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Diabetes support

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Flip

Original poster

CGM on NHS

10 replies

WreckTangled · 18/02/2018 18:42

Have just found out that my trust have approved CGM for patients with type one who have an insulin pump. That's me! I'm so excited. I had a trial of the libre over a ear ago but couldn't afford to continue. I'm most excited about not having to wake up to see what my bm is doing over night.

OP posts:

Woodenhillmum · 24/02/2018 21:56

Good to hear this is happening in some areas ,unfortunately our ccg are not funding .Hopefully it will be available in all areas soon .Really pleased for you .

user1471530109 · 24/02/2018 22:01

This is currently fucking me off. A LOT! I have really become to rely on these sensors and find it incredibly frustrating that I am about 2 miles from the border of a CCG who have funded them.on prescription whilst mine are still considering it.

Theresa May wears one FFS. I wonder if she self funds .

Not to mention the fucking mess Abbott's have made with the whole supply issues. Three weeks I've been waiting for a faulty sensor to be replaced. At £50 a pop that is not sodding good enough!!!

can you tell I'm not very happy

PeterPiperPickedSeaShells · 24/02/2018 22:05

My mum wears one and it has changed her life.
I very much doubt Teressa May's is publicly funded

Original poster

WreckTangled · 25/02/2018 06:18

Hmm I wonder how many CCG's have agreed to find them? I'm still waiting for my dsn to call me back as gp can't prescribe them initially. I tried to get an appointment but they didn't have one until June....

OP posts:

user1471530109 · 25/02/2018 08:11

www.diabetes.org.uk/get_involved/campaigning/flash-glucose-monitoring

The map on this page will show you.

Orange is no funding.
Blue is funding.
Grey is haven't decided.

Post code lottery

Original poster

WreckTangled · 25/02/2018 08:14

Wow thanks user. I feel even luckier now. Wonder how long until the dvla catch up and allow it to count for driving. I drive a lot as part of my job so it would be another huge benefit. Such a difference to treatment now from when I was diagnosed.

OP posts:

cygnet12 · 26/02/2018 11:33

lucky you, i'm not even allowed the needles i want...

Original poster

WreckTangled · 26/02/2018 11:45

Which needles are you after cygnet? Have you tried looking at the prescribing guidelines etc? I'm happy to look for you

OP posts:

cygnet12 · 26/02/2018 20:14

It's the microfine BD 4mm ones I got them this time after a fight I will get them for about two months then they'll switch them again. It's crazy. Thanks for the offer

Original poster

WreckTangled · 26/02/2018 20:18

I always had those needles when I was on injections! I have to say after reading a lot of horror stories I realise how lucky I am to live in the area I do. It helps that my consultant is also diabetic

OP posts:

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