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Elderly parents

why is it so complicated ???

2 replies

throckenholt · 09/03/2012 10:59

Mum as end stage cancer - should be entitled to end of life continuing care through the NHS. She also lives on the boundary of 3 counties, a, b, and c. She lives in a, gp is in b, and she has now moved into a care home in c. As part of the move to the care home she has changed GP. Lots of people must do similar in that area - they should be used to handling it !

But somehow no-one can work out who should set up the continuing care. GP/district nurse (in county b) say talk to social care in county a, social care in county a say it is NHS. GP then say try macmillan (why them ? - they are a charity - it is NOT their call !). Macmillan say talk to district nurse. District nurse finally says its too complicated - now it is up to social care in county c (or may district nurse in county c !). Why ?! Social care in county a have already decided it is NHS now !

It's not like she is moving from Bristol to Newcastle - they are neighbouring bloody counties - surely they must deal with each other all the time ?!

Aarrrgh. I really don't need this when my mum is dying of cancer, and I also have my own life to cope with (kids, work etc etc).

Rant over - it helps to get it out at least :)

OP posts:
LilRedWG · 09/03/2012 11:04

:( So sorry to hear this throckenholt. As you say, you really do not need this at the moment.

Call Macmillan back - tell them how you are struggling and ask them to help you. Explain how hard you are finding it to get anyone to help you. Ask them to make a few phone calls for you. Failing that, go to your GP and ask for help. You need support at the moment, not just your Mum. Alternatively, is there anyone who can make the calls for you? DH?

Sorry I have no magic answer for you.

Take care.

throckenholt · 09/03/2012 16:59

thank for the moral support :).

It now seems the care home has asked for the assessment (which I think has already been done in counties a and b) and it can take up to 3 months to get done !!!!

Not sure mum even has 3 months left.

It just annoys me so much that the system can be so complicated. Surely there is a better use for Macmillan nurses than chasing this sort of thing up.

Ho hum - maybe next week I will manage to sort it out - for now I am going to forget about it this weekend.

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