Hospital advice

[idontknow202]

I would really appreciate some advice as I'm just not sure what to think anymore.
We have been admitted into hospital since Wednesday after a sustained period of not eating or drinking (7 days) before for my child.
Since being here they say we are going to have to put a drip in, they get upset, they give them a chance to try drinking to prevent the tubes, they have a few glasses and we rumble onto the next day. Each day the same happens. Today they couldn't manage the drinking. They accepted a drip. Took 6 hours (of upset waiting for this to happen) for the doctor to arrive to do the drip. He said I don't want to give you an easy way out and I want a pinky promise you will try a small cup. And left. They can't drink it.
I feel like it's a total waste of time being here and there is no end in sight. I have children at home I'm missing it's frustrating being in hospital.
I will do anything to support my child but wondering what else I can do to support. The ED haven't made it round to see us yet but they're hoping they will tomorrow.

Thank you for the messages.

This morning was very productive, very open and very supportive.
They explained the lack of formulated plan was because of how she responds to a plan and struggles to adjust to the plan being adjusted and sees that as a set goal which the becomes demand avoidance and is harder for her to meet. She also hates new people so they are trying to ease her in gently. They could see her everyday if that would be helpful but they thought it wouldn't but we are going to increase to 2 times a week so that's good.
She is heading for an NG to stabilise her as her heart is struggling but hopefully that can be supported at home with additional community support. But we shall see one day at a time.

I have tried to access private support for her, beat gave us a list and I contacted several people and the without her engaging they wouldn't see her and also a fair few said she was too severely restricting to be safely support only with them. I would pay anything at all to get her help I really would.
I do feel better so thank you for listening and being so supportive!

It does sound as though they understand your dd, which is good. I’m so sorry she’s struggling so much.

Is there a reason as to why you would want someone privately without continuing with CAMHS support? Much as they don’t like you doing this and will tell you that you can’t, they can’t actually stop you. I remember someone on a previous thread, perhaps support thread 13, saying that she told CAMHS she wouldn’t give up the private support. Whilst she said they weren’t happy, they couldn’t really do anything.

I thoroughly intended to use CAMHS and the ED coach. Dd had other ideas and signed herself off from CAMHS. I just didn’t intend to tell them. If you do decide to use someone privately, my advice would be to keep it quiet. If you want the details of the clinic dd’s ED coach owns / runs, please let me know. She has 20 plus years in patient and definitely works with the hard cases, and as I said, specialises in working with clients with ND.

I echo the don’t tell CAMHS!

I was really pleased to read your update. You sound a lot more positive and you can read you feel more supported.

i really think the feeding tube will help you all. It’s going to take its toll on you having to see her so poorly. It will be great if this can be managed at home, but as you say, one day one hour at a time.

Thank you for updating us,I have been thinking of you xx

@idontknow202 I am really hoping things are staying positive for you.

I remember bank holiday weekends feeling very long, so I hope you are managing to enjoy the sunshine xx

I was just talking about hospital on another thread and thought of you. Sending you strength and support cx

Hello, just wanted to check in. I felt positive for the shortest amount of time in terms of support - absolutely nothing further has happened with the register thing but the frank conversation the two sessions she's had with the ED have been much more productive. She understands has anorexia now and they believe her which is massive. The team has been hit with sickness and leavers so they can't see her every week but we've worked really hard in the last few weeks.
First the first time we've had 7 days on self made meal plan she designed but being 1600 cals and including certain food groups and a "uncomfortable" and the other meals are very healthy and the same everyday.
She has gained 0.5kg and has had a good few days without chest pains, so I feel like perhaps we've turned a corner.
She has been desperate for a dog for a while - and has proved a great distraction for working through tough emotions, and longer term to get well enough to be involved in her walks in a few weeks time and we are making the most of being off together from work and school and have something to do together that isn't food focused.
She's working so hard working through the really hard emotions coming with eating more, she's an emotional wreck which is understandable. I found out she was getting up at night to exercise which we've stopped by sleeping in the same room for a few weeks.
It really helps to put it down on here thank you!

@idontknow202 so lovely to hear from you and I’m so glad you’re home.

how lovely about the dog! I really hope you continue to get the help you need.

I find typing helpful too, it’s nice to know others understand what you’re saying. We centrally do xx