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Dementia and Alzheimer's

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Am I doing too little?

8 replies

MadHatten · 15/11/2024 21:45

My parents are old, 83 and 89. I'm pretty sure my mum has dementia, my dad probably does as well. My mum has huge memory gaps. She can't remember recent things, eg she forgets content of an ongoing conversation, and also can't remember specific things or people during a timescale of around 20 years, eg she got notification that a woman she used to know had died, but she couldn't remember her. My dad is also becoming forgetful although not as apparent as for my mum.

It's been noticeable for about two years although thinking back with my mum the signs were there during covid but I put them down to other things.

Neither will accept any help. I go there once a week, do bits around the house and garden, sort out household contracts. I live 2 hours away.

They don't need help in the house but do in the garden, to my mind, but they won't employ a gardener.

My dad recognises he's not safe to drive now; my mum doesn't but I've give her key to my dad and when she asks where it is we say "I don't know" and she forgets about it.

Although objectively speaking they are declining and would I think meet criteria for adult social services assessment for help they won't countenance this and mostly they rumble along ok. Where one fails the other will pick up. Or I will. There's the odd drama to deal with, they both mislay phones and can't get to grips with technology, they don't always understand encounters with new people, but I sort those out when I'm there. Neither are in danger, I think.

I have spoken to their surgery about them and flagged my concern, but there's been no assessments or anything.

Should I be doing more? Or is it ok at this stage to leave it? I feel like I'm waiting for the axe to fall. Also that I'm being lax. But their house is clean and secure, they have friends and activities and they're happy, mostly. I don't want to rock the boat by insisting on intervention that they categorically don't want.

OP posts:
2Hot2Handle · 15/11/2024 21:52

Could you speak to their GP, or your GP to get medical advice? There must be steps that should be taken, to keep your parents safe and to keep other people safe from their actions (like trying to drive).

username358 · 15/11/2024 21:52

You might find Alzheimer's Society or Dementia UK helpful for advice.

Bannedontherun · 15/11/2024 21:56

my mil is late third stage Alzheimer’s. still at home, but on her own. Near to having to get her into care home.

They are lucky they have each other. There is a capacity issue for you to keep your eye on but if they are currently okay i would say leave it for the time being.

I would stress that now is the time to get a Lasting Power of Attorney, so that you can step in at a later date.

MadHatten · 15/11/2024 21:59

Thanks you 🙏 I have the financial LPAs in place. My dad would do the medical one but my mum won't. I mean absolutely will not. Big drama at the mere mention of it.

OP posts:
Holesintheground · 15/11/2024 22:04

Think ahead to what will happen when one dies. For me it was the parent without dementia who died first and things went downhill from there. But there is also a fair bit you can put in place without uprooting them. I would say

  • get power of attorney for legal and health for them both. You can do it so it's only activated when needed
  • get yourself added onto their main bank account so you can then run it if and when that's needed
  • get online shopping set up so food is delivered
  • get a cleaner and gardener booked: insist on the basis that you can't come as often as you'd like and it'll help you out. Or it's someone who needs the work. Make out they're doing you/someone else the favour
  • pendant alarm in case one falls and they can't find the phone? Or buy them more phones. Or an Alexa they can tell to call you
  • get prescriptions delivered. They do it for free. Get as much as you can delivered
SeaToSki · 15/11/2024 22:07

Get the health LPA for your dad if he will do it. Then work on your Mum separately. One is better than none, and if he does his, she might follow suit.

Bannedontherun · 15/11/2024 22:18

@MadHatten the medical power has little effect so dont worry about that

GranPepper · 16/11/2024 20:40

Holesintheground · 15/11/2024 22:04

Think ahead to what will happen when one dies. For me it was the parent without dementia who died first and things went downhill from there. But there is also a fair bit you can put in place without uprooting them. I would say

  • get power of attorney for legal and health for them both. You can do it so it's only activated when needed
  • get yourself added onto their main bank account so you can then run it if and when that's needed
  • get online shopping set up so food is delivered
  • get a cleaner and gardener booked: insist on the basis that you can't come as often as you'd like and it'll help you out. Or it's someone who needs the work. Make out they're doing you/someone else the favour
  • pendant alarm in case one falls and they can't find the phone? Or buy them more phones. Or an Alexa they can tell to call you
  • get prescriptions delivered. They do it for free. Get as much as you can delivered

It's not always a good idea to get added as a joint account holder to a bank account as differentiated from being added as POA. Adding as a joint account holder can cause problems such as you creating a financial link relationship in your credit report or frustrating the wishes of people in their Will. If you have financial LPA, being added as an account holder is not necessary. You can apply to be added as a POA which will permit ability to pay bills for them etc anyway. You can also apply for a thing called Appointee status with DWP to handle their benefits such as state pension without registering the POA. I could have bought 20 phones for my father and he would have lost them unfortunately. All the other suggestions are spot on

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