My DC is in Y6.
DC has been diagnosed with an orphan disease(incredibly rare diseases are called orphan). It isn't Life threatening but it is life changing.
We have had numerous trips to a specialist hospital over an hours drive away and DC has had time off for tests and biopsies.
The medical team want her to have an op that will improve her life. The op will impact her writing arm for a significant time. Her life is restricted currently.
We have been given a date that clashes with the SATS. DC is a bright child and is expected to ‘exceed expected’.
I don’t like the pressure the school are putting on SATS -booster classes until 4 everyday since the Easter break.
The teacher discussed how if DC was off for 5days after the last test she wouldn’t be required to sit them. As she needed a week off after the last biopsy we are expecting to need more time after this much bigger op.
School have asked this morning if we can move the op to the following week so DC can still sit the SATS.
We want this done ASAP so she is recovered ASAP. He life is limited at the moment, no sport or outdoor activities.
I feel like the school are putting their statistics above her needs.
What do I say?