Lyla's Law

[Macdara]

Hello,
Saw this Dad on BBC News this morning. His lovely little girl died from type 1 diabetes. Could you help by signing the government petition please?
https://petition.parliament.uk/petitions/728677
Thank you,
Mac

It’s heartbreaking that this man lost his daughter this way, but routine testing for type 1 diabetes in anyone is pointless.
Edit to add obviously besides testing someone presenting with signs of diabetes, in which case, it’s not routine testing, it’s symptom guided.

I’m not sure what that petition is saying to be honest. Mandatory testing of babies and children as a “routine part of medical assessments”? Which medical assessments? Anytime the child is at the Dr’s? Or only when diabetes is suspected (which sort of takes away the mandatory part, as I assume they’d say that currently they test anytime it is suspected)?

If you made yourself aware of the back story you would understand that it would be symptom guided however, the training for GP's is currently poor consisting of less than 30 minutes and that is another avenue for this.

No. I do not think it would be a good use of funding.

I support an evidence based approach for care with cost benefit analysis, not an emotion based approach.

Then I think they need to reword the petition because a “mandatory routine test as part of medical assessments” doesn’t mention symptoms anywhere. And therefore allows the gov response to say what they’ve said rather than forcing them to focus on the actual issue.

What’s needed is more training, and testing guided by symptoms - which is already in the NICE guidelines (which say that any suspected diabetes needs to be looked into immediately), so really they (very very very reasonably!) want the guidelines to be properly followed by GPs who’ve had sufficient training.

The backstory is obviously horrendously tragic.

It's futile telling me. I am just the messenger.

Good news!
This will now be debated in Parliament on the 9th March 26.
Thank you to all those who signed the petition,
Mac