@twentyonethirteen
@Valleyofthedollymix is spot on. I've the 'Instant WFH' app on an old android phone (there doesn't appear to be an app for iPhones), & it's calculating a WFH of 63.57%. My daughter was hospitalised at just under 68% WFH first time round. 70% is generally the threshold for hospitalisation, from what I understand.
I've lurked on this thread for a long time, drawing comfort & also grieving alongside those of you going through the same thing (at the same time as grieving for my girl & myself too). I know so well the trauma, heartbreak, anger, bewilderment, resentment, jealousy, desperation & more that we all experience.
A little about me & mine. My eldest DD went into crisis in June 2021, seemingly out of the blue (as far as we were aware at the time). Over the course of a couple of weeks it became apparent that she was restricting to 200 cals p/d, then once I'd taken the scales away, 150 cals. I didn't know she was also purging. Trying to get her seen by the GP wasted weeks as he wouldn't do face-to-face consultations. We eventually ended up at A&E (for a 2nd time - sent home by Urgent Care the 1st time with advice to see GP ASAP), sent home as her obs were just about normal, then rung 36 hours later by a CAMHS Nurse to say we needed to take her to Paeds ASAP for refeeding admission. She was in for 19 days. Home for 3 short weeks, during which she started losing again. Then CAMHS called to say they'd got a bed for her at the Priory NHS ED unit. She was admitted 6 days before her 14 birthday, which pretty much broke my heart - she was so desperate to wait til after, but we were warned another bed might not come up for months. She was at the Priory til early Dec, then back home & back to school full-time - too much too soon, & she stopped being able to deal with going into school more than 1 or 2 days a week. Fast forward to June last year & she was discharged from CAMHS, still 2.5kgs underweight (her target is 87% WFH as set by the Priory, due to the low centile she's naturally always been on - though she still thinks that 87% is far too high!), because she 'wouldn't engage' with FBT. She just about held the same weight over the summer, then started Yr11 in September '22 determined to attend school, & boom - fully triggered ED (she'd never recovered, more held it at bay). She then had a SALT assessment & a Selective Mutism diagnosis - which put the whole 'wouldn't engage' with FBT issue into a different light.... The CAMHS Therapist had labelled her as stubborn for refusal to engage 🙄GP & school then re-referred, & 3rd Jan this year we had another initial assessment (once you're out of the system you're treated like you've never been in it), & she's just been readmitted to CAMHS for FBT again. So, back on the merry-go-round once more, just hoping that something this time is different. She's had a private Therapist since discharge from the Priory who thinks there's ASD in the mix. She was diagnosed with severe OCD while in the Priory & is medicated. I think she probably also has a form of Sensory Processing Disorder too. My youngest DD is 11, & dyslexic with a EHCP - but thankfully appears to not have any of her sister's issues or disorders. Oh, & I'm acrimoniously divorced from their father since 2016, who hasn't dealt with any of this particularly well (understatement of the decade)!
Apologies - that was a massive essay! Feels good to unload!!