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Dementia & Alzheimer's

Assets and paying for funeral

55 replies

Kevinyoutwat · 12/01/2023 16:14

My dad had been in a care home since December 21. He went in for respite after a hospital stay and never came out, the plan was to move him back home with carers, but hospital and respite deteriorated him so much that it was unsafe for him, he lasted 24 hours at home before we had to put him in a permanent care home, it was clear he would have harmed himself or someone else if left alone for a second.

A social worker deemed him to lack capacity in late Jan, he’s under dols.

While he was staying with me prior to that, sept-dec 2021, he finally realised that he wasn’t going to drive again, so he gave his car to dh in the December.

Not that we could afford to insure and run two cars, so it’s been sat in the garage ever since.

With everything that was going on with my dad (it’s been stressful to say the least), we didn’t legally sign the car log book over to dh until April.

We didn’t have the headspace, we were having a nightmare selling my dads home for the care fees, his bank were terrible sorting out the POA on his account, we had to go through complaints the lot, the company who owns the care home were hassling me on a weekly basis for their money as the sale was dragging on.

Anyway, the car has SORN and just sitting there ever since.

I need to sell it. It’s a constant reminder of everything that’s gone on, what’s been lost and we will never be able to afford to run it. And it’s just sat there rotting away.

It’s worth about 2k.

Everyone is giving me conflicting advice. It’s dh car. Log book in his name. So he can legally sell
it and keep the money.

But, my dads money will run out in 10 months.
Are Social services going to ask about his car? They go though bank statement for years back don’t they, to make sure that no assets have been disposed of - they will see he was running one, paying car insurance/petrol etc.


I’ve spoken to two solicitors, both told me conflicting things.

Dh is just going to sell it and we’ll keep the money in a separate account incase they want it. It’s worth about a week and a half of care home fees, for context.

Also, before his money runs out can I pre pay for a direct cremation from his bank account (I have POA)? The charge is 1.4k.

I won’t be able to pay for one when the time comes otherwise. My dad always told me that he had a funeral plan. I finally got the courage to open his “death box” a couple of months ago
and yes, he’s got his funeral planned to an T - only, he didn’t actually pay for it like he led me to believe. He obviously never thought he would have to go into a care home, this all happened within the space of 6 months . He planned what he wanted was on the basis that he thought he would die and leave me as the sole beneficiary with a house and all his savings, he never envisaged it would all go on care fees. So his plans to pay for it are basically, “use the savings in my current account.”

I can’t give him the funeral he wants, that would cost thousands, but I thought I could pre pay for the cheapest option, a direct cremation. That way, we would get his ashes back and could have a memorial.

Again, I’ve been told conflicting things on that.

Sorry if these are stupid questions, I’m not
coping with any of this.

I’ve spoken to solicitors who offer free half hours and say they are specialists this, I’ve spoken to age U.k. and the other charities everyone says to contact, but they tell me something different.

I tried asking the social worker who assed him these things and she just kept talking about “money grabbing families”. These thing are
important and causing me stress, I’d just like to know.

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Tyjaro75 · 12/01/2023 20:53

Growlybear83 · 12/01/2023 19:51

I know this isn't what you were asking, but has your dad been assessed for Continuing Healthcare funding? The threshold is quite high and a high proportion of people seem to be told that they don't qualify when the assessment is initially carried out, but I have now come across many people whose parents with dementia have qualified for funding. This isn't
means tested so would cover the entire cost of the care home fees and would not mean that assets would have to be sold. You need to demonstrate that he has a primary health care need rather than a social care need, but depending on how his dementia manifests itself and his other health needs, it's definitely worth investigating. If you Google continuing healthcare funding, you will find a lot of information. There are several companies which will prepare your case for a fee, but Beacon Healthcare, who you will see on a Google search, give free advice on eligibility and applications. I'm currently going the the appeal process for my late mothers funding and they have been really helpful.

This! My father went into hospital for 3 weeks for testing and was discharged into a care home because he had deteriorated so much, mentally and physically. He also had dementia.
I honestly don't know who arranged the assessment but because his medical needs were so high ( couldn't walk, feed himself, incontinent, mental capacity gone) he received full funding.
You should ask the clinical lead at the home or possibly the occupational therapist ( if one has been involved).
I'm so sorry you are going through this. It's hard enough seeing your father like that but the stress of everything else is awful. We were very lucky that we had a very helpful care home really.

