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Dementia and Alzheimer's

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Covid vaccine - can I refuse it for Mum?

55 replies

SinisterBumFacedCat · 24/04/2025 13:37

DM has Alzheimer’s, 6 years in she is in a nursing home now, still responds to conversation (not always making sense), sleeps a lot, can’t walk unaided, functionally incontinent. I nearly lost her last month to bladder sepsis, after operating and seeing how confused her base level is the surgeon said next time it would be kinder to let nature take its course and I agree as she has zero quality of life now and I know that she used to think keeping people with dementia alive beyond this stage is cruel. Nursing home however works to a different set of values however and seem intent in keeping their residents going forever. I get this is their job, they get understandably attached to the residents but they don’t know the person from before and don’t always respect their wishes. I’ve had the inevitable email about COVID vaccine and I don’t want her to have it. I’m not an antivaxxer, she’s had them before, but she has never had Covid and a nurse I spoke to said she is unlikely to now and is probably immune. Mainly though I’m thinking she could be stuck like this for another decade, confused and anxious and scared. What’s the point? I’d rather she went out quicker with Covid/flu/pneumonia, so I’d rather not have her vaccinate. The problem is the nursing home might not take this very well or even allow it, they will probably think I’m uncaring when it’s in fact the opposite, I do care that she is in this prison of a disease and I want her free of it.
Has anyone had experience of refusing jabs? Do they judge you or even allow it?

OP posts:
MissMoneyFairy · 28/04/2025 10:59

The booster won't stop her getting covid and if she develops it she, like all the staff and residents and families, would have been exposed to it anyway. You'd never know who bought it in to the home.

MrsSkylerWhite · 28/04/2025 11:02

Sorry that you are in this situation but you need to consider everyone in the home, not just your mum.

If she does contract Covid, it may well just make her suffer terribly but not die and she may have an even worse quality of life until she passes away.

Not something I would choose.

catofglory · 28/04/2025 15:42

For those saying the OP should think of the other residents. It has not been mandatory for care home staff to have Covid vaccinations since 2022, and I know that not all the staff at my mother's care home were vaccinated last year, the manager mentioned it when I returned the acceptance slip. And of course many visitors are not vaccinated either because they aren't in a qualifying group. So I wouldn't see a resident not being vaccinated as much of an additional risk (to other residents).

Viviennemary · 28/04/2025 15:46

Why not have a word with her GP and see what they say. I can see your point of view.

TizerorFizz · 28/04/2025 16:01

@SinisterBumFacedCat I had to make decisions regarding DMs end of life care - no intervention and let it take its course. I got a lot of support from the care home GP and DM actually got to see him! Far better than her home GP service. I understood what was happening and the care home did too. No issues. DM did have a Covid jab in the home but she didn’t have dementia. Covid might be horrible but so is death over several months and years. I’d be begging for Switzerland!

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