Type 1 diabetes - hate it!!!

[pinkunicorns18]

I've been type 1 for 40 years now and it never gets any easier! Swung from 16.5 to 2.6 and back to 13.4 in the space of an hour and I'm feeling so grumpy about it all! The general public have no idea what a pig type 1 diabetes is.

Anyone else have down periods with it? There's no break from it, no times when we can be 'symptom free'. 40 years of this now!!

I know you posted this 3 weeks ago but I have only just seen it. I'm in a really bad place with my Type 1 at the moment. Please feel free to private message me, maybe we can talk as we will understand the frustrations. Which as you rightly say, nobody else does really.

Hi, I've had T1 for 8 years and have had periods of diabetic burnout. It's a recognised feature of living with this utter bastard! I've been on a pump for 2 years and have found my control to be better. Are either of you pumping or using the libre? Also, I've found support and info on Diabetes UK website helpful. Feel free to PM me for a chat/rant!

How do you move past the burnout?
I’m at the point where my life isn’t worth living because of the t1. I’m holding out until my kids are 18 and then that’s it as far as I’m concerned. 15 years to go 😬 I’m so sick of this constant balancing act between insulin and food and being scared of going low and feeling ill when I go too high. To this end I’ve pretty much given up eating but now I’m tired and miserable all the time.
My quality of life is so poor at the moment and I can’t see a way out of it. No one else gets how hard it is. I’m a sahm right now but how will I ever go back to work? My levels have been so much less stable since having my daughter and she is 3 now. I have a pump. A self fund a libre. There is absolutely no pattern to my blood sugars. It is completely and utterly random. It makes me laugh when they ask about carb and correction ratios. I’ve got no idea. How can I when my insulin needs can double one day to the next?

I sympathise, my daughter has been type 1 since she was 8, now nearly 40. There are periods of relative stability and others dreadful. People think good control is easy when often its near impossible. It definitely affects your mental health too, and can be exhausting. I am wondering if networking with others may help you share things with people who really do know what you are going through. It has grieved me to wath as a mother. The general public, and many health professional, really dont have a clue

I'm only about 9 months in and I'm already feeling frustrated by it- but my motivation is there as I need to sort my levels out pre pregnancy. It's a bloody horrible disease 😥

At the minute I feel ALL I do is worry about my blood sugars.
I am very worn out by it. I’d love a day off. We all would I know. Just the thought that this is my forever is depressing - I am nearly 26 years in.

Cheeky Squirrel - I felt sad to read your post. Even though I have often been there myself. I have young children (1, 2 & 5 & also pregnant) & they are the only thing that keeps me going. I feel so sad that nobody understands this illness. But how can I blame them? 6 years ago before I was diagnosed I never gave it a second thought either. I have a pump and the Libre and life has been a bit easier since (finger pricking and injections were just awful for me). I try & have tight control & as a result I end up eating to get myself through hypos - I have put on a lot of weight, which depresses me further. Everything about it has ruined my life x

Hi all, I’be been type1 diabetic for 23+ years and had my first baby 2.5 years ago. Possibly the only time I’ve ever felt scared and out of control with my diabetes and body. I’ve set this group up to hopefully enable us diabetic Mums to support each other and share stories and tips (breastfeeding caused so many hypos for example)! Please join... Diabetic Mums to be (and Beyond) UK
www.facebook.com/groups/335316300425235/?ref=share