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Dementia and Alzheimer's

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Where to turn? Please help me.

8 replies

simplynotime · 11/09/2023 21:19

Hi Mumsnetters

I've name changed for this as the post is rather outing. I started a thread a few weeks ago after suspecting that my mum may have Alzheimer's/Dementia. Since then, (or this evening rather) I think my suspicious are right and I must face up to what is to come. (Sorry for long read, just wanted to get it all out).

To give an outline of things I've noticed so far :

  • Odd behaviour/slight changes that are a bit unusual for my mum. For example, we met up to go for a walk last week, and she suggested she would stop off and get some sandwiches and food from a nearby M&S. I was really looking forward to having some nice food. She turns up with a tupperware box with a lot of home made cakes, some mini sausage rolls, mini sausages and oranges. I know it's food, but there wasn't really enough for a proper lunch for us all, and all the cakes were not appropriate for a lunch. She has days where she is rather distant. I've rang her in the past and she seems disinterested in speaking to me and is busy doing a puzzle or task. She sometimes doesn't reply with a 'x' after messages which she always used to do. She ignores text messages. Then the other night she rang me and was on the phone for a long time. It felt like she wouldn't end the call at an appropriate time and I felt bad for ending the call but was getting late.
  • Asking odd questions, or things that don't appear to be in place. We went to a museum a few weeks ago for my DD's birthday. It was about a 2 hour drive and we'd be there all day. She then asks the day before ' 'Are we having lunch in hometown?'.
  • Confusion. - So this is where it finally dawned on me this evening. Had one of those moments whereby something clicks in your mind and you know you know. My mum purchased some tickets last week. Now, the lady selling the tickets on Ebay was being rather difficult (and dumb!) because she sent my mum two tickets, but the third part of the third ticket was missing. I saw what my mum had printed out, so knew exactly what she needed. My mum messaged this woman numerous times explaining the situation, and kept asking for the third part of the ticket. This woman just kept ignoring my mum's question and so I reached out to the woman myself and she sent me two tickets (We needed three). My mum said that the barcode on the ticket this woman sent me was different to the one she had, so must have been the missing ticket. This evening, I called my mum and asked her to confirm the barcode numbers so we had everything ready for tomorrow. She really struggled to understand what I was asking her to do. As a process of elimination, I wanted to see if the barcode for one of her tickets was the one I didn't have. She was very confused (to be fair, it was a confusing situation as there were two barcodes per ticket) but could easily be figured out by reading out each part of the ticket. There were long pauses in between our conversation and when I kept asking her a question to see which ticket she had, she would repeat with 'Do you want me to read it out again?'. At that point, I almost burst into tears because I know my mum would have been able to understand what I wanted her to do last year, and it was confirmation that something was very wrong. She just didn't seem to have the mental capacity to understand what I was asking of her.

Sorry for the long post...I just don't know what to do, or who to turn to. Should I go and speak to a doctor or a charity about what to expect? I feel very very lost and quite devastated. We are meant to be going away tomorrow and was really looking forward to it but now I just can't stop thinking about the future and what's going to happen.

TIA x

OP posts:
BluebellsForest · 11/09/2023 21:34

How old is she, @simplynotime?

People can change and get a bit forgetful and slower in understanding as they age without it necessarily being a descent into dementia.

The food in the restaurant thing and a few others you mention just sound like an older person.

I do appreciate that obviously you know her and will spot what isn't normal for her, but it doesn't have to mean the start of a dramatic decline.

My dad did quite a few odd things and didn't get some social norms as he aged, but he never developed dementia.

There's another thread on here that mentions a good FB group, I'll find it for you.

BluebellsForest · 11/09/2023 21:36

Here you go:
"For your sanity, and a place to let off steam I would really recommend joining the talking point blog at Alzheimers UK."

BluebellsForest · 11/09/2023 21:36

From this thread: How to get support www.mumsnet.com/Talk/dementia/4889346-how-to-get-support

simplynotime · 11/09/2023 23:32

Thank you for the link @BluebellsForest . My mum is 75. I think I'm overly conscious as Dementia heavily runs in my family. (My gran had it at the same age as my mum, my two aunties who are both on my mum's side and my grandad too!).

I've spoken to my mum this evening however, and she does seem fine. I've looked at the tickets and I admit it was very confusing for her as it was printed very oddly (total fault of the silly Ebay person).

Will keep an eye on her and see if any more changes occur.

OP posts:
BluebellsForest · 12/09/2023 10:23

I can see why you're vigilant, @simplynotime. I also found with another relative that one day they can seem quite worryingly confused and disoriented, and then go back to normal for weeks.

bilbodog · 12/09/2023 10:50

Have you got power of attorney (health and financial) for your mum? I would advise you to do this ASAP whether you need it or not yet as it takes a while to be put in place and your mum needs to be compus mentis to sign the documents.

Finishingoff · 12/09/2023 10:55

I have a parent with dementia. I would urge you to contact your mum’s GP and explain your concerns. They will do a memory test with her and this will kickstart the process of there is an issue. They can often do this quite covertly if you are worried about her reaction to this. I would strongly recommend that you go with her because she may not go on her own, or may be able to mask the severity of things (if this is the case).
I really feel for you OP but try not to panic as there are lots of other causes of confusion besides dementia. Good luck x

joendilla · 14/09/2023 10:12

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