Hi there,
Our eldest son recently turned 10 and attends a countryside prep in Oxfordshire. He is an extremely social, sensitive, charismatic bright and athletic/sporty boy who has a combined ASD/ADHD diagnosis and sensory processing challenges. He has his honed his masking skills to such a high level that both his current school and former London school were almost disbelieving of the picture we presented of him outside of school hours - extreme anxiety, emotional dis-regulation, controlled eating, obsessive tendencies, physical discomfort, verbal and physical lashing out - I could go on! We have been at our wits end now for years as we try our best to parent him with the empathy and patience he needs but it has been hard and exhausting to manage family life and we have often got it wrong. We have 2 other younger children and have moved from London to the country in a bid to give the kids a calmer day to day existence and swerve the 11+ scenario which would have been too much for our eldest.
Since starting year 5 things have escalated to a point where my son is unable to mask in the same way and the wheels are starting to come off in spectacular fashion. He is suffering with such extreme anxiety that he screams and begs not to go to school on a daily basis and has now begun to meltdown at the school drop off on days where he just cannot cope. Teachers have now seen this and appear shocked at the level of distress given that they have only ever seen him as happy and confident. He is pretty eloquent when he screams of school as a "prison" which forces him to sit through "tedious lessons" and barely have any fun or enjoyment for 8 hours a day. The kids are expected to move to a different classroom for each lesson and are taught by a variety of teachers with different teaching styles (like senior school). It is a long day with prep done at school at the end of the day before a late pick up. Attempting to do prep at home has always been impossible.
I am at my wits end in terms of knowing how to move forward. The reality is that elements of his current school will not change and if he is to stay there he needs to deal with these. However, there are things about the school that suit him down to the ground - the sport, outdoors approach and lack of pomp and ceremony are a great fit for him. A specialist ASD school would not seem right, nor would home schooling.
I would be hugely grateful for any advice people may have as we cannot continue like this - the stress level in the house day to day is so very high that it is damaging for all of us, not least to him. I can't allow him to school refuse but throwing him in to the lions every day feels overwhelmingly wrong. I don't think he could board at this stage as he wouldn't be able to keep his mask up day and night, he needs down time.
Thanks so much for reading and fingers crossed some people have been here before me and have ideas!