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Kevinyoutwat · 12/01/2023 20:59

lookslikeabombhitit · 12/01/2023 20:47

What is your Dad's prognosis/ diagnosis. You don't need to say here but take a look at continuing healthcare funding and see if he meets the criteria for that. Ask his care home to refer him to social services for a care assessment and for advice re. his estate and funding. You need that point of contact to be able to get the answers to all of these questions that are specific to your local authority and how they apply the rules.

Sorry you're going through all of this. Negotiating adult social care is beyond stressful. X

No idea what his prognosis is.

No one speaks to me. He’s never even had a proper diagnosis. He had a brain scan when he was in hospital. They didn’t want to do one, they said he was absolutely fine and kept telling me to take him home. He wasn’t. He was hallucinating, talking gibberish, confused, he thought my husband was dead and his
ghost was coming to visit him when my husband was there. He thought Derek Accorah was hiding under his bed and that was why he could see and hear dh. But no, the consultant said he was tip top! Take him home!

Anyway, I had to literally stage a sit in. I wouldn’t let the consultant leave the ward until they agreed to do a scan. They threatened security. I said I don’t care if the police arrest me, just do a fucking scan. They did the scan and said “oh yes, that looks like vascular dementia. There is something wrong.”

Then he was moved to respite as I refused to take him home, long story short, he ended up staying in a home.

Theres been no more on the dementia. I spoke to the GP twice who couldn’t have cared less - all she cared about was getting the DNR in place.

A social worker visited him once, then phoned me with a load of bullshit about how happy my dad was in the home, how he’d fallen in love with it. That’s not how my dad speaks. Turns out, he couldn’t understand her accent and was just nodding along with what she said because he thought he was in prison and didn’t want to get into trouble.

All I know is he's very healthy in his body. He’s 87 and fit as a fiddle. Which is terrible because he will just live longer, terrified with his mind going.

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Kevinyoutwat · 12/01/2023 21:06

Tyjaro75 · 12/01/2023 20:53

This! My father went into hospital for 3 weeks for testing and was discharged into a care home because he had deteriorated so much, mentally and physically. He also had dementia.
I honestly don't know who arranged the assessment but because his medical needs were so high ( couldn't walk, feed himself, incontinent, mental capacity gone) he received full funding.
You should ask the clinical lead at the home or possibly the occupational therapist ( if one has been involved).
I'm so sorry you are going through this. It's hard enough seeing your father like that but the stress of everything else is awful. We were very lucky that we had a very helpful care home really.

He has no care needs like that.

He can feed himself fine. He needs support with showering but that’s mainly because he’s got arthritis and can get unsteady in the shower.

He communicates fine - he just talks a lot of bollocks.

Hes not incontinent- he has accidents sometimes but that’s because he had colon cancer 9 years ago and he sometimes gets bouts of diarrhoea out of the blue, apparently it’s common after the surgery he had. He can walk fine, it’s just arthritis in his knee that means he has to use a frame, he’s been using a stick for 15 years for that.

So he really wouldn’t qualify.

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Soontobe60 · 12/01/2023 23:52

Kevinyoutwat · 12/01/2023 17:39

It’s not his car now though.

It’s been in dh name since last april.

But yes, it has to go this week. I can’t have it sat here rotting away any longer.

Who do I contact for a financial assessment and when? The care home take so long to do anything.

If you Google your local council + care home fees, there will be link to their website. My local LA (Bolton) has this page. www.bolton.gov.uk/adult-social-care/care-homes
It will tell you what needs to be done for his needs assessment. You can download the application from their website and take it from there. The care home won’t do it for you. I actually made an appointment to go into the council offices to meet one of the advisors from the financial assessment team to help me to complete the forms.

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LizBuin · 14/01/2023 11:29

Out of all the posts on here I would take note of the one by Hatgirl. They've posted heaps of advice on MN over the years and know their stuff.

I went through the CHC process with my dad, and usually I would be the first person to encourage others to ask for an assessment but if there are no medical or complex needs then it's absolutely pointless. The emotional toll it takes on you is not to be underestimated.

One thing I would suggest is that you insist on everything in writing. As you've already found out the different people involved do tend to contradict each other and it can be very difficult to know who is correct. In my experience they don't like to put anything in writing (wonder why?) but then if you do run into any issues it's always your word against theirs.

Lastly, look after yourself. There's a reason the airlines tell you to put your own oxygen mask on first.

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