sis went to see her on Xmas eve and she kept saying she will never get out of th nursing home. We know she won't but she is still hoping that she will.

I haven't even bought her a Xmas present yet as I have no idea what to get her. Last year I made her up a hamper of lovely chocolates and biscuits etc. but not point in doing that this year as she can't eat them.

CiderwithBuda · 26/12/2013 09:05

Never google - sorry about your mum too.

pudcat · 26/12/2013 09:37

So sorry Quint that it didn't go too well. But at least you had your Mum home for 1 more Christmas and you know that you did your best. Cider I have just got my Mum some body wash etc that the NH wash her with every day. It saves her pension.

WhoGivesAMonkey · 10/01/2014 09:58

Sad. Sorry to read this.

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