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Dementia and Alzheimer's

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Voting with dementia

18 replies

Ankleblisters · 02/05/2024 09:04

I feel a bit uncomfortable about the idea of my mother voting today. The plan is to do what we have done the last few times - I will walk my parents to the polling station and my father (68) will go into the booth with my mother (70) and 'help' her to vote.

The problem is that she has absolutely no idea what's going on now at this stage and we can only guess at who she would vote for. I have an email from her from 2016 in which we discussed who we would vote for but there is no way to know whether she would still want to vote for the same person given that after 8 years in power now they are considerably less popular than when they were in 2016! My father has decided to vote in a different direction (and I am also tempted by the same option) and is going to vote the same way for my mum. But I feel a bit uncomfortable that he is basically just getting two votes and we have no way to hear my mum's voice and vote the way she might really have wanted.

The various websites are all pretty unhelpful. I often feel most websites and discussions about dementia are all about the earlier or middle stages so this specific thing isn't covered. All it says is this: "Everyone with dementia has a right to vote. The Mental Capacity Act provides a framework for making decisions on behalf of people who lack capacity to make a decision but this does not apply to voting. It is up to the individual to decide if they want to vote."

Mum doesn't know what voting is anymore. She can't answer basic questions like whether she is hungry, thirsty, in pain, warm enough, too hot. There is no way of knowing what she wants except to go with the fact that we nearly always agreed on things like this and my parents political opinions were always pretty aligned.

I may be overthinking this in our case but I was interested in what other people thought about the issue in general. I worry about other abuses like someone being encouraged to vote far-right when they never would have before dementia (thankfully not at all the case here, its all about left or slightly less left in our case). Interested to here other opinions or cases.

Dementia and the Mental Capacity Act 2005

People with dementia may lose mental capacity and become unable to make some decisions. The Mental Capacity Act is the law in England and Wales that protects people who lack capacity to make a decision.

https://www.alzheimers.org.uk/get-support/daily-living/making-decisions-mental-capacity-act

OP posts:
Huckleberries73 · 02/05/2024 09:10

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Ankleblisters · 02/05/2024 09:55

Thanks Huckleberries. We shared the POA for all aspects except financial (which is all on my Dad). But according the government's advice "the decision as to whether and how to vote at an election must be made by the elector themselves and not by any other person on their behalf. Those who care for or who otherwise make decisions on behalf of a person may not make decisions on voting."
I don't necessarily think that its 'wrong' to vote on someone's behalf when they cannot make their own decisions but I think the government's advice here is not fit for purpose because it doesn't answer the basic question and it doesn't protect anyone from the possible abuse of their vote by someone who won't actually take their real views into account.
That's not the case for us and not the case for you and your husband either as you will clearly prioritise what he would want - but that won't be the case for everyone and it's concerning I think.
Sorry to hear about your husband. Young onset is so sad and unfair. My mum is also young onset, she's had the diagnosis for more than 13 years now.

OP posts:
Huckleberries73 · 02/05/2024 12:25

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FlipFlops4Me · 02/05/2024 15:48

When my DH's dementia became severe enough for him to be incapable of understanding voting any more, I (as his POA) elected to have him declared incapable to the local authority (the GP signs a form), and he was simultaneously removed from the electoral roll and discounted for Council Tax purposes. This was backdated to the date the GP stated he was incapable from, and a refund was issued by the Council for the overpaid tax.

Wolfpa · 02/05/2024 16:00

If they don’t understand what they are doing I would say it’s time to stop taking them to vote.

motherdaughter · 02/05/2024 16:21

I stopped taking my dad to vote when he made the decision to vote to protect grammar schools. This was probably about 5 years ago. I figured that a vote for 1968 probably wasn't valid in the twenty first century.

Huckleberries73 · 02/05/2024 18:06

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Hadalifeonce · 02/05/2024 18:11

I am not sure they allow a second person in the voting booth, I think it's to stop coercive control over someone's voting rights.

MotherOfCatBoy · 02/05/2024 18:22

My MIL used regularly to vote exactly the same as my FIL because that was what they had always done and she wouldn’t deviate from anything he did. No independent thought going on, I’m not exaggerating.
Although this scenario is very different, I bet the result isn’t that different for many elderly couples (apologies if your DM is a younger generation).
Agree with pp about getting her removed from Electoral Roll.

FiveFoxes · 02/05/2024 22:44

My Mum has Alzheimer's. She has been receiving all the election leaflets through her door and wanted to vote. We only had PCC here, so I printed out the information on all the candidates and gave it to her to read, which she did and decided who to vote for (for slightly dubious reasons). When we got to the polling station, the people there made me go in and help her. Probably because she said loudly "who am I voting for again?". I really felt like they thought I was telling her who to vote for rather than reminding her of who she had chosen.

If she no longer understands, there is no way I would take her to vote. Only until she can no longer decide and no longer.

FlipFlops4Me · 04/05/2024 14:43

I didn't automatically get a discount when Attendance Allowance was granted. I applied a couple of years later and the doctor filled in the form with the date from which DH was judged to have lost capacity by the Mental Health team. I had no input. My GP forwarded the form to the Council who then got in touch with me.

I didn't get a larger discount; it was just backdated because of the info my GP put into the form.

Huckleberries73 · 05/05/2024 03:36

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FlipFlops4Me · 05/05/2024 14:05

He's in residential care now, with one to one attendants 24/7 (he's violent, impulsive and amazingly strong and doesn't sleep - 20 minutes last night). In England AA stops when you go into care and to be honest things are bumbling along OK at the moment and I'm still getting over the utter exhaustion. I visit every morning for a couple of hours and he's calm when I'm there. All change as soon as I leave.....

FiveFoxes · 05/05/2024 14:45

@FlipFlops4Me I am pretty sure AA doesn't stop when you go into care. At least, my FIL continued to receive it when he went into care last year and we did inform them.

CaptainCarrotsBigSword · 05/05/2024 14:53

Why dont they both switch over to postal votes? Then he can fill his in for his vote, and you can try to have a conversation with her during a more lucid spell as to her voting preferences. If you can get a coherent response, send in the vote, if not, bin it.

FlipFlops4Me · 05/05/2024 17:01

FiveFoxes · 05/05/2024 14:45

@FlipFlops4Me I am pretty sure AA doesn't stop when you go into care. At least, my FIL continued to receive it when he went into care last year and we did inform them.

I contacted AA to advise that DH had gone into care and they immediately stopped his AA. The local authority Finance & Benefit team said they would also be contacting AA to advise of the date DH went into residential care, so that the benefit could cease being paid to DH. Whether it's paid to the home I don't know, but I do know DH doesn't get it because I have PoA and run his only bank account.

FlipFlops4Me · 05/05/2024 17:04

Ahhh - mystery solved. According to Citizen's advice:

"You can't usually claim Attendance Allowance if you live in a care home and your care is paid for by your local authority. You can still claim Attendance Allowance if you pay for all your care home costs yourself."

DH's care is paid for by the local authority with him paying a large contribution.

FiveFoxes · 05/05/2024 17:42

@FFlipFlops4Me And FIL paid for his so that explains it. Thank you for investigating.

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