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Fear of using the toilet now

8 replies

idontknow202 · 04/05/2026 22:44

This board has been really helpful it working through my thoughts so I wondered if any one has any suggestions with this please -

Daughter was diagnosed with anorexia during a few week stay in hospital last month. She's really struggling with fluid in take , discharged with a plan to work on 1 litre a day and 3 points of eating. The fluid intake is not going well, another day of around 750ml but she has said she is scared to use the toilet as she feels so vulnerable on the toilet, she's so scared, she can't go. She was put under pressure in hospital to catch all her wee to monitor her hydration levels which she absolutely hated and it put her off drinking so she wouldn't wee for them to catch. But this hasn't been consistent we have had some days of reaching her litre and having a few wees a day. But this evening she got really upset and said she's can't drink any more as she can't take going to the toilet anymore. She's too scared when she sits there to actually go for a wee.
I've checked if she has any signs of a infection, temp, aches, that would hint to a wee infection that perhaps she doesn't recognise as one. But nothing.
Last year she was diagnosed with OCD and the germs stopped her using outside toilets, only ours at home. But this settled hugely as her ED got better last year. Could this be something similar, but she hasn't mentioned germs as such. She this overwhelming fear and she looked resolute this evening that's it with drinking.
We are seeing the ED team tomorrow, I'll email it the morning and let them know about this but I just wondered if any one else had any thoughts I've not considered.
She does have ASD but this isn't her typical presentation with toilets, she's used them previous to last year fine.
Sometimes I can get a bit fixed on is the the asd, the ED, the OCD, or just none and a new problem I don't know where to turn to help for?

Thank you for any thoughts on what to explore with this.

OP posts:
OhLookLouis · 05/05/2026 06:43

Bless her, poor girl. What about buying a new toilet seat? Something comfortable, a soft seat maybe? Make the bathroom a welcoming space. This isn’t uncommon, even without the ED. With regards to her fluid intake, will she eat lollies and jelly?

Gemz1010g · 05/05/2026 09:00

I agree, try to make the bathroom as comfortable as possible for her, give her as much privacy in the bathroom as possible as well, even if she spends a while in there let her be. With anorexia, bodily functions are very hard, but all you can do is be supportive and try and work with her.

idontknow202 · 05/05/2026 13:20

Thank you both I will try that, i'm desperate to try anything. I have offered swapping rooms with her as we have an ensuite and no one would know how long she was in there - she said no. I have emailed the team ahead our meeting this afternoon and hopefully they can have some suggestions too. We have a shower screen that is glass but reflects your reflection while you sit on the toilet, I have ordered some sticky material to cover that up so she's not appearing to watch herself but I haven't asked her Incase it's not that and then draw her attention to that as well!

OP posts:
Gemz1010g · 05/05/2026 17:22

That mirror probably doesn't help, if you already know she takes a long time in the bathroom, it might be worth trying to talk to her about it, I know I was really constipated at the height of my ED and it was really painful to go and not that often

DierdreDaphne · 05/05/2026 17:29

Is she showering? This might horrify her of course - but maybe it would help ? You could tell her it's fine to wee in the shower if she prefers it, lots of people do (eg me 😁)

DierdreDaphne · 05/05/2026 17:30

(sorry if that was inappropriate, it just struck me it might help)

idontknow202 · 11/05/2026 21:13

Thank you both for the suggestions, she's still feeling really uncomfortable but we are making tiny positive steps. I have shown her how to push the shower door the different way and make sure it's always left like that after we all shower so you can see the reflection. She will now drink a whole 500ml bottle In one go and then we all leave the house half an hour later discreetly so she has a free house to go with no pressure. She knows she can use our ensuite any time without asking and we have a rule if our bedroom door is closed no one comes in so she knows she can close it and no one will try.
You're right about the constipation, it was her going once every 10 days but seems to be about every 5 now and again I talk it through with her and we go out at the right time for an hour so she has no pressure.
Thank you for the ideas xx

OP posts:
Gemz1010g · 17/05/2026 09:13

idontknow202 · 11/05/2026 21:13

Thank you both for the suggestions, she's still feeling really uncomfortable but we are making tiny positive steps. I have shown her how to push the shower door the different way and make sure it's always left like that after we all shower so you can see the reflection. She will now drink a whole 500ml bottle In one go and then we all leave the house half an hour later discreetly so she has a free house to go with no pressure. She knows she can use our ensuite any time without asking and we have a rule if our bedroom door is closed no one comes in so she knows she can close it and no one will try.
You're right about the constipation, it was her going once every 10 days but seems to be about every 5 now and again I talk it through with her and we go out at the right time for an hour so she has no pressure.
Thank you for the ideas xx

This is going sound crazy but it might be worth asking how long she needs to be able to go to the bathroom, when I was really bad with my eating disorder, the day I had to go to the bathroom (she will know by the stomach ache) it took longer than a hour and really was difficult and painful.

Sorry she's dealing with it

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