Hi all,
Just as it says in the title, a week ago, my three year old son was diagnosed with type one diabetes. He had been drinking more and wetting the bed/having accidents (which shouldn’t have been happening as he is toilet trained).
We spent 5 days in hospital, learning how to inject, what numbers we need to hit, looking at carb ratios etc. and came home on Friday night.
When in the hospital, whilst absolutely devastated, I was very pragmatic about it. I know what I need to do and need to do it to the best of my ability to ensure my son is okay. All the nurses kept saying ‘it will be fine’ and ‘it will get better’ and I believed them but now we’re home, I just don’t feel this way at all.
Things have been very unsettled, bloody sugar-wise (lots of hypos and hypers). His behaviour is deteriorating. He’s distraught at every injection. No one is sleeping well. I fear for his life and what it may look like. I fear I am not good enough for him and can’t keep him safe. He is clever but doesn’t understand what mummy is doing to him. I feel guilty. I am angry. I don’t understand why it was my sweet, sweet boy. No one can reassure me because people can’t reassure me with total certainty it will be okay. And there’s absolutely nothing I can do about it.
I am going to take all the support I can for us and my son from the diabetes team but just wondered if someone would be kind and genuine enough to tell me how it goes from here? When does it settle? Do you feel better now? Is your child well?
Thank you.