Hi all, wanted to ask for experiences others have had of being both patient and HCP.
I’m Medical, recent op for prolapsed lumbar disc. I’m finding being a patient difficult, not maybe not for an obvious reason! I feel like whenever I seek medical attention that the automatic assumption is that I either know exactly what is wrong and have a definite plan of action in mind (I just want to be the patient!!!!!) or even worse, that I’m hysterical, a hypochondriac or exaggerating.
I’m in hospital just now recovering from lumbar discectomy. Prior to op had been in a great deal of pain, unable to stand fully erect, reduced to hobbling less than 30 metres with a stick, up 3 times a night crying with pain.
It started in Spring, gradually worse. Several GP appts, was ‘reassured’ repeatedly until I snapped and said I would self pay private. Large L5/S1 prolapse, here I am now, post op I’m pleased to say much better.
At every single turn I’ve had to fight to be listened to, feel anyone I’ve interacted with has downplayed my symptoms, everything has been a battle.
In fairness most of the nurses have been lovely, although post op I could tell they were thinking I’d manage on low dose analgesia. That was until they actually saw me howling and sobbing trying to turn on my side to get to the edge of the bed to try to stand to go to toilet. Then thankfully the morphine came out. Surgeon told me yesterday I’m probably on too much analgesia despite not examining or watching me try to mobilise at all.
Is this just a female patient experience that feels worse because I’m in the trade? I’m non clinical now, but I’m sure I never talked down to people like this!
Feeling fragile, not up to typing it all out but I’m horrified how dismissive people can be, it’s left me hoping these people get a taste of how it is to be a patient one day.
Similar experiences? AIBU to expect to be listened to?