Reactive Hypoglycaemia - monitoring blood sugar?

[Hs2Issue]

I'm not diabetic but do have reactive hypoglycaemia. After a few episodes of collapsing and hurting myself (landing on my face unconscious) I got diagnosed and have been ok for a few years. However I collapsed again last week and really hurt myself and was in A&E for a long time having xrays and ct scans for broken bones in my face.

I wondered if getting a libre or something similar would work well in this situation? I would have to self fund as already been told my episodes aren't frequent enough to warrant one.

A cgm in Conjunction with a food diary might help you understand what spikes you… the highs then lead to the lows….

a good endocrinologist would help you to interpret the results and help you to find a way to stop the highs…. which stops the lows.

good luck with it .

Thank you for replying.

My family are keen for me to get a cgm i just wasn't sure if it would be helpful for me personally but I think it might be.

Endocrinology at my hospital are running about 18 months late they said at my last appointment.

I have hypoglycaemia, but i can feel them coming on i take it you cant before you collaspe so yes get a cgm.
My son is a type one and wears a dexcom g6 its brilliant in terms of accuracy he tried the libre before and found it wasnt very accurate so keep that in mind.

I used to have reactive hypoglycaemia. It’s a symptom of metabolic syndrome even if you don’t have diabetes on a blood test.

Did your GP test your fasting insulin?

Mine went away completely on a low carb diet. Now I don’t have to carry sugar with me anymore.

Thank you for the recommendation my bil is type 1 and he says the cgm he has is great.

I took my blood sugar earlier this week and it was 3.8 and I had no symptoms at all (sadly before I collapsed i had felt a bit dizzy but hadn't realised how low it was!).

@PegDope it got initially picked up at bloods at GPs when i was being tested for something else. I have had one test in hospital where I drank a complete meal and then got sugars tested every half hour- that's when I got diagnosed 5 years ago. Endocrinology want to do a 72 hour fasting test - this was just before my last collapse when I had my last appointment. Unfortunately covid etc seems to have really delayed tests.

To be honest, more testing isn’t really needed.

Get yourself on a low carb diet and it will stop.

Thanks for everyone who posted on my thread. I've had an appointment with endocrinology and have an cgm now. It is a libre first one I had on my left arm and whilst some lows were picked up it was manageable. Now got the second sensor on my other arm and having constant alerts for lows.

Careful as CGMs arent always accurate, if its constantly going off you need to check it with a glucometer.

Thanks for that I wasn't sure about it!

I've really been cutting down on carbs and eating low gi foods a lot so was surprised by the readings.