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Dementia and Alzheimer's

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Sudden delirium - is this dementia?

34 replies

lorisparkle · 29/03/2025 21:48

Until Tuesday my 82yr old uncle was able to do the crossword, answer questions on Pointless and had started doing DIY for my cousin.

On Wednesday he woke up in a panic that the DIY was going badly wrong and became increasingly confused.

On Thursday he was ‘a different person’. Doing things he never does - one moment crying, another apologising for the past, another sitting in silence, another repeating words over and over again, another being anxious, another talking about weird views of the world and reality, another being paranoid.

He was checked by paramedics, GP and A&E who did physical tests, blood tests, ECG, and CT Scan and could find no sign of infection or stroke. He initially struggled with memory questions but has since ‘passed’ them.

He was seen by the GP again on Friday who felt that the decline was too rapid so sent him back to A&E. He eventually saw another doctor who agreed it needed more investigation. However this can’t be done until after the weekend.

Is this similar to anyone else’s experience? The doctors don’t seem to have any explanations.

OP posts:
lorisparkle · 04/04/2025 16:53

So after an MRI, CT Scan, ECGs, numerous blood tests, chest x-Ray, and urine tests they are convinced there is a medical cause but have not found it. He is having a lumbar puncture, EEG and consultation with neurologist to see if they can find any answers.

OP posts:
lorisparkle · 04/04/2025 16:55

He has been admitted to hospital as the delirium became unmanageable at home.

OP posts:
Roystonv · 04/04/2025 17:01

What a horrible time for you all but glad it is being taken seriously and wishing him well, please keep us updated.

lorisparkle · 03/05/2025 17:58

Just wanted to update. So after a long stay in hospital with many many tests my uncle is going home. They think he has a rare form of encephalitis linked to the autoimmune system. He has a course of antibiotics and then intravenous steroids. This seemed to help and he is now on oral steroids. He is not back to his old self but at least he can go home and be with my aunt. Thank you to all the information and support shared.

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ItsMutinyontheBunty · 06/05/2025 17:17

I’m pleased he’s improving and they think they’ve got to the bottom of what’s happening. Hope he feels better back at home.

Rhaidimiddim · 06/05/2025 17:26

This kind of thing has happened to my elderly in-laws several times, and each time a hudden UTI or some other infection, plus electrolyte imbalance were the cause. Samecwith the eldery parents of friends.

Mischance · 06/05/2025 17:55

Well done to you all for pressing for full investigation rather than allowing him to be dismissed as "just" dementia.

lorisparkle · 06/05/2025 19:27

Thanks everyone

@Rhaidimiddim we were really hoping it was an infection but after numerous blood tests, x rays, ct scans, mris, ultrasound, ECGs, EEGs, urine test, and a lumbar puncture no infection was found.

The general prognosis (from Google) suggests a long recovery period but at least he is well enough to be at home.

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Bologneselove · 06/05/2025 19:56

Ladamesansmerci · 30/03/2025 09:00

I'm a mental health nurse and work with older adults.

If a stroke has been ruled out, this does sound like delirium. Delirium is sudden and acute, and people's cognition/capacity usually fluctuates. People will seem like they're on another planet.

Use the PINCHME tool.

P- does he have any pain?
I- infection markers in bloods/wounds etc
N- nutrition. Is he eating enough?
C- is he constipated?
H- is he drinking enough?
M- any recent meds changes? Some meds are more likely than others to cause delirium. Some strong pain meds and are quite common medication causes.
E- any changes to environment?

Various blood results can present like delirium- common ones are sodium/potassium levels or uncontrolled blood sugars (HBA1C)

As others have said, push for a irine screen.

Really useful

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