Please or to access all these features

Dementia and Alzheimer's

Mumsnet doesn't verify the qualifications of users. If you have medical concerns, please consult a healthcare professional.

Fucking dementia

234 replies

MegGriffinshat · 29/10/2022 17:11

I hate seeing my dad waste away.

This time two years ago he was totally normal. Living alone, driving. Nothing wrong.

Today he’s in a care home, confused, talks a lot of shit but mostly just sits staring ahead.

It all came on so suddenly. April last year he started hallucinating and by december he had to live in a home.

He’s not living, he’s existing. He saw his much loved SIL gi through this, he begged me to tell me to kill himself if it started happening to him. It came on so fast he didn’t even know to do that.

Why do we let people exist like this? He’s had moments of clarity over the last year where he’s begged to be euthanised or for them to let him end his life. Their solution was to put him on antidepressants.

I hate this. I really hate it. I’m an only child, my mother died when I was a kid. There’s no other family. My husband does what he can but ultimately, it’s all down to me. Getting him help was horrendous. Selling his home has almost finished me off, there’s been so many problems. He had me later in life, everyone expects me to be in my 60s with grown children, but i’m 42 with a toddler and other young children.

It would have been so much easier if he had just died one day. At least that’s final and I wouldn’t have to watch this horrific, slow torture until he dies.

Every time the home calls for some reason, I pray that they will tell me he passed away in his sleep.

My friend said I was evil for wishing him dead. But he’s not living. He hates this. He doesn’t deserve this living hell.

Im sorry i am just so upset today. He was here today just staring and talking gibberish. That isn’t my dad anymore.

OP posts:
orangetriangle · 04/02/2023 18:22

I would also say lots dont get to this end stage dementia as it takes longer to get there than 2 years so they die of something else in the meantime or they are in late 80s early 90s when dementia diagnosed so they die of old age before it gets to that stage my mum will be 81 next month

Tara336 · 04/02/2023 18:25

@DahliaMacNamara every visit my DF seems to have slipped a bit. We are exactly the same this time last year DF was holding conversations, walking around visiting shops with DM then he had an accident in June and things spiralled downward from there.

@orangetriangle I have to say I was doubtful DF has put on weight, I genuinely wonder if they have the figures the wrong way around as Dr did stumble over them when he read them out and DM said are you sure? You've told us he's had days where he will only drink!

**

dontknowwhatsbest · 04/02/2023 18:35

Been following this thread for a while and wanted opinions of others going through this. DF is in care home with dementia, quite a distance for any of us to travel to. However some of my siblings have never visited him and have no plans to. I struggle to make peace with this and it's caused a huge wedge between us that I don't think we'll ever recover from. Is it ever ok not to visit?

DahliaMacNamara · 04/02/2023 18:46

People deal with things in different ways, I suppose. But I would struggle to understand not visiting at all, in the absence of any toxic relationship between parent and children.

Icanflyhigh · 04/02/2023 21:29

dontknowwhatsbest · 04/02/2023 18:35

Been following this thread for a while and wanted opinions of others going through this. DF is in care home with dementia, quite a distance for any of us to travel to. However some of my siblings have never visited him and have no plans to. I struggle to make peace with this and it's caused a huge wedge between us that I don't think we'll ever recover from. Is it ever ok not to visit?

I've just gone through this. My DM had a fairly rapid deterioration and over the course of her illness my siblings rarely bothered at all. They don't live a great distance away, less than 30 mins by car.
I struggled with this hugely, and always will, they left me and DF to deal with all of the day to day care of DM and both now are acting in a vile manner and citing grief as the cause of their behaviour.

I haven't had time to grieve yet, bits come out, but I'm so angry with them for leaving us to it, and knowing that when anything happens to DF, they'll swoop in to claim their inheritance. I'm encouraging DF to spend the bloody lot and enjoy it while he can.

We won't ever recover from the wedge they created by not being there or visiting DM, and the only comfort I take is that my conscience is clear. I was there as often as possible and did as much as I could to support both DM and DF, and for that I feel no guilt.

orangetriangle · 05/02/2023 10:48

Personally I have to visit no matter how hard it is as that is my mum
I dont have any expectation anyone else visits her other than my sister which she does. My husband comes too sometimes but again I wouldnt blame him if he didnt
You only get 1 mum so why wouldnt you. This is just my personal opinion
Is it enjoyable no is it hard yes but life is sometimes

dontknowwhatsbest · 05/02/2023 13:08

It's good to hear others thoughts and experiences. Sometimes you question yourself but I just can't get my head around or accept them never visiting.

Tara336 · 05/02/2023 13:27

My DB has been once since DF went into the home last month. He struggles with it as DF was verbally and physically aggressive before he went into the home. He didn't ha e a great relationship with DF growing up and he's struggling with that. Personally I'm sad he's not bothered but TBH I don't think DF knows us now or at least it seems that way after the last couple visits. I will keep visiting as I will do what I feel is the right and decent thing to do. TBF DB did help with some of the physical care of DF which I didn't.

orangetriangle · 05/02/2023 13:59

I dont think mum knows us now or if we went or we didnt go I think she is totally unaware but I know I've been and that's what matters to me personally

New posts on this thread. Refresh page