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Does this sound like dyslexia?

10 replies

SparkleM · 25/08/2020 07:42

DS (8) struggles with reading, writing, spelling. Overall he has developmental delay - young for his age, late to develop language etc. He has no diagnosis and the delay is assumed to be due to early years experience- being in care / adopted.

He has poor phonics awareness. We’ve been doing games, flash cards, online systems daily and reading consistently for the last two years (reading with him daily since he started school). For example we’ve been going over phonemes such as “air” and “ear” since before he started year 2 - brainstorming words they appear in, writing them, spelling them etc - he can read both as words but struggles to recognise the sound as part of a larger word. In lockdown it felt like the repetition and structure of home schooling moved him on. He’s fallen back since school holidays despite us still reading each day.

He is approx two years behind. He guesses words constantly - even short ones “of” can become “for” or “on” for example even though he’s read it thousands of times. He unsuccessfully decodes words putting in letters that aren’t there (often a t or a r). He finds longer words easier sometimes- maybe because their shape is distinctive. He will forget a word that he’s read in the last sentence even though he has an amazing memory generally and we’ve sounded it out etc). He sometimes gets letters backwards - b d p q and 9 although this has got better. He can read words that kids would spell in Year 1 but he knows them by sight and so progress is slow as he not using phonics so cant apply what he knows to new words. He’ll often read the end of a word wrong eg add “ed” when it’s “ing”.

He doesn’t read independently. He saw me reading the other day and thought I was pretending as I wasn’t saying the words.

He is a very reluctant hand writer. His writing isn’t good. He needs to be reminded about punctuation, spacing things out, misses out words and has poor awareness of whether a word will fit when he gets to the end of a line. He struggled to read his own writing back. He can verbally tell me a story using good imagination, detail etc with no problems.

He’s better with maths (but still behind). School SENCO isn’t great. They have never suggested it could be anything other than delay. They have provided some TA support as part of a group but it doesn’t feel as though they change gear / identify imaginative approaches when what works for the majority doesn’t work for DS.

For those of you with kids who have a dyslexia diagnosis - what triggered you getting an assessment?

OP posts:
Malmontar · 25/08/2020 12:29

He is at the age where a diagnosis would be helpful to you in accessing support. You don't want to diagnose kids younger than 7/8 as sometimes difficulties can be blamed on poor teaching.
Unless the reason isn't developmental eg tumor I've found professionals in the UK care very little as to why a child has for example developmental delay. They just concentrate on their strengths and difficulties. This is very different to say, continental Europe.

I would either really push for the school EP to see him of fund this yourself if you can.
Alternatively find a dyslexia assessor. They can be found on the dyslexia association website and can also give you a formal diagnosis but are often cheaper than an EP.

It's unlikely he would get an EHCP but applying for an EHC assessment may make things quicker. It sounds like he may need a SALT and an EP report. Both of those can be requested during an assessment for an EHCP. They would assess him but would probably say he doesn't need a plan unless something drastic is found. However, you will have the assessments which are helpful. You may need to appeal to get to the assessment stage but its often quicker than waiting for the school EP.

Also the reason why school support may not be working is because children like your son need very targeted support, especially if there are also language difficulties. This has been proven by countless studies done on children with dyslexia co morbid with other disorders.

After8itsgrownuptime · 26/08/2020 07:04

It’s hard for us to guess but from the things you describe it’s possible.
My son has dyslexia and hyper mobility . His handwriting has always been bad and his reading wasn’t great but the real trigger was the fact that he couldn’t decode information. His maths is amazing but from aged 8 when they started to get worded maths questions, his scores dropped off the scale (think going from scoring 90% to 50%). For example
If you asked him what was 250 minus 125 he could tell you straight away. Put it in a worded question like ‘Mary has 250 coins, she gives away 125, how many does she have? ‘ And he wouldn’t know how to take the information to work out the answer. His short term recall is also bad so he finds it hard to retain spellings and new words. The only real way to know would be to see if school would do a LASS test (you can even find these online) which would give you an indication of dyslexia before you pay for an Ed psyche report . Ultimately you’ll have to get an assessment done and this takes time if done via the LEA. Other option is to pay privately but they aren’t cheap. However I will say that getting one done has been amazing for us. Extra time in exams, readers for exams and he now uses a laptop in class so can concentrate on the work and not trying to write neatly

Spiderseason · 27/08/2020 23:20

I don't know op.
Echo what other posters said, my dd does same ish things.
I signed up to reading chest to keep her school books going. She's got to level 8 and I'm not sure she's able to go beyond that for a while.
She was on 6.
We also got her to write two words a day from high frequency words. We did flash card and went right back to basic books to give her that achievement... Of reading a whole book.
Phonics don't work for everyone.
Usual advice is to check hearing, look up apd.

Check sight, perhaps even optometric behaviour (sp!!).

Also look up retained primary reflexes and Chris Evans.

MyShinyWhiteTeeth · 27/08/2020 23:51

I think this NHS website is good.

www.nhs.uk/conditions/dyslexia/symptoms/

LolaSmiles · 28/08/2020 22:43

It sounds like dyslexia could be present or it could be general developmental delay. Either way, assessment would be a logical starting point in my opinion.

If your child has an assessment and is diagnosed then that opens up pathways for support, however it's also worth being aware that some SEN support is needs driven not diagnosis driven. If your DC has SEN requirements then school should be supporting them.

If you've not already had a look, the SEN board on Mumsnet has lots of parents who've been in similar positions and have a wealth of knowledge and experience.

Dontiknowit · 29/08/2020 18:59

Sounds like delay to me as these are very normal things, just for younger children.
Either way he should be on the send register and getting extra help.
Whether he has a diagnosis of anything doesn't actually matter much at primary, they just teach to the child's needs. Teachers know their kids so well, doesn't matter if there's a label on it.
If you can afford it, a bit of tutoring would help.

CaitF · 17/09/2020 11:21

This sounds similar to my DD... she is so bright and articulate but when we read together she trips up on the common words that I would think she should be able to read by now?? I mean words like 'that/then' 'of/for' which she often gets confused about...

CaitF · 17/09/2020 11:22

Does anyone know of any programs that can help with this? I am at a bit of a loss lol as she is doing so well in everything else but has hit a wall with reading :(

SparkleM · 17/09/2020 11:40

We found reading eggs website programme helpful. You can usually get a free trial period.

OP posts:
CaitF · 17/09/2020 11:41

Thanks SparkleM, I'll look into it I think...

